Guest guest Posted February 10, 2005 Report Share Posted February 10, 2005 , I am sure you will get tons of support from the G tubers on the list. Matt does not have a G tube, but we were close to it. One thing you need to check into/realize, that if Connor has reflux, a Gtube can make it worse. Also if he has delayed gastric emptying, that can worsen with just an insertion of a tube. When I was at my wits end, I asked for just the G tube to see if it would work, but I think most people here on the list have the triple procedure due to the other gastric problems. Just go into with your eyes wide open because you would hate to trade one problem for another. Has Connor been examined by a speech/feeding therapist? Beth > > Hey Folks! > > Based on the recommendations of two doctors and one speech > therapist, we are now going to put Connor on a g-tube for night > time, catch up calorie feeding. Even on an upped dose of Periactin, > Connor's calories kept decreasing. A good day was 900, but those > were rare. A regular day is about 700. The G. I. doc feels that > part of the problem is that Connor's lower jaw is off center with > his upper one. I think this is called malocclusion. He isn't using > his molars and demonstrates what is called a " munching pattern. " > Food is not being properly chewed or digested. I'm sorry if this is > gross, but just about anything Connor eats solid wise can be " seen " > in his diaper the next day. So, green beans, french fries, bread, > peanuts, popcorn, peas, etc, do not get digested. They just pass > through and Connor is not getting the nutritional benefit from the > food he does manage to put in his mouth. > > How early do we take our kids to the ortho facial specialist? I > knew that was something down the road, with dental issues. I'm just > not sure if there is something that can be done right now. How do I > teach my son to chew when it's probably painful for him? > > The upper G.I is on the 14 here in Lynchburg and the peg insert > surgery is on the 18th. While he's in there, he will check Connor's > esophagus for damage from reflux and also check pancreatic levels > for something..I'm not really sure. So, the wombat is getting a > button soon and we will be asking many questions. I am so thankful > that we got our E & D waiver in addition to the medicaid which will > help with all this new equipment and stuff. > > Presently, the wombat is taking a sheet of stickers and is applying > it to to my back as he has crawled up into the computer chair with > me. I think I'm stuck (grin). > > Thank you all for the replys on pumps and canned nutrition. I'm not > sure which pump my insurance company will pay for, but we have > chosen Kindercal for his feeds. > > That's all for now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2005 Report Share Posted February 10, 2005 Hi , You're in our thoughts and prayers... Just know that you've tried everything and you're doing whats best for Connor. You guys are great parents, I'm sure everything will work out well. Leah, mom to and Olivia-RSS > > Hey Folks! > > Based on the recommendations of two doctors and one speech > therapist, we are now going to put Connor on a g-tube for night > time, catch up calorie feeding. Even on an upped dose of Periactin, > Connor's calories kept decreasing. A good day was 900, but those > were rare. A regular day is about 700. The G. I. doc feels that > part of the problem is that Connor's lower jaw is off center with > his upper one. I think this is called malocclusion. He isn't using > his molars and demonstrates what is called a " munching pattern. " > Food is not being properly chewed or digested. I'm sorry if this is > gross, but just about anything Connor eats solid wise can be " seen " > in his diaper the next day. So, green beans, french fries, bread, > peanuts, popcorn, peas, etc, do not get digested. They just pass > through and Connor is not getting the nutritional benefit from the > food he does manage to put in his mouth. > > How early do we take our kids to the ortho facial specialist? I > knew that was something down the road, with dental issues. I'm just > not sure if there is something that can be done right now. How do I > teach my son to chew when it's probably painful for him? > > The upper G.I is on the 14 here in Lynchburg and the peg insert > surgery is on the 18th. While he's in there, he will check Connor's > esophagus for damage from reflux and also check pancreatic levels > for something..I'm not really sure. So, the wombat is getting a > button soon and we will be asking many questions. I am so thankful > that we got our E & D waiver in addition to the medicaid which will > help with all this new equipment and stuff. > > Presently, the wombat is taking a sheet of stickers and is applying > it to to my back as he has crawled up into the computer chair with > me. I think I'm stuck (grin). > > Thank you all for the replys on pumps and canned nutrition. I'm not > sure which pump my insurance company will pay for, but we have > chosen Kindercal for his feeds. > > That's all for now. > > Quote Link to comment Share on other sites More sharing options...
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