Re: Dalia was admitted to the hospital - home now

[Guest guest]

Next time Dalia is so sick, do not take her home until she is eating

or tolerating feeds. I am surprised that they let you take her home

once she cleared her ketones. Max usually has a 5 day hospital stay

for any stomach issue. He first has to have gut rest and IV fluids to

rehydrate and get rid of ketones. Then they put him on clears. Once

he tolerates those, they move up to soft foods and then to regular.

When he was g-tube fed, they would first give him Pedialyte, then 1/4

formula and 3/4 Pedialyte and so on until he tolerated at least 3/4

strength.

Watch Dalia closely. If she has not cleared those ketones, she needs

to be readmitted. And do NOT take her home until she can tolerate

that formula.

Jodi Z

[Guest guest]

Well actually they did start her on the lactose free formula in the

hospital and waited awhile to see if she tolerated it. We waited about

5 hours..maybe not long enough? She did tolerate it all day

today..that is the lactose free stuff I'm referring to. We haven't

tried Pediasure yet..that will be in the morning.

I have learned so much from this and will be much quicker to respond

and know better what to do - if there is a next time...hopefully there

wont.

Thanks.

>

> Next time Dalia is so sick, do not take her home until she is eating

> or tolerating feeds. I am surprised that they let you take her home

> once she cleared her ketones. Max usually has a 5 day hospital stay

> for any stomach issue. He first has to have gut rest and IV fluids

to

> rehydrate and get rid of ketones. Then they put him on clears. Once

> he tolerates those, they move up to soft foods and then to regular.

> When he was g-tube fed, they would first give him Pedialyte, then 1/4

> formula and 3/4 Pedialyte and so on until he tolerated at least 3/4

> strength.

>

> Watch Dalia closely. If she has not cleared those ketones, she

needs

> to be readmitted. And do NOT take her home until she can tolerate

> that formula.

>

> Jodi Z

[Guest guest]

hi sheryl!!

i will keep dalia in my thoughts and prayers and hope she is feeling

well again soon!!

jodie c

[Guest guest]

So glad Dalia is home. I don't have any specific advice for you - but you are

right that you should always follow your instincts! Dalia is lucky to have such

a knowledgable and caring mother! Jane, mom to katie

[Guest guest]

Hi. Looks like we had similar experiences this weekend. Autumn was

in the er saturday night, got fluids, then we had to go back sunday

morning because she got worse and were admitted until today. She

didn't have a stomach virus, but was not eating or drinking and was

very dehydrated and spilling ketones and lethargic.

I hope Dalia feels better. i know what you mean about learning not

to second guess and go to the er, I read back a post I made on Sunday

and I feel like smacking myself in the head because it is so obvious

I should have rushed her back immediatly or even have insisted she

stayed saturday night, I'm just new to all this, but I have learned

my lesson! She had been admitted a year ago for the sam ething, but

it was differnt then, she was barely 6 lbs and no one even though of

sending her home.

autumn is now drinking some, 13 -15 oz peptamin, but we are working

on it. She's not losing fluids though or having trouble tolerating,

it's just getting them in her that's the problem. She's not really

interested in food though, has been like that for almost a week, but

we are hopefully on our way back up becuase she is now accepting

liquids.

mom to Autumn 27 inch, down to a little over 15 lbs and still losing!

Ocean 2 1/2 , Skye 6 1/2, baby girl due in July

>

> Hi all,

>

> Well we decided to revisit the ER on Sunday since Dalia still had

> diarrhea and vomiting and was not getting better and I felt like

she

> was dehydrated.

>

> Dalia was admitted and immediately put on an IV of fluids, a shot

of

> glucose and then continuous dextrose. She had low blood sugar, was

> acidotic and had ketones (I insisted they take urine to check).

>

> By Monday afternoon, after a very long evening of hardly any sleep,

> her levels were all normal and the diarrhea and vomiting stopped so

> we came home. They put her on a lactose free formula for today and

> if all stayed down, and it did, we can start Pediasure again

> tomorrow.

>

> I checked her ketones today and they were at moderate, which kind

of

> surprises me, but I'm assuming that with her keeping down the

> formula it should go completely down soon. I just have to make

sure

> she drinks enough...she wasn't so into drinking a lot, which I

> understand..I certainly don't want to eat anything when not feeling

> well. She was also extremely tired all day and was catching up on

> sleep.

>

> Anyway, I've learned that I should never second guess myself about

> taking her to the ER the moment this type of thing happens. I

> seriously drove myself crazy before returning to the ER on Sunday

> because we were there on Friday and they sent us home saying she

> didn't need an IV. I should have insisted then.

>

> So, does anyone have any experiences to share on how things

> typically go once returning home from the hospital? I'd appreciate

> any insight.

>

> Take care,

> Sheryl (Dalia, 16 mos, SGA, now around 16 lbs, 27.25in)

[Guest guest]

Sorry you had to go through this too...Dalia is much better and is

drinking her Pediasure well now...I am going to start her on yogurt

and baby food today.

The stress of not knowing whether or not to go to the hospital and

fear of the unknown was enough to put me in the hospital...I swear I

thought I had the virus too, but it was just extreme stress. Going

through it this time has helped me learn a lot!!!

Let's hope this never happens again.

Sheryl (Dalia, SGA, now 16.4 lbs as of today, 27.25 in, Prilosec,

Periactin and Mirilax - baby due in Aug)

> >

> > Hi all,

> >

> > Well we decided to revisit the ER on Sunday since Dalia still

had

> > diarrhea and vomiting and was not getting better and I felt like

> she

> > was dehydrated.

> >

> > Dalia was admitted and immediately put on an IV of fluids, a

shot

> of

> > glucose and then continuous dextrose. She had low blood sugar,

was

> > acidotic and had ketones (I insisted they take urine to check).

> >

> > By Monday afternoon, after a very long evening of hardly any

sleep,

> > her levels were all normal and the diarrhea and vomiting stopped

so

> > we came home. They put her on a lactose free formula for today

and

> > if all stayed down, and it did, we can start Pediasure again

> > tomorrow.

> >

> > I checked her ketones today and they were at moderate, which

kind

> of

> > surprises me, but I'm assuming that with her keeping down the

> > formula it should go completely down soon. I just have to make

> sure

> > she drinks enough...she wasn't so into drinking a lot, which I

> > understand..I certainly don't want to eat anything when not

feeling

> > well. She was also extremely tired all day and was catching up

on

> > sleep.

> >

> > Anyway, I've learned that I should never second guess myself

about

> > taking her to the ER the moment this type of thing happens. I

> > seriously drove myself crazy before returning to the ER on

Sunday

> > because we were there on Friday and they sent us home saying she

> > didn't need an IV. I should have insisted then.

> >

> > So, does anyone have any experiences to share on how things

> > typically go once returning home from the hospital? I'd

appreciate

> > any insight.

> >

> > Take care,

> > Sheryl (Dalia, 16 mos, SGA, now around 16 lbs, 27.25in)

[Guest guest]

Hi Sheryl,

Glad to hear Dalia is doing better, any new pics? How are you doing -

must be hard to take good care of yourself. I talked with you alot

at the convention - you are a great mother and are doing the right

thing. Just because someone went to med school doesn't mean they

know best for your child and that they know anything about RSS/SGA

kids. I took the two pamphlets from MAGIC to the ER and made them

staple them to the inside of her file for speedy reference. REALLY

glad to hear she is doing better.

, mom to MIchael 5 and Emerence 2, SGA/RSS 26 mo 20 lb 11 oz

> > >

> > > Hi all,

> > >

> > > Well we decided to revisit the ER on Sunday since Dalia still

> had

> > > diarrhea and vomiting and was not getting better and I felt

like

> > she

> > > was dehydrated.

> > >

> > > Dalia was admitted and immediately put on an IV of fluids, a

> shot

> > of

> > > glucose and then continuous dextrose. She had low blood sugar,

> was

> > > acidotic and had ketones (I insisted they take urine to check).

> > >

> > > By Monday afternoon, after a very long evening of hardly any

> sleep,

> > > her levels were all normal and the diarrhea and vomiting

stopped

> so

> > > we came home. They put her on a lactose free formula for today

> and

> > > if all stayed down, and it did, we can start Pediasure again

> > > tomorrow.

> > >

> > > I checked her ketones today and they were at moderate, which

> kind

> > of

> > > surprises me, but I'm assuming that with her keeping down the

> > > formula it should go completely down soon. I just have to make

> > sure

> > > she drinks enough...she wasn't so into drinking a lot, which I

> > > understand..I certainly don't want to eat anything when not

> feeling

> > > well. She was also extremely tired all day and was catching up

> on

> > > sleep.

> > >

> > > Anyway, I've learned that I should never second guess myself

> about

> > > taking her to the ER the moment this type of thing happens. I

> > > seriously drove myself crazy before returning to the ER on

> Sunday

> > > because we were there on Friday and they sent us home saying

she

> > > didn't need an IV. I should have insisted then.

> > >

> > > So, does anyone have any experiences to share on how things

> > > typically go once returning home from the hospital? I'd

> appreciate

> > > any insight.

> > >

> > > Take care,

> > > Sheryl (Dalia, 16 mos, SGA, now around 16 lbs, 27.25in)