Re: 3 months and still flaring. also butter pecan satin recipe.

[Guest guest]

Stress, yes,

I've had tons of it the past few weeks and got really C with bloating...I stayed

legal , but eating on the run can do it. I also ate out more than usual, and I

think we are sensitive to any change.

So yes, it does get the best of us. Good thing I put up a big pot of chicken

soup last night...

I do think some of the advanced foods can bother you if you are not ready for

them, even if they are not legal. Your gut is still sore. Maybe you can come up

with some different recipes with foods you do enjoy- nut butter brownies, SCD

ice cream, or any variety you can think of with foods you do tolerate. I'm a

believer in soups.

This has to start working for you!

PJ

>

>

> After 3 months of eating intro/stage 1 foods i'm still flaring for some

reason. I'm wondering if stress can effect this condition (UC) more than the

foods i'm eating? I was thinking of just eating whatever legal SCD foods I want,

just to enjoy it for a bit and see what happens, but would that be just as bad

as eating illegals? I don't want to go backwards even though i'm not doing too

great overall. I've been on SCD for about a year, and I know it doesn't work for

everyone but i'm still trying!

>

> Any suggestions?

>

> Also, does anyone have the recipe for butter pecan satin? I can't find it.

>

>

> -

> UC - 1+ years

> SCD - 8 months 100% strict and 4 months restricted diet.

> Asacol - 12 pills a day

> Prednisone 40mg

> entocort With vit E mixed in

> Back to intro/stage 1 for now.

>

>

>

>

>

> _________________________________________________________________

> The New Busy is not the too busy. Combine all your e-mail accounts with

Hotmail.

>

http://www.windowslive.com/campaign/thenewbusy?tile=multiaccount & ocid=PID28326::\

T:WLMTAGL:ON:WL:en-US:WM_HMP:042010_4

>

[Guest guest]

It's the antibiotics that did it, and there's definitely a link between UC and antibiotics. Nearly everyone i've talked to had their first onset of syptoms after using them for one type of infection or another. I guess this time they just effected me more than when I took them last time and got UC in the first place. I'll heal eventually LDN is in my near future once I can get off some of these steroids. That, or Imuran depending on how bad i'm doing once I drop down to a lower dose of prednisone. Either way, i'll get better.I've been craving fast food lately, and I was at a pastry shop in philadelphia yesterday... they offered me a free sample of cheesecake. When I refused it saying I can't have it I got a weird look from the lady offering it to me lol. will power!I wasn't shopping for myself obviously but maybe someday.-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD From: smdsmom2008@...Date: Sun, 2 May 2010 16:19:27 +0000Subject: Re: 3 months and still flaring. also butter pecan satin recipe.

Stress, yes,

I've had tons of it the past few weeks and got really C with bloating...I stayed legal , but eating on the run can do it. I also ate out more than usual, and I think we are sensitive to any change.

So yes, it does get the best of us. Good thing I put up a big pot of chicken soup last night...

I do think some of the advanced foods can bother you if you are not ready for them, even if they are not legal. Your gut is still sore. Maybe you can come up with some different recipes with foods you do enjoy- nut butter brownies, SCD ice cream, or any variety you can think of with foods you do tolerate. I'm a believer in soups.

This has to start working for you!

PJ

>

>

> After 3 months of eating intro/stage 1 foods i'm still flaring for some reason. I'm wondering if stress can effect this condition (UC) more than the foods i'm eating? I was thinking of just eating whatever legal SCD foods I want, just to enjoy it for a bit and see what happens, but would that be just as bad as eating illegals? I don't want to go backwards even though i'm not doing too great overall. I've been on SCD for about a year, and I know it doesn't work for everyone but i'm still trying!

>

> Any suggestions?

>

> Also, does anyone have the recipe for butter pecan satin? I can't find it.

>

>

> -

> UC - 1+ years

> SCD - 8 months 100% strict and 4 months restricted diet.

> Asacol - 12 pills a day

> Prednisone 40mg

> entocort With vit E mixed in

> Back to intro/stage 1 for now.

>

>

>

>

>

> __________________________________________________________

> The New Busy is not the too busy. Combine all your e-mail accounts with Hotmail.

> http://www.windowslive.com/campaign/thenewbusy?tile=multiaccount & ocid=PID28326::T:WLMTAGL:ON:WL:en-US:WM_HMP:042010_4

>

The New Busy is not the too busy. Combine all your e-mail accounts with Hotmail. Get busy.

[Guest guest]

Stress obviously plays a part. But go for the colonoscopy just to rule otherthings out. Also, you might need to find a doc who will write you a script toGenova Diagnostics, so you can take a stool sample and find outwhat the heck you are fighting, so you can design a more fine tunedprogram to fight it. MaraAfter 3 months of eating intro/stage 1 foods i'm still flaring for some reason. I'm wondering if stress can effect this condition (UC) more than the foods i'm eating? I was thinking of just eating whatever legal SCD foods I want, just to enjoy it for a bit and see what happens, but would that be just as bad as eating illegals? I don't want to go backwards even though i'm not doing too great overall. I've been on SCD for about a year, and I know it doesn't work for everyone but i'm still trying!Any suggestions?Also, does anyone have the recipe for butter pecan satin? I can't find it.-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.The New Busy is not the too busy. Combine all your e-mail accounts with Hotmail. Get busy.

[Guest guest]

Hey ,

I totally agree with Mara. Get some extensive stool testing (lay off on the

probiotics during and before testing a couple of days) and also see if you can

get a urine dysbiosis test. You may have a critter or stubborn yeast at play.

Jodi

>

> >

> >

> > After 3 months of eating intro/stage 1 foods i'm still flaring for some

reason. I'm wondering if stress can effect this condition (UC) more than the

foods i'm eating? I was thinking of just eating whatever legal SCD foods I want,

just to enjoy it for a bit and see what happens, but would that be just as bad

as eating illegals? I don't want to go backwards even though i'm not doing too

great overall. I've been on SCD for about a year, and I know it doesn't work for

everyone but i'm still trying!

> >

> > Any suggestions?

> >

> > Also, does anyone have the recipe for butter pecan satin? I can't find it.

> >

> >

> > -

> > UC - 1+ years

> > SCD - 8 months 100% strict and 4 months restricted diet.

> > Asacol - 12 pills a day

> > Prednisone 40mg

> > entocort With vit E mixed in

> > Back to intro/stage 1 for now.

> >

> >

> >

> >

> >

> > The New Busy is not the too busy. Combine all your e-mail accounts with

Hotmail. Get busy.

> >

> >

>

[Guest guest]

would I just ask for all the test listed under IBD on that site?-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD From: jodah235@...Date: Sun, 2 May 2010 17:23:13 +0000Subject: Re: 3 months and still flaring. also butter pecan satin recipe.

Hey ,

I totally agree with Mara. Get some extensive stool testing (lay off on the probiotics during and before testing a couple of days) and also see if you can get a urine dysbiosis test. You may have a critter or stubborn yeast at play.

Jodi

>

> >

> >

> > After 3 months of eating intro/stage 1 foods i'm still flaring for some reason. I'm wondering if stress can effect this condition (UC) more than the foods i'm eating? I was thinking of just eating whatever legal SCD foods I want, just to enjoy it for a bit and see what happens, but would that be just as bad as eating illegals? I don't want to go backwards even though i'm not doing too great overall. I've been on SCD for about a year, and I know it doesn't work for everyone but i'm still trying!

> >

> > Any suggestions?

> >

> > Also, does anyone have the recipe for butter pecan satin? I can't find it.

> >

> >

> > -

> > UC - 1+ years

> > SCD - 8 months 100% strict and 4 months restricted diet.

> > Asacol - 12 pills a day

> > Prednisone 40mg

> > entocort With vit E mixed in

> > Back to intro/stage 1 for now.

> >

> >

> >

> >

> >

> > The New Busy is not the too busy. Combine all your e-mail accounts with Hotmail. Get busy.

> >

> >

>

The New Busy think 9 to 5 is a cute idea. Combine multiple calendars with Hotmail. Get busy.

[Guest guest]

You have already gotten some  other good suggestions about

getting stool testing to find out what you are dealing with.  It sounds like

you are really having a hard time finding foods that agree with you, in spite

of being on quite a lot of medicines, too.

I’ll just throw out a couple of other suggestions to you,

for what it’s worth. 

I have been following SCD for more than a year, and doing okay

on it.  I definitely have not had the spectacular results others have posted

about, but I felt good about making slow, steady progress on reducing my meds. 

Then I had a flare starting in mid-February.  No amount of chicken

broth/chicken soup helped, things only got worse, so I went to my GI and ended

up on more meds than I was on initially.  Needless to say, this was very

discouraging.

Just in the last 2 -3 weeks I’ve found two things that

seem to help me, so I’ll throw them out there in case you may want to

consider them.

First is I started taking Candex for yeast.  After about a week,

I noticed some improvement in symptoms.  If you decide to go this route, don’t

get Candex.  It contains maltodextrin, so it is illegal.  I imagine I had such

bad brain fog when I bought the bottle that I overlooked that.  Still, I am

feeling better using the Candex so I will finish up this bottle, then replace

it with Candidase, which I believe is SCD legal.

The second thing I found that has helped me is to eat a lot of

bacon.  I know it is considered an advanced food, and only to be eaten once a

week, but I noticed for two weeks in a row that after eating bacon I would have

less symptoms for the next day and a half.  So I have started eating a little

bacon every day and noticing my symptoms are reduced.  I think it is because

bacon is a high fat food, and it really fills me up.  I chew it really well, so

it takes me a long time to eat 2 or 3 slices.  Then I am full, so I eat less of

other foods, which leads to less BMs, which leads to less bleeding. 

I know that is kind of weird suggestion, but just thought I’d

throw it in the mix.

Hope you find something to help you feel better soon.

From:

BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of

T

Sent: Sunday, May 02, 2010 12:10 PM

To: btvc-scd

Subject: 3 months and still flaring. also butter pecan satin

recipe.

After 3 months of eating intro/stage 1 foods

i'm still flaring for some reason. I'm wondering if stress can effect this

condition (UC) more than the foods i'm eating? I was thinking of just eating

whatever legal SCD foods I want, just to enjoy it for a bit and see what

happens, but would that be just as bad as eating illegals? I don't want to go

backwards even though i'm not doing too great overall. I've been on SCD for

about a year, and I know it doesn't work for everyone but i'm still trying!

Any suggestions?

Also, does anyone have the recipe for butter pecan satin? I can't find it.

-

UC - 1+ years

SCD - 8 months 100% strict and 4 months restricted diet.

Asacol - 12 pills a day

Prednisone 40mg

entocort With vit E mixed in

Back to intro/stage 1 for now.

The New Busy is not the too busy. Combine all your e-mail

accounts with Hotmail. Get busy.

[Guest guest]

anything that you can suggest that works for you is valuable information for me. Thanks for the info! I just started taking s.boullardi so i'll see if that makes any difference. Although I think with UC there is less of a chance of it doing anything as opposed to Crohns.-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD From: tprescott@...Date: Sun, 2 May 2010 20:15:38 -0400Subject: RE: 3 months and still flaring. also butter pecan satin recipe.

You have already gotten some other good suggestions about

getting stool testing to find out what you are dealing with. It sounds like

you are really having a hard time finding foods that agree with you, in spite

of being on quite a lot of medicines, too.

I’ll just throw out a couple of other suggestions to you,

for what it’s worth.

I have been following SCD for more than a year, and doing okay

on it. I definitely have not had the spectacular results others have posted

about, but I felt good about making slow, steady progress on reducing my meds.

Then I had a flare starting in mid-February. No amount of chicken

broth/chicken soup helped, things only got worse, so I went to my GI and ended

up on more meds than I was on initially. Needless to say, this was very

discouraging.

Just in the last 2 -3 weeks I’ve found two things that

seem to help me, so I’ll throw them out there in case you may want to

consider them.

First is I started taking Candex for yeast. After about a week,

I noticed some improvement in symptoms. If you decide to go this route, don’t

get Candex. It contains maltodextrin, so it is illegal. I imagine I had such

bad brain fog when I bought the bottle that I overlooked that. Still, I am

feeling better using the Candex so I will finish up this bottle, then replace

it with Candidase, which I believe is SCD legal.

The second thing I found that has helped me is to eat a lot of

bacon. I know it is considered an advanced food, and only to be eaten once a

week, but I noticed for two weeks in a row that after eating bacon I would have

less symptoms for the next day and a half. So I have started eating a little

bacon every day and noticing my symptoms are reduced. I think it is because

bacon is a high fat food, and it really fills me up. I chew it really well, so

it takes me a long time to eat 2 or 3 slices. Then I am full, so I eat less of

other foods, which leads to less BMs, which leads to less bleeding.

I know that is kind of weird suggestion, but just thought I’d

throw it in the mix.

Hope you find something to help you feel better soon.

From:

BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of

T

Sent: Sunday, May 02, 2010 12:10 PM

To: btvc-scd

Subject: 3 months and still flaring. also butter pecan satin

recipe.

After 3 months of eating intro/stage 1 foods

i'm still flaring for some reason. I'm wondering if stress can effect this

condition (UC) more than the foods i'm eating? I was thinking of just eating

whatever legal SCD foods I want, just to enjoy it for a bit and see what

happens, but would that be just as bad as eating illegals? I don't want to go

backwards even though i'm not doing too great overall. I've been on SCD for

about a year, and I know it doesn't work for everyone but i'm still trying!

Any suggestions?

Also, does anyone have the recipe for butter pecan satin? I can't find it.

-

UC - 1+ years

SCD - 8 months 100% strict and 4 months restricted diet.

Asacol - 12 pills a day

Prednisone 40mg

entocort With vit E mixed in

Back to intro/stage 1 for now.

The New Busy is not the too busy. Combine all your e-mail

accounts with Hotmail. Get busy.

Hotmail is redefining busy with tools for the New Busy. Get more from your inbox. See how.

[Guest guest]

,

Do you mean on the Genova paperwork?

Jodi

>

> >

>

> > >

>

> > >

>

> > > After 3 months of eating intro/stage 1 foods i'm still flaring for some

reason. I'm wondering if stress can effect this condition (UC) more than the

foods i'm eating? I was thinking of just eating whatever legal SCD foods I want,

just to enjoy it for a bit and see what happens, but would that be just as bad

as eating illegals? I don't want to go backwards even though i'm not doing too

great overall. I've been on SCD for about a year, and I know it doesn't work for

everyone but i'm still trying!

>

> > >

>

> > > Any suggestions?

>

> > >

>

> > > Also, does anyone have the recipe for butter pecan satin? I can't find it.

>

> > >

>

> > >

>

> > > -

>

> > > UC - 1+ years

>

> > > SCD - 8 months 100% strict and 4 months restricted diet.

>

> > > Asacol - 12 pills a day

>

> > > Prednisone 40mg

>

> > > entocort With vit E mixed in

>

> > > Back to intro/stage 1 for now.

>

> > >

>

> > >

>

> > >

>

> > >

>

> > >

>

> > > The New Busy is not the too busy. Combine all your e-mail accounts with

Hotmail. Get busy.

>

> > >

>

> > >

>

> >

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> _________________________________________________________________

> The New Busy think 9 to 5 is a cute idea. Combine multiple calendars with

Hotmail.

>

http://www.windowslive.com/campaign/thenewbusy?tile=multicalendar & ocid=PID28326:\

:T:WLMTAGL:ON:WL:en-US:WM_HMP:042010_5

>

[Guest guest]

Heya ,

Send me a link and I will look at it for you- it's been a while since I have

used them. Did quite a bit back in the day and early SCD days.

My integrative doc uses Quest today (I know shocking) and rectal swab at my

other docs office.

Jodi

>

> >

>

> > >

>

> >

>

> > > >

>

> >

>

> > > >

>

> >

>

> > > > After 3 months of eating intro/stage 1 foods i'm still flaring for some

reason. I'm wondering if stress can effect this condition (UC) more than the

foods i'm eating? I was thinking of just eating whatever legal SCD foods I want,

just to enjoy it for a bit and see what happens, but would that be just as bad

as eating illegals? I don't want to go backwards even though i'm not doing too

great overall. I've been on SCD for about a year, and I know it doesn't work for

everyone but i'm still trying!

>

> >

>

> > > >

>

> >

>

> > > > Any suggestions?

>

> >

>

> > > >

>

> >

>

> > > > Also, does anyone have the recipe for butter pecan satin? I can't find

it.

>

> >

>

> > > >

>

> >

>

> > > >

>

> >

>

> > > > -

>

> >

>

> > > > UC - 1+ years

>

> >

>

> > > > SCD - 8 months 100% strict and 4 months restricted diet.

>

> >

>

> > > > Asacol - 12 pills a day

>

> >

>

> > > > Prednisone 40mg

>

> >

>

> > > > entocort With vit E mixed in

>

> >

>

> > > > Back to intro/stage 1 for now.

>

> >

>

> > > >

>

> >

>

> > > >

>

> >

>

> > > >

>

> >

>

> > > >

>

> >

>

> > > >

>

> >

>

> > > > The New Busy is not the too busy. Combine all your e-mail accounts with

Hotmail. Get busy.

>

> >

>

> > > >

>

> >

>

> > > >

>

> >

>

> > >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> > __________________________________________________________

>

> > The New Busy think 9 to 5 is a cute idea. Combine multiple calendars with

Hotmail.

>

> >

http://www.windowslive.com/campaign/thenewbusy?tile=multicalendar & ocid=PID28326:\

:T:WLMTAGL:ON:WL:en-US:WM_HMP:042010_5

>

> >

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> _________________________________________________________________

> Hotmail is redefining busy with tools for the New Busy. Get more from your

inbox.

>

http://www.windowslive.com/campaign/thenewbusy?ocid=PID28326::T:WLMTAGL:ON:WL:en\

-US:WM_HMP:042010_2

>

[Guest guest]

My integrative doc uses Quest today (I know shocking) Jodi,How does that work? Are there very particular Questtests that the docs can prescribe that you take?If so, which ones. Mara

[Guest guest]

Mara,

So make sure you have your doc order stool kits for a collection of 3 days (some

people do it all in one day but tell the lab it's over 3) I think it is good to

do it over three days.

If your doc doesn't have the kit you can pick it up at a quest lab.

On the requisite form have your doc write to check for Ova, Parasites, Yeasts

and Culture, Funghi, Protozoa, Leukocytes

Have your doc also check for blood (RBC) and fats and food particles.

Hope I am not missing anything- ohh and if you are already doing it have them

check Clostridia Difficile a & b.

Get some paper plates or plastic bowel (one time use) and some plastic utensils

as quest doesn't provide this stuff and it can turn your bathroom into a poo

lab.

Jodi

> >

> >

> > My integrative doc uses Quest today (I know shocking)

>

> Jodi,

>

> How does that work? Are there very particular Quest

> tests that the docs can prescribe that you take?

>

> If so, which ones.

>

> Mara

>