Re: Re: Hello everyone-megan

[Guest guest]

Hi again, one more thing, on the application to join the magic foundation there

are different memberships, do you know what the difference is between them?

Thanks!

ada visperas wrote:Thank you ,

we're living in Tijuana for now because my husbands job moved him to San Diego.

Since his parents live here and we pay mortgage for a house we own in Las Vegas

(which we're trying to sell), it helps financially so we're not paying mortgage

and rent at the same time. What high in fat yogurt did you buy? has a hard

time with chunky foods, so i do give him yogurt, liquid yogurt/smoothies, and

mash other foods he likes to eat so he doesn't gag.

mother to rss 14mos

wrote:

Hi ,

De ja vu for me - last year I was joining the group with my 14 month

old daughter! So he is probably Feb right? My first suggestion

would be to join the MAGIC Foundation (www.magicfoundation.org), the

second to come to the convention in Chicago in July! They offer

scholarships if you cannot afford it. Curious as to why Tijuana -

maquiladora mgmt? Anyway, lots of suggestions to be found here! At

that age, high fat yogurt and cheese were o ur saviors for my

daughter!

, mom to , 5 and Emerence 2, RSS/SGA 20lb 11 oz, 31 " and

headed for her 3rd ear tube surgery....

>

>

> Hello everyone! My name is and i am new to this support

> group. Here's a quick run down of my story. I am 29 years old and i

> have one son (ryan) who is 14 months old. I carried him full term

> and he was born at 5lbs 8oz, 18 inches long. He didn't/doesn't have

> any major health problems. His pediatrician at birth was worried

> about his weight after he went in for his first few appointments

and

> did not gain weight. He ordered blood test to see how his kidneys

> functioned. They were normal. We then moved to Tijuana, Mexico and

> the first week we were there he had the flu ( was about 8

mos).

> We took him to a well known Dr in Tijuana, and it was there were he

> brought up the fact that he might have RSS. We wanted to make sure

> so we then took him to a pediatrician in Southern California, to

get

> a second opinion, We had no idea what RSS was and wanted to know

ALL

> the details of the genetic syndrome. Our next stop was the

> Geneticist, who confirmed did indeed have RSS. He didn't

really

> get too detailed on RSS (which i thought he could have been more

> informative since we were first time parents, let alone with a son

> who has RSS). So i decided to join this support group in hope to

> compare notes with other parents who are/have been in the same

> situation. now weighs 12lbs, and is 24 inches long.

> Thank you so much for your time (as i will probably have more

> questions to come ;o)...)

> , mother of

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