Re:Chris- Bone mineral density

[Guest guest]

,

Thank you *so* much for the info - I should probably get those studies you

mentioned, just to keep in my files (I need to start a 3rd, 3-inch binder of

info & records!). I need to stay on this list just to keep up to date on this

type of info! I hope the session dealing with this at the convention next

summer will be taped - I would *love* to get my hands on it!

That is interesting that the GH studies have found that bone mineral density

also rises to more " normal " levels with GH. Charissa was officially GHD and

had Protropin injections for about 11 years, yet Dr. H. discovered the

osteopenic condition less than 6 months after discontinuing the Protropin! I

wonder what her BMD would have been without GH therapy?!? Or should she have

remained on the GHT longer?!? But this may just be one more example of what

verifies the one-of-a-kind diagnosis that Charissa currently has. I'm not sure

that she could or should be compared with any other RSS / SGA kids!

Thanks again,

in Alaska, chuckling about the panic over the east-coast blizzard. We

get those type of storms (without the wind) many times each winter and my trusty

Subaru with studded tires takes me everywhere without a problem. It's those

darn people who forget how to drive in the stuff I have to watch out

for..........!

RSS-Support wrote:

Message: 18

Date: Sat, 22 Jan 2005 23:49:18 -0000

From: " Salem "

Subject: Chris- Bone mineral density

Hey - I didn't want to overwhelm people in the last email, but

the studies I referred to also point out that RSS/SGA kids also have

higher incidences of low bone mineral density, and the GH studies

have found that bone mineral density also rises to more " normal "

levels with GH. Now, my question is how the heck does GH change

BMD???? But that is another question for the experts at the

convention!

> Hi Signe,

> I saw your post on the list & thought I'd add to the info, even

though Charissa is *not* RSS. Charissa had blood work done in

November because her estrogen has been borderline low for awhile,

and her prolactin has been high. Those are still about the same,

and the doc is not sure why, but says we will just watch it awhile

longer, repeat labs again in a few months. She had another Bone

Mineral Density test, and it came back the same - still low,

officially osteopenic. No reason for that too as she has always had

alot of extra calcium in her diet, but she has been officially

osteopenic since Dr. H. first checked it nearly 5 years ago. But

Charissa's cholesterol is a bit high too, and the doctor didn't

mention anything about it when she called last month (she mailed the

lab results, but I hadn't had time to look at them until

today.......) Total cholesterol is 209, triglycerides are good

(46, normal is 10 - 150) HDL is o.k. (56, normal is 40 - 80) but

the LDL Calc is a bit high

> at 144 (normal 50 - 100). So I guess her good cholesterol is

good, but her bad cholesterol is high. Alot of the kids in the ACE

Program (transitioning program she is in) are overweight, but

Charissa is not. However, she gets into " ruts " in what she likes to

eat, and has been eating string cheese for lunch every day for

months. I had to keep an eye on it, because she was taking 2 or 3

pieces every day - she understands what a " serving size " is, but she

prefers to ignore that info if it is something she really wants to

eat. She doesn't eat alot of junk food though (almost no soda,

prefers pretzels to high fat chips), doesn't get alot of fried

foods, and she eats lots of fruit & veggies and drinks non-fat

milk. I'll have to think about what else might be kicking the bad

chol. up. Mine is great, but my husbands has been sort of high for

the last few years and everyone in his family also has high

cholesterol. We changed our diet, but it didn't bring his levels

down much, so

> Charissa's problem might be at least partially hereditary.

>

> in Alaska

> mom of Charissa, age 20 (non-RSS but SGA & everything " RSS-like "

from a to z, so treated as if she was RSS from birth............)

>

__________________________________________________

[Guest guest]

Hi ,

Me Too.

Mercedes' skeletal survey revealed ostepenia too.

R wrote:

,

Thank you *so* much for the info - I should probably get those studies you

mentioned, just to keep in my files (I need to start a 3rd, 3-inch binder of

info & records!). I need to stay on this list just to keep up to date on this

type of info! I hope the session dealing with this at the convention next

summer will be taped - I would *love* to get my hands on it!

That is interesting that the GH studies have found that bone mineral density

also rises to more " normal " levels with GH. Charissa was officially GHD and

had Protropin injections for about 11 years, yet Dr. H. discovered the

osteopenic condition less than 6 months after discontinuing the Protropin! I

wonder what her BMD would have been without GH therapy?!? Or should she have

remained on the GHT longer?!? But this may just be one more example of what

verifies the one-of-a-kind diagnosis that Charissa currently has. I'm not sure

that she could or should be compared with any other RSS / SGA kids!

Thanks again,

in Alaska, chuckling about the panic over the east-coast blizzard. We

get those type of storms (without the wind) many times each winter and my trusty

Subaru with studded tires takes me everywhere without a problem. It's those

darn people who forget how to drive in the stuff I have to watch out

for..........!

RSS-Support wrote:

Message: 18

Date: Sat, 22 Jan 2005 23:49:18 -0000

From: " Salem "

Subject: Chris- Bone mineral density

Hey - I didn't want to overwhelm people in the last email, but

the studies I referred to also point out that RSS/SGA kids also have

higher incidences of low bone mineral density, and the GH studies

have found that bone mineral density also rises to more " normal "

levels with GH. Now, my question is how the heck does GH change

BMD???? But that is another question for the experts at the

convention!

> Hi Signe,

> I saw your post on the list & thought I'd add to the info, even

though Charissa is *not* RSS. Charissa had blood work done in

November because her estrogen has been borderline low for awhile,

and her prolactin has been high. Those are still about the same,

and the doc is not sure why, but says we will just watch it awhile

longer, repeat labs again in a few months. She had another Bone

Mineral Density test, and it came back the same - still low,

officially osteopenic. No reason for that too as she has always had

alot of extra calcium in her diet, but she has been officially

osteopenic since Dr. H. first checked it nearly 5 years ago. But

Charissa's cholesterol is a bit high too, and the doctor didn't

mention anything about it when she called last month (she mailed the

lab results, but I hadn't had time to look at them until

today.......) Total cholesterol is 209, triglycerides are good

(46, normal is 10 - 150) HDL is o.k. (56, normal is 40 - 80) but

the LDL Calc is a bit high

> at 144 (normal 50 - 100). So I guess her good cholesterol is

good, but her bad cholesterol is high. Alot of the kids in the ACE

Program (transitioning program she is in) are overweight, but

Charissa is not. However, she gets into " ruts " in what she likes to

eat, and has been eating string cheese for lunch every day for

months. I had to keep an eye on it, because she was taking 2 or 3

pieces every day - she understands what a " serving size " is, but she

prefers to ignore that info if it is something she really wants to

eat. She doesn't eat alot of junk food though (almost no soda,

prefers pretzels to high fat chips), doesn't get alot of fried

foods, and she eats lots of fruit & veggies and drinks non-fat

milk. I'll have to think about what else might be kicking the bad

chol. up. Mine is great, but my husbands has been sort of high for

the last few years and everyone in his family also has high

cholesterol. We changed our diet, but it didn't bring his levels

down much, so

> Charissa's problem might be at least partially hereditary.

>

> in Alaska

> mom of Charissa, age 20 (non-RSS but SGA & everything " RSS-like "

from a to z, so treated as if she was RSS from birth............)

>

__________________________________________________