Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 Donna Take a list of questions and a pad to take notes. Get copies from him of all tests and labs. Do not allow yourself to be rushed. Make sure you get everything covered you want. Also, as you will have more questions after, find out how you'll get those answered. Is the pulmonologist connected to a teaching hospital with an ILD department? If not, then I'd definitely want to know what his experience with PF is and where that came from. How many patients with PF. Any signs of connective tissue diseases or what testing has been done. Make sure extensive is done. What form of PF and how the conclusion has been reached. Do you have an oximeter? If not, get one. Have you had an overnight oximeter test performed? If not request it. Pulmonary Rehab. Ok, thats just a few items that crop to mind. > > Tomorrow is my first appointment with the Pulmo-dude. I am wondering what the first visit is usually like. I am also wondering what types of questions I should ask when I see him. Any input would be appreciated. Thank you and wishing everyone comfort! > > Sincerely, > Donna (Iowa) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 Always look at your X-rays. Get to know what your lungs look like. Work with the doctor to understand what you are seeing. Try to get him to compare this time X-rays with last time X-rays as you see him so you will be able to see for yourself what is going on. Pay attention to how things feel inside. Even with all the doctors doing all the doctor stuff I am in control of my body and the decisions I make concerning my care. S, Lubbock, TX NSIP w/PF 12/2006 > > Tomorrow is my first appointment with the Pulmo-dude. I am wondering what the first visit is usually like. I am also wondering what types of questions I should ask when I see him. Any input would be appreciated. Thank you and wishing everyone comfort! > > Sincerely, > Donna (Iowa) > Quote Link to comment Share on other sites More sharing options...
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