Re: Re: Hello, My Name is Donna

[Guest guest]

welcome donna

sorry your here

but glad you found us

yes it is very scary in the beginning -- as Peggy says "there is no expiration date stamped on your behind"

1966 - 1967 i lived in Des Moines Iowa

if you do have pulmonary fibrosis -- find a teaching hospital that has a department specializing in interstitial lung diseases

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Hello, My Name is DonnaTo: Breathe-Support Date: Sunday, October 4, 2009, 10:20 PM

Welcome Donna...boy you are in that tough zone right now. Lots of medical jargon being thrown at you. New diagnosis to add to the old..fear of what's ahead. Everyone on this List knows what it's like to be in that early Diagnosis State.

Hang on girl..you've reached a Forum where there are lots of experienced people who've lived with PF for quite a while. There are some with the complication of mixed PF + COPD.

Fear strikes at the darndest moments..usually when a girl is trying to get a good night's SLEEP....hop on the Forum when things get scary...talk to us..there's usually somebody awake.....I' m in Australia so I can be on the Board when lots of you lot should be tucked up in your beds. Geeta in Indai is in a different time zone & then there are the UK mob....somebody will be around!

Hugs,

in Oz

>> I just thought I would take the time to introduce myself. This is my first post to the group. I am 48 female,living in Iowa for almost 5 years now. I am originally from Mo. but have traveled most of my life!> > I have been diagnosed with COPD for several years now. I had my first bout of pneumonia about 6 years ago and have had it several times since then. Recently I was in the hospital with a stay of 6 days this was week before last I think. My oxygen kept staying in the lower 80s when they took the oxygen off. So I am now at home on oxygen 24/7. Its been brought up that I have emphysema but not until an ER visit last night did a Dr answer yes that I have what she believes emphysema and pretty bad pulmonary fibrosis. The scarring I am aware started with my first bout of pneumonia. (that is at least when the Dr

told me he saw scarring.> > It has been mentioned I have Mild CHF (Congestive Heart Failure). But that diagnosis has not been real clear just brought up several times. If I remember correctly I've had (2) echo cardiograms the first was said to look good but the second one only a month later was said to see some mild CHF. > > This last 6 day hospital stay was very hard on me (the worse so far)!> I've been very scared! This is my first time home on oxygen. I am scheduled to see a Pulmonary Specialist in Nov. There is many questions I have because it seems no one is being totally clear. > > My Mother died of emphysema at 59. With me being 48 I am pretty scared. I use to smoke for close to 22 years and stopped after mom died which has been close to 13 years.> > Thank you for being here and I look forward to participating in the group and knowing you all. Wishing all well...> >

mischievouskitten (aka: Donna) Iowa>

[Guest guest]

Its very nice to meet you Dyane!! Thank you for the warm welcome and everyone for that fact! (smiles) Wishing all a good day!Hugss Donna (Iowa)To: Breathe-Support Sent: Tuesday, October 6, 2009 1:31:31 PMSubject: Re: Hello, My

Name is Donna

Hello Donna,Welcome to this wonderful group. I was a newbie just months ago even though I've been dx since 2002. So much information and wonderful love on this board. They are the one's who "get it" when you want to scream or something else pops up. I am from Wisconsin originally, my mom was from Storm Lake and Alta Iowa and I made many a drive across Iowa on Hwy 80, many a looooonnngggg drive. LOL. You are in the right place! I'm goin' on 8 years in Jan, on o2 24/7 5lpm at work and driving, 8lpm at home where I am more active. And I still work 40 hours a week as an Accountant. Good old German Stock ha ha.Dyane Phoenix Diabetes 96, IPF 02, Breast Cancer 02, Severe Sleep Apnea, Fibromyalgia, Lipodermaterscleosi s, ad nauseum lol>> I just

thought I would take the time to introduce myself. This is my first post to the group. I am 48 female,living in Iowa for almost 5 years now. I am originally from Mo. but have traveled most of my life!> > I have been diagnosed with COPD for several years now. I had my first bout of pneumonia about 6 years ago and have had it several times since then. Recently I was in the hospital with a stay of 6 days this was week before last I think. My oxygen kept staying in the lower 80s when they took the oxygen off. So I am now at home on oxygen 24/7. Its been brought up that I have emphysema but not until an ER visit last night did a Dr answer yes that I have what she believes emphysema and pretty bad pulmonary fibrosis. The scarring I am aware started with my first bout of pneumonia. (that is at least when the Dr told me he saw scarring.> > It has been mentioned I have Mild CHF (Congestive Heart Failure). But that diagnosis has not

been real clear just brought up several times. If I remember correctly I've had (2) echo cardiograms the first was said to look good but the second one only a month later was said to see some mild CHF. > > This last 6 day hospital stay was very hard on me (the worse so far)!> I've been very scared! This is my first time home on oxygen. I am scheduled to see a Pulmonary Specialist in Nov. There is many questions I have because it seems no one is being totally clear. > > My Mother died of emphysema at 59. With me being 48 I am pretty scared. I use to smoke for close to 22 years and stopped after mom died which has been close to 13 years.> > Thank you for being here and I look forward to participating in the group and knowing you all. Wishing all well...> > mischievouskitten (aka: Donna) Iowa>