Guest guest Posted May 16, 2010 Report Share Posted May 16, 2010 Thanks Kim. I guess I'll start gathering easy recipes. Is lemon curd freezeable? You have been through a lot. Glad you are feeling better. I do not know what they'll suggest yet. I am not even sure what's wrong yet. May as well have things cooked up for the hot months if it turns out I'm jumping to conclusions. My mom has recently started this all natural cream and it's like my old mom in a way. So much energy and she's kidn of nice ;-) (kidding). But, she says she can feel a difference, I can see it. Debbie 41 cd Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2010 Report Share Posted May 16, 2010 Debbie, When I had a bowel resection last fall, I spent 3 weeks cooking like crazy! I made 2 batches of butternut squash pie filling (the recipe is the pumpkin pie filling in BTVC), 2 cheesecakes, 2 batches of frozen yogurt, 2 batches of nut butter brownies, and a batch each of cooked apples and pears, and a batch of chicken soup. All freeze wonderfully! The night before I left for the hospital, I made up some jello for when I got home. Luckily, I live with my parents, so I didn't have to worry about cooking everything (like meat). My mom is kind enough to always cook the meat in an SCD legal way. Good luck! Holly Crohn's SCD 12/01/08 > > Thanks Kim. I guess I'll start gathering easy recipes. Is lemon curd > freezeable? > > You have been through a lot. Glad you are feeling better. I do not know > what they'll suggest yet. I am not even sure what's wrong yet. May as well > have things cooked up for the hot months if it turns out I'm jumping to > conclusions. > > My mom has recently started this all natural cream and it's like my old mom > in a way. So much energy and she's kidn of nice ;-) (kidding). But, she > says she can feel a difference, I can see it. > > Debbie 41 cd > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2010 Report Share Posted May 16, 2010 Perfect, thanks! Does anyone know if banana pancakes or the bread like pancakes on nomorecrohns.com freezes well? That would be easy to thaw; make sandwich or have with eggs I think. Quiche, does that freeze well also? Debbie 41 cd Debbie,When I had a bowel resection last fall, I spent 3 weeks cooking like crazy! I made 2 batches of butternut squash pie filling (the recipe is the pumpkin pie filling in BTVC), 2 cheesecakes, 2 batches of frozen yogurt, 2 batches of nut butter brownies, and a batch each of cooked apples and pears, and a batch of chicken soup. All freeze wonderfully! The night before I left for the hospital, I made up some jello for when I got home. Luckily, I live with my parents, so I didn't have to worry about cooking everything (like meat). My mom is kind enough to always cook the meat in an SCD legal way.Good luck!HollyCrohn's SCD 12/01/08 >> Thanks Kim. I guess I'll start gathering easy recipes. Is lemon curd > freezeable?> > You have been through a lot. Glad you are feeling better. I do not know> what they'll suggest yet. I am not even sure what's wrong yet. May as well> have things cooked up for the hot months if it turns out I'm jumping to > conclusions.> > My mom has recently started this all natural cream and it's like my old mom> in a way. So much energy and she's kidn of nice ;-) (kidding). But, she> says she can feel a difference, I can see it. > > Debbie 41 cd> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2010 Report Share Posted May 16, 2010 Quiche, does that freeze well also? Yep =) Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 30 mg 1x per day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2010 Report Share Posted May 16, 2010 Debbie, I have made the quiche recipe from nomorecrohns.com and they froze fine. My husband loves to take them when we are traveling because they thaw as we travel and then we microwave them with the sausage patty recipe from that site as well. Very easy breakfast with a smoothy. Heidi, husband CD, SCD 11/08 To: BTVC-SCD From: texdebl@...Date: Sun, 16 May 2010 16:43:21 -0500Subject: Re: Re: OT--Females Only- Questions Perfect, thanks! Does anyone know if banana pancakes or the bread like pancakes on freezes well? That would be easy to thaw; make sandwich or have with eggs I think. Quiche, does that freeze well also? Debbie 41 cd On Sun, May 16, 2010 at 4:22 PM, spookyhurst <spookyhurst (AT) yahoo (DOT) com> wrote: Debbie,When I had a bowel resection last fall, I spent 3 weeks cooking like crazy! I made 2 batches of butternut squash pie filling (the recipe is the pumpkin pie filling in BTVC), 2 cheesecakes, 2 batches of frozen yogurt, 2 batches of nut butter brownies, and a batch each of cooked apples and pears, and a batch of chicken soup. All freeze wonderfully! The night before I left for the hospital, I made up some jello for when I got home.Luckily, I live with my parents, so I didn't have to worry about cooking everything (like meat). My mom is kind enough to always cook the meat in an SCD legal way.Good luck!HollyCrohn'sSCD 12/01/08 >> Thanks Kim. I guess I'll start gathering easy recipes. Is lemon curd> freezeable?> > You have been through a lot. Glad you are feeling better. I do not know> what they'll suggest yet. I am not even sure what's wrong yet. May as well> have things cooked up for the hot months if it turns out I'm jumping to> conclusions.> > My mom has recently started this all natural cream and it's like my old mom> in a way. So much energy and she's kidn of nice ;-) (kidding). But, she> says she can feel a difference, I can see it.> > Debbie 41 cd> The New Busy is not the old busy. Search, chat and e-mail from your inbox. Get started. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2010 Report Share Posted May 17, 2010 > Does anyone know if banana pancakes or the bread like pancakes on freezes well? The sandwich bread from nomorecrohns.com freezes extremely well and defrosts very quickly. Haven't tried freezing the pancakes (they never last that long). Licia colitis/SCD feb 2006 no meds since july 2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2010 Report Share Posted May 17, 2010 Sam I didn’t get any tests to measure my hormone levels after the hysterectomy and double oopherectomy (ovaries). My gynecologist had me on an estrogen patch for the first two months after the hysterectomy, as a routine thing based on his experiences with other patients. Then I was to stop using it and see if my body had adapted. It hadn’t and, so far, can’t seem to compensate for the loss, as I try once a year to stop using the estrogen patch. Because I had the double oopherectomy I just need estrogen, not progesterone. But not every woman needs estrogen after a hysterectomy and oopherectomy. The estrogen replacement helps with osteoporosis issues as well as other menopausal symptoms like hot flashes and sleep problems. And there are also risks involved with using estrogen replacement therapy (ERT). My gynecologist never mentioned tests to measure my estrogen levels. He bases his recommendation for the estrogen patch on my discussion of my symptoms. There are urine, blood or saliva tests that can measure hormone levels, including estrogen. In the past I’ve seen endocrinologists who ran some tests determining basic hormone levels (long before the hysterectomy). For now I haven’t pushed to get my estrogen levels measured, since I have such a fast and severe response to the lack when I stop using the low-dose estrogen patch. I’m using a 0.0375 mg/day estrogen patch, so it is low. If your wife is dealing with menopausal symptoms, then it might be worth getting the tests, or at least discussing her options with her gynecologist. ERT, like hormone replacement therapy, has its benefits and its risks. Kim M. SCD 6 years >>>>>>>>>>>>>>>>>>>>>>>> Hi Kim, my wife has had a hysterectomy/ovaries removed but has not been given any hormones. Did they give you any lab tests (if so, which ones) to determine if you needed any hormones like the estrogen patch? Thanks, Sam. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2010 Report Share Posted May 17, 2010 Kim,"Because I had the double oopherectomy I just need estrogen, not progesterone."The main source, if not the ONLY source of progesterone production is from the ovaries. You have had your's removed. How can your doctor tell you that you do not need progesterone? I am not advocating the services of this website, but I stumbled upon one of its pages and it is a fabulous load of interconnected information that pertains to this topic. http://www.womentowomen.com/menopause/estrogendominance.aspx#metabolicpathwayAmeliaFrom: Kim Mumbower To: BTVC-SCD Sent: Mon, May 17, 2010 1:38:36 PMSubject: Re: Re: OT--Females Only- Questions Sam I didn’t get any tests to measure my hormone levels after the hysterectomy and double oopherectomy (ovaries). My gynecologist had me on an estrogen patch for the first two months after the hysterectomy, as a routine thing based on his experiences with other patients. Then I was to stop using it and see if my body had adapted. It hadn’t and, so far, can’t seem to compensate for the loss, as I try once a year to stop using the estrogen patch. Because I had the double oopherectomy I just need estrogen, not progesterone. But not every woman needs estrogen after a hysterectomy and oopherectomy. The estrogen replacement helps with osteoporosis issues as well as other menopausal symptoms like hot flashes and sleep problems. And there are also risks involved with using estrogen replacement therapy (ERT). My gynecologist never mentioned tests to measure my estrogen levels. He bases his recommendation for the estrogen patch on my discussion of my symptoms. There are urine, blood or saliva tests that can measure hormone levels, including estrogen. In the past I’ve seen endocrinologists who ran some tests determining basic hormone levels (long before the hysterectomy) . For now I haven’t pushed to get my estrogen levels measured, since I have such a fast and severe response to the lack when I stop using the low-dose estrogen patch. I’m using a 0.0375 mg/day estrogen patch, so it is low. If your wife is dealing with menopausal symptoms, then it might be worth getting the tests, or at least discussing her options with her gynecologist. ERT, like hormone replacement therapy, has its benefits and its risks. Kim M. SCD 6 years >>>>>>>>>>>>>>>>>>>>>>>> Hi Kim, my wife has had a hysterectomy/ ovaries removed but has not been given any hormones. Did they give you any lab tests (if so, which ones) to determine if you needed any hormones like the estrogen patch? Thanks, Sam. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2010 Report Share Posted May 17, 2010 haven't been totally following but read Breakthrough by Suzanne somers - explains all hormones etc eileen > > Kim, > > " Because I had the double oopherectomy I just need estrogen, not > progesterone. " > > The main source, if not the ONLY source of progesterone production is from the ovaries. You have had your's removed. How can your doctor tell you that you do not need progesterone? > > I am not advocating the services of this website, but I stumbled upon one of its pages and it is a fabulous load of interconnected information that pertains to this topic. > > http://www.womentowomen.com/menopause/estrogendominance.aspx#metabolicpathway > > Amelia > > > > > > ________________________________ > > To: BTVC-SCD > Sent: Mon, May 17, 2010 1:38:36 PM > Subject: Re: Re: OT--Females Only- Questions > > > Sam > > I > didn’t get any tests to measure my hormone levels after the hysterectomy > and double oopherectomy (ovaries). My gynecologist had me on an estrogen > patch for the first two months after the hysterectomy, as a routine thing based > on his experiences with other patients. Then I was to stop using it and > see if my body had adapted. It hadn’t and, so far, can’t seem > to compensate for the loss, as I try once a year to stop using the estrogen > patch. Because I had the double oopherectomy I just need estrogen, not > progesterone. > > But > not every woman needs estrogen after a hysterectomy and oopherectomy. The > estrogen replacement helps with osteoporosis issues as well as other menopausal > symptoms like hot flashes and sleep problems. And there are also risks > involved with using estrogen replacement therapy (ERT). > > My > gynecologist never mentioned tests to measure my estrogen levels. He > bases his recommendation for the estrogen patch on my discussion of my > symptoms. There are urine, blood or saliva tests that can measure hormone > levels, including estrogen. In the past I’ve seen endocrinologists > who ran some tests determining basic hormone levels (long before the > hysterectomy) . For now I haven’t pushed to get my estrogen levels > measured, since I have such a fast and severe response to the lack when I stop > using the low-dose estrogen patch. I’m using a 0.0375 mg/day > estrogen patch, so it is low. > > If > your wife is dealing with menopausal symptoms, then it might be worth getting > the tests, or at least discussing her options with her gynecologist. ERT, > like hormone replacement therapy, has its benefits and its risks. > > Kim M. > SCD 6 years > > > >>>>>>>>>>>>>>>>>>>>>>>> > Hi > Kim, my wife has had a hysterectomy/ ovaries removed but has not been > given any hormones. Did they give you any lab tests (if so, which ones) to > determine if you needed any hormones like the estrogen patch? Thanks, Sam. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2010 Report Share Posted May 17, 2010 Amelia I will bring up the issue again with my gynecologist when I see him in July. He felt that since I would be menopausal, and lacking a uterus, I wouldn't need progesterone so wouldn't need HRT (hormone replacement therapy) just ERT (estrogen replacement therapy). Indeed, the research I did at the time (over six years ago) indicated that women who have a hysterectomy plus double oopherectomy needed ERT not HRT; perhaps that thinking has changed among medical professionals. I'll also do more research, and look into the problems of estrogen dominance. I have dealt with a faulty endocrine system all my life (polycystic ovarian syndrome -- issues with pituitary and adrenal glands and probable hypothyroid among other things) so I know my levels are undoubtedly off. I'll continue to visit endocrinologists trying to find one who will give me a good workup. It is always a puzzle, and frustrating at times [grin]. Kim M. SCD 6 years > > Kim, > > " Because I had the double oopherectomy I just need estrogen, not > progesterone. " > > The main source, if not the ONLY source of progesterone production is from the ovaries. You have had your's removed. How can your doctor tell you that you do not need progesterone? > > I am not advocating the services of this website, but I stumbled upon one of its pages and it is a fabulous load of interconnected information that pertains to this topic. > > http://www.womentowomen.com/menopause/estrogendominance.aspx#metabolicpathway > > Amelia > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2010 Report Share Posted May 18, 2010 Kim,If your doctor tells you again that you don't need the progesterone, ask him that since the hormones needed to be balanced when you had your uterus and ovaries, why would that change once they were removed? No uterus, no estrogen, no ovaries, no progesterone -- should be balanced right? Another thing to keep in mind is that the body stores estrogen in the fat (that's why we carry it around our hips) to make sure we stay fertile in the lean times -- and this doesn't account for phytoestrogens and xenoestrogens that we get from food and our personal care products. According to Dr. Lee, even after menopause, a woman will still have estrogen levels of 40-60 % of her childbearing years, yet she will have very little or no progesterone to balance it because menopause means that the ovaries have stopped producing eggs -- no eggs, no maturing and no erupting, and therefore no progesterone production.Hope you get get the help you need to figure out the puzzle (and none of the frustration!) ; )AmeliaTo: BTVC-SCD Sent: Mon, May 17, 2010 8:33:36 PMSubject: Re: OT--Females Only- Questions Amelia I will bring up the issue again with my gynecologist when I see him in July. He felt that since I would be menopausal, and lacking a uterus, I wouldn't need progesterone so wouldn't need HRT (hormone replacement therapy) just ERT (estrogen replacement therapy). Indeed, the research I did at the time (over six years ago) indicated that women who have a hysterectomy plus double oopherectomy needed ERT not HRT; perhaps that thinking has changed among medical professionals. I'll also do more research, and look into the problems of estrogen dominance. I have dealt with a faulty endocrine system all my life (polycystic ovarian syndrome -- issues with pituitary and adrenal glands and probable hypothyroid among other things) so I know my levels are undoubtedly off. I'll continue to visit endocrinologists trying to find one who will give me a good workup. It is always a puzzle, and frustrating at times [grin]. Kim M. SCD 6 years > > Kim, > > "Because I had the double oopherectomy I just need estrogen, not > progesterone." > > The main source, if not the ONLY source of progesterone production is from the ovaries. You have had your's removed. How can your doctor tell you that you do not need progesterone? > > I am not advocating the services of this website, but I stumbled upon one of its pages and it is a fabulous load of interconnected information that pertains to this topic. > > http://www.womentowomen.com/menopause/estrogendominance.aspx#metabolicpathway > > Amelia > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 The doctor said everything was normal, did not do any further testing and put me back on premarin to stop the bleeding. I'm still bleeding and last night had the worst intense pain. She did say I had fibroids (I knew that). She didn't do bloodwork though. I did eat illegal r-c- last night. Not sure why that would have anything to do with it, the pressure/pain did let up if I could relieve the pressure by sitting a certain way (TMI, sorry). But still extremely painful today...all day. Any ideas? Was reading the coconut oil.manuka honey thread and wondering if any thoughts on that maybe working? I'm up for review in a few days and seem to be getting nowhere with this doctor--as a matter of fact, I don't think she believes a word I say ;-). Thanks, Debbie 41 cd One thing mentioned--after years of letters home saying to have my GB checked due to stones, calcification and thickened walls, etc. from the very first ER visit--completely normal. Sooo, either SCD is that good/eating out is that bad or well, I guess that's what I'm saying because that many people can't be wrong. I didn't know you could lose gallstones! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Debbie, Have you maybe tried an integrative gyn doc? I just recently switched and it's really helped my cystic ovary situation as well as learning of some other issues I have. Since this is an SCD list I cannot comment too much on the rice- it's hard to sometimes imagine what the illegals can do especially if we still have symptoms. Have you had all of your hormones and thyroid panel as well as adrenals looked at? I am so sorry you continue to have such a hard time. I think for some of us that have suffered for so long- especially if we have been on really strong meds for a long time it can really be a challenge regaining health. Have they spoke to you about cleaning your uterus out at all? Jodi > > The doctor said everything was normal, did not do any further testing and > put me back on premarin to stop the bleeding. I'm still bleeding and last > night had the worst intense pain. She did say I had fibroids (I knew > that). She didn't do bloodwork though. I did eat illegal r-c- last night. > Not sure why that would have anything to do with it, the pressure/pain did > let up if I could relieve the pressure by sitting a certain way (TMI, > sorry). But still extremely painful today...all day. > > Any ideas? Was reading the coconut oil.manuka honey thread and wondering if > any thoughts on that maybe working? I'm up for review in a few days and > seem to be getting nowhere with this doctor--as a matter of fact, I don't > think she believes a word I say ;-). > > Thanks, > Debbie 41 cd > > One thing mentioned--after years of letters home saying to have my GB > checked due to stones, calcification and thickened walls, etc. from the very > first ER visit--completely normal. Sooo, either SCD is that good/eating out > is that bad or well, I guess that's what I'm saying because that many people > can't be wrong. I didn't know you could lose gallstones! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 No to all of your suggestions. Have you had all of your hormones and thyroid panel as well as adrenals looked at?I think for some of us that have suffered for so long- especially if we have been on really strong meds for a long time it can really be a challenge regaining health. What strong meds--I have had to take the Pentasa lately but I'm trying to not have to. I take anti-anxiety and LDN. Have they spoke to you about cleaning your uterus out at all? No. My mom suggested that also but just the Premarin. So I may try the honey/coconut oil.maybe even aloe to see if it helps at all. She did also give me a 30 day supply of Diflucin. Debbie 41 cd Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Hey Debbie, It may help you to get those tests to understand what's going on. What I was trying to say and forgive me if I wasn't clear enough is that I was sick for a long time and have been exposed to many harsh meds (in my history- not now) I suspect causes secondary issues that can be challenging to overcome. I feel for me, that the SCD along with Mind/Body work (learning how to process emotions like anger, stress and grief) in a more healthful way has been a major key for me getting better. With that said I feel I deal with a lot of long term issues due to some of the meds I was on. Just my opinion though. Jodi > > No to all of your suggestions. Have you had all of your hormones and > thyroid panel as well as adrenals looked at? > > I think for some of us that have suffered for so long- especially if we have > been on really strong meds for a long time it can really be a challenge > regaining health. > What strong meds--I have had to take the Pentasa lately but I'm trying to > not have to. I take anti-anxiety and LDN. > > Have they spoke to you about cleaning your uterus out at all? > No. My mom suggested that also but just the Premarin. > > So I may try the honey/coconut oil.maybe even aloe to see if it helps at > all. > > She did also give me a 30 day supply of Diflucin. > > Debbie 41 cd > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 At 03:30 PM 5/24/2010, you wrote: I did eat illegal r-c- last night. Well, if you created inflammation in your gut -- likely, with the illegals, even if you aren't aware of it -- that's going to create a feedback loop with the inflammation in your uterus. I often think that feedback from my painful hips (due to my untreated at that time sleep apnea) may have been a factor in my developing the uterine cancer. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 I never looked at it that way. For some reasons, I only factored in celiac with that problem. What role do you think stress plays--after Katrina, Rita and other life stressors going on past/present--do you think it may have created an environment for the cancer? You seem to be plenty legal and have been for years. You recovered quickly from the surgery, etc. I'm going to take that advice to heart. Don't blame yourself; we all do way too much of that. Glad you are still here btw, another birthday ;-). debbie 41 cd On Mon, May 24, 2010 at 7:55 PM, Wizop Marilyn L. Alm wrote: At 03:30 PM 5/24/2010, you wrote: I did eat illegal r-c- last night.Well, if you created inflammation in your gut -- likely, with the illegals, even if you aren't aware of it -- that's going to create a feedback loop with the inflammation in your uterus. I often think that feedback from my painful hips (due to my untreated at that time sleep apnea) may have been a factor in my developing the uterine cancer. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 At 10:20 PM 5/24/2010, you wrote: I never looked at it that way. For some reasons, I only factored in celiac with that problem. What role do you think stress plays--after Katrina, Rita and other life stressors going on past/present--do you think it may have created an environment for the cancer? You seem to be plenty legal and have been for years. You recovered quickly from the surgery, etc. Well, given that life stress can modify our immune systems -- how many times have you had a stressful situation and then promptly caught a cold or flu or something? -- it seems reasonable to me that stress could create an environment for our immune systems to not catch those mutating little cells which turn into the Big C. Mind you, I'm not a doctor, so I can't speak for much of anything on this -- this is pure speculation on my part. But Hurricanes Katrina and Rita, living in a destroyed city (losing thousands of dollars worth of my home-prepared food hurt like h-ll -- Harry had to throw it out because I was crying too hard), my Mom having a heart attack or three, then the best manager I'd ever worked under being removed by the higher-ups and a d@mn-fool idiot put in his place.... I don't think it was an accident. I'm going to take that advice to heart. Don't blame yourself; we all do way too much of that. Glad you are still here btw, another birthday ;-). Well, I don't suppose I'd worry about it if I weren't here. <g> But I'm glad I am, too. And yes -- mistakes happen. Sheesh. I made so many of them my first couple years on SCD that it's a wonder I got anywhere. But I did... and it's made all the difference in the world in my health. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2010 Report Share Posted May 25, 2010 The doctor doesn't seem interested in doing a lot of tests like the ones you mentioned. As I said, she likes the Premarin right now. I've been doing that and Progest with a couple of others in between since maybe last November (not sure--daytimer isn't near me) and it hasn't solved the problem. But, I'm doing only premarin atm so maybe that will work and if it does, from there I will work on getting iron up and following Marilyn's advice on totally avoiding anything that may cause inflammation to trigger the other problems. Can only try at this point. As far as meds, I was on pred and Pentasa constantly then added on Imuran. Nothing seemed to work and things were chronically worse. Before I got ill, I was on Celexa. Recently I tried Buspar and at first it was great. I upped the doseage and started having problems. For some reason, these work great for me but my system doesn't like even small amounts. Maybe compounding is something to check into there, I don't know. I'm not as into the mind/body work you are <g>. I wish I were. Maybe once I get this problem taken care of, I can get more into it. I do like to meditate. I usually just pretty much fall asleep now. I suspect the medicine/anemia has everything to do with it. So I'll catch up to you--I'd love to try some ostrich (and believe me, I can't believe I'd ever say that!) but there is a great sounding recipe for soup that includes spinach, meatballs, veal shanks, 4 eggs--I call it 'iron soup'. That will help even if I mostly drink the broth. Thanks Jodi! Debbie 41 cd What I was trying to say and forgive me if I wasn't clear enough is that I was sick for a long time and have been exposed to many harsh meds (in my history- not now) I suspect causes secondary issues that can be challenging to overcome. I feel for me, that the SCD along with Mind/Body work (learning how to process emotions like anger, stress and grief) in a more healthful way has been a major key for me getting better. With that said I feel I deal with a lot of long term issues due to some of the meds I was on. Just my opinion though. Jodi> > No to all of your suggestions. Have you had all of your hormones and> thyroid panel as well as adrenals looked at?> > I think for some of us that have suffered for so long- especially if we have > been on really strong meds for a long time it can really be a challenge> regaining health.> What strong meds--I have had to take the Pentasa lately but I'm trying to> not have to. I take anti-anxiety and LDN. > > Have they spoke to you about cleaning your uterus out at all?> No. My mom suggested that also but just the Premarin.> > So I may try the honey/coconut oil.maybe even aloe to see if it helps at > all.> > She did also give me a 30 day supply of Diflucin.> > Debbie 41 cd> Quote Link to comment Share on other sites More sharing options...
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