Re: Erythromycin for DGE??

[Guest guest]

Sheryl,

My son has DGE and his GI mentioned the low dose Emycin. I thought

that low dose Emycin mimicked cisapride (which is now off the

market). But I did a quick internet search and found this

explanation:

" Erythromycin. This antibiotic also improves stomach emptying. It

works by increasing the contractions that move food through the

stomach. Side effects are nausea, vomiting, and abdominal cramps. "

I am with others - it is worth a try to see if it works.

Beth H

Mom to Matt

>

> Has anyone ever heard of this protocol? We went to see Dalia's GI

> the other day and I mentioned how she still cannot take more than

> 2oz at a time very often (better with Periactin sometimes) and

that

> she still looks like she's about to spit up often, etc, etc.

>

> Anyway, he said to give the Periactin and Mirilax some time and

see

> if it helps increase the volume and move things through a little

> better, but that he has another trick up his sleeve that we can

> always try if need be...this is the Erythromycin..he says that at

a

> low dose for someone with DGE it really can help.

>

> What do you know about this?

>

> Thanks,

> Sheryl (Dalia, SGA, 15 mos, 16lbs 5.5oz, 27.25in, Periactin,

> Prilosec, Mirilax)

[Guest guest]

Liam had an ear infection and was on a similar drug for 10 days.

during that time we found that we had to feed him more often (he has

a g-tube) and we assumed that it was because his stomach was

emptying faster. I think it worked for him but we have not pursued

it with his doctors at this stage. I understand that you start with

a very small dose and increase it graduslly until you notice a

difference. too many antibiotics can be a problem, and you should be

sure that you have a strategy to replace the " good bacteria " that

will be destroyed by the antibiotics. Some people use types of live

yoghurt. Good luck.

Damian

>

> Has anyone ever heard of this protocol? We went to see Dalia's GI

> the other day and I mentioned how she still cannot take more than

> 2oz at a time very often (better with Periactin sometimes) and

that

> she still looks like she's about to spit up often, etc, etc.

>

> Anyway, he said to give the Periactin and Mirilax some time and

see

> if it helps increase the volume and move things through a little

> better, but that he has another trick up his sleeve that we can

> always try if need be...this is the Erythromycin..he says that at

a

> low dose for someone with DGE it really can help.

>

> What do you know about this?

>

> Thanks,

> Sheryl (Dalia, SGA, 15 mos, 16lbs 5.5oz, 27.25in, Periactin,

> Prilosec, Mirilax)

[Guest guest]

Hi Sheryl,

was on this for a while. Dr H had prescribed it for him for

the same reason.

Judith, Steve, (RSS) and (non RSS) 5 year old twins

[Guest guest]

We tried this a long time ago for Colin, but it didn't help. He just

vomited more than normal. I suppose it is worth a try!

Colin (RSS, gtube) and Hayden - 4 year 3 mo. twins

Grant - 14 mo.

[Guest guest]

Hi Sheryl

How long has Dalia been taking Periactin? My daughter Bobbi 12 months old, is

the same hardly ever takes more than 2oz, most of the time less than that and

like you say always looks as if it's gonna come straight back up again so I am

constantly on edge she is gonna be sick. Do you think Periactin makes a

difference as Bobbi is not on this only meds for reflux.

Brigitte

Erythromycin for DGE??

Has anyone ever heard of this protocol? We went to see Dalia's GI

the other day and I mentioned how she still cannot take more than

2oz at a time very often (better with Periactin sometimes) and that

she still looks like she's about to spit up often, etc, etc.

Anyway, he said to give the Periactin and Mirilax some time and see

if it helps increase the volume and move things through a little

better, but that he has another trick up his sleeve that we can

always try if need be...this is the Erythromycin..he says that at a

low dose for someone with DGE it really can help.

What do you know about this?

Thanks,

Sheryl (Dalia, SGA, 15 mos, 16lbs 5.5oz, 27.25in, Periactin,

Prilosec, Mirilax)

[Guest guest]

Brigitte,

Other than the occassional day when I feel like nothing helps, it

seems to work for Dalia..she does take more food/bottle overall when

on the Periactin and I do think it is worth trying.

You can post here or e-mail me privately if you have more

questions....I'd be happy to answer them.

Sheryl

> Hi Sheryl

>

> How long has Dalia been taking Periactin? My daughter Bobbi 12

months old, is the same hardly ever takes more than 2oz, most of the

time less than that and like you say always looks as if it's gonna

come straight back up again so I am constantly on edge she is gonna

be sick. Do you think Periactin makes a difference as Bobbi is not

on this only meds for reflux.

>

> Brigitte

> Erythromycin for DGE??

>

>

>

> Has anyone ever heard of this protocol? We went to see Dalia's

GI

> the other day and I mentioned how she still cannot take more

than

> 2oz at a time very often (better with Periactin sometimes) and

that

> she still looks like she's about to spit up often, etc, etc.

>

> Anyway, he said to give the Periactin and Mirilax some time and

see

> if it helps increase the volume and move things through a little

> better, but that he has another trick up his sleeve that we can

> always try if need be...this is the Erythromycin..he says that

at a

> low dose for someone with DGE it really can help.

>

> What do you know about this?

>

> Thanks,

> Sheryl (Dalia, SGA, 15 mos, 16lbs 5.5oz, 27.25in, Periactin,

> Prilosec, Mirilax)

>

>

>

>

>