Guest guest Posted April 12, 2010 Report Share Posted April 12, 2010 At 03:30 PM 4/12/2010, you wrote: I don't think it would be possible to replace patented enteral nutrition with home made drinks. Especially that we don't know why it works on Crohn patients. It is not SCD compatible but it does work for the majority of people (60%-80%). Just curious.... Have you ever made soup from powdered mix? That's a patented " nutritional mix. " The soup I make at home has better nutrition in it. In fact, my oncologist said, when I told her what I planned to eat that it was excellent. And here's one for you: she suggested, to cut down on the stress, that I talk to the hospital nutritionist about providing my food while I was in the hospital. I did. I was told that the HOSPITAL could not provide food which was safe for me to eat, or which would have the nutritional values of my homemade foods. The reason? Service contracts. So my oncologist wrote into my orders that my husband would be bringing my food from home. And, funny thing: I was told to expect infection, wound separation, and all sorts of things. Didn't happen. Because of the superior nutrition in my SCD foods. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2010 Report Share Posted April 12, 2010 Ok, well obviously it did not induce remission for me. I ended up going SCD since 12/05 even though I'm not and during certain times have not been strict. Had things been different, I would have stayed strict. I was just saying it was a good supplement while starting SCD because it at least has lots of vitamins and iron. It also is easy on the stomach--or was mine. You have to drink at the very least four cans per day of it. It's not enough and it's $$$ to do full-time. It did not stop d or b but I'm probably in the minority. Actually one doctor told me to do the carnation instant breakfast (two at a time instead of one) to be more cost effective. Just couldn't drink that stuff. Debbie 40 cd The mechanism by which enteral nutrition induces clinical remission in Crohn's disease remains unclear: http://www.medscape.com/viewarticle/407945_4 I don't think it would be possible to replace patented enteral nutrition with home made drinks. Especially that we don't know why it works on Crohn patients. It is not SCD compatible but it does work for the majority of people (60%-80%). > My suspicion is that the reason it may be effective for some people is> because it completely eliminates the polysaccharides, which significantly> reduces the bacteria food. So many people, pre-SCD, are starch-o-holics. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2010 Report Share Posted April 12, 2010 I don't think it would be possible to replace patented enteral nutrition with home made drinks. I don't see how it would be possible to replace good quality SCD home-made drinks with something like Ensure! From looking at the ingredients, the only things it could possibly have going for it are calories and vitamins, both of which you could get plenty of with REAL foods. I mean, it's basically all sugar, milk protein concentrate, and canola oil for goodness sakes! I can't see how it could even be easier to digest than something like a pureed soup. And there's no way something with ingredients that are so far from their natural state could be better for the body than whole foods. If it's the perfect ratio of vitamins and minerals that you're concerned about, I'm sure there are liquid vitamins you could order that would be easy to absorb and not filled with sugar and other junk. Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 50 mg 1x per dayPrednisone 35 mg 1x per day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2010 Report Share Posted April 12, 2010 Well, back in olden times before I knew about SCD or could find decent puree recipes, my grandmother practically lived on that and the juice from cobblers. It was *really* expensive then. It was a written prescription for me for at least two years due to not maintaining food and being anemic--pre SCD, etc. (and about 20 years later from mama). So don't knock it too hard. There's a lot more options now they didn't have then. Debbie 40 cd Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2010 Report Share Posted April 12, 2010 At 04:23 PM 4/12/2010, you wrote: So don't knock it too hard. There's a lot more options now they didn't have then. Agreed that there are more options now. <grin> I just disagree with the notion that anything store bought is better than homemade. My mom, in the last months of her life, didn't like Ensure. But she did like savory smoothies. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle Quote Link to comment Share on other sites More sharing options...
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