Re: I am new--> Tori's Mom

[Guest guest]

We live in central Alberta, Canada. We were able to go to the

convention in Chicago last summer and are very much hoping to go

again this summer!

Olivia gets regular OT and PT at school but has graduated from

speech. One of these days her attention span will increase!!

A lot of the kids here are in other activities. Olivia's been in

ballet since Sept and just loves it. Swimming lessons are also a

big favorite for her.

Leah, mom to 10 and Olivia 5years, 22lbs, 34.5 " , RSS, OI

> >

> > Hi my breif story. My daughter Tori is 5 yrs old she was

> diaginosed

> > with RSS in December 2001.I had a normal pregnancy up in till my

> > 37th week when in for ckup my blood pressure was very high not

> > normal for me. So my OBGYN sent me to Beneditine Hospital to be

> > monitored everything seemed ok myblood pressure went down and I

> was

> > sent home. That was on wednesday, friday was christmas eve it

was

> > the sadiest christmas I had ever had the not knowing and feeling

> > somthing was very wrong. We had christmas oh wait my Dr called

me

> > the day before and told me to be in the hospital on sunday the

26.

> > So my husbad drove me in around 11am I had a sonagram done but

> back

> > on the monitor, then around 4pm the midwife that worked in my

> > obgyn 's office came in and gave me cervidile she said that

> nothing

> > was wrong we were just going to ripen my cervix so I would be

> ready

> > to deliver on monday when the Dr. comes in. Then around 11:30

the

> > nurses sent my husband and his dad home to rest and shower they

> said

> > that it would be a bust next day at 12:15 in the morning I got

my

> > first contraction. The nurse came in and said I still had along

> way

> > to go, I called my husband about 1:45 asked him to please come

> back

> > I was in alot of pain he said he would be their soon as he

could,I

> > called him back again at 2:30 and said I was in labor, then

called

> > him again when my water broke at 2:55.The nurse came in and

tori's

> > head was crowing I delieverd at 3:05 am alone with 2 ER

Drs.Things

> > happened so fast over the next few days. Tori was transported to

> > vassers nicu unit her glueclose would not come up and she only

> > weighed 3 lbs 9 oz. She spent 9 days in the hospital, she was

sent

> > home only weighing 3 lbs 11 oz. I nuresed her around the clock

for

> > 15 months the peditrican said she was below the 5th percentile

but

> > still had her on little curve she was maintaing. Tori started EI

> > services at 6 months because she was delayed. Thne we were

refered

> > to this Dr and that Dr And then finally saw one at west chester

> > medical center who gave us som understanding what was going on

and

> > here we are facing yet another challenge (kindergarten)Tori now

> > weighs 30 lbs and 3feet 2inches, she is relitivley doing good,

but

> > will be going to see Dr Harbison at Mt.sini in NY.And we will be

> > attending the magic foundation as long as I can raise the money

> for

> > us to go.

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