Guest guest Posted January 23, 2005 Report Share Posted January 23, 2005 Hi le You've asked some really good questions. Ones I am eager to read replies to as well! (welcome back by the way). S. is our resident guru on blood sugar levels. I have similar issues with Adam, although I can't test his sugar levels because he won't let me prick his finger with the " thing " . Is that how you check Coby? One thing I do know is that complex carbs and/or protein are the best foods to maintain sugar levels. I find peanut butter is the best and the quickest way to boost up the levels. Unfortunately the schools are now all " peanut free " so it makes it difficult for me to get that stuff into Adam during the school day. If a child is right in the thick of a hypo-g episode, you can use Gatorade or some sort of a juice box for an immediate quick fix. Then you can follow that up with a protein. Now if Coby is refusing to eat and you are worried, I'd let him eat anything just to get over that moment. When Adam's blood sugars are low it's REAL obvious. He becomes unruly, argumentative and just plain nasty. Of course when he goes into moods like that, it's impossible to get him to eat. He won't cooperate to eat. Now, as time has gone on, I just know when it's been awhile since he has eaten and I will make him eat. It use to be terrible at Church, we go to Saturday mass at 5 p.m. and he'd always flip out there. I finally figured it out and now it's part of our routine that at 4 p.m. he HAS to eat (usually a pizza pocket.........quick and easy in the microwave) and now we don't have that problem. What I started to do was " describe " to him what exactly was happening to his body.........'when you start to feel angry that means you HAVE to eat'.........now he's pretty good at monitoring all of that on his own (but he's 12 years old now). I'm sure someone else on the list will come along with good answers to your questions soon! Take care Debby Low blood sugar > > > I've not been on in a while because my computer died, but I have a > new one now so I'm BACK! hehehe > > I'm sure you all remember that I have been trying to find a solution > to Coby's behavior changes. Well, he has an appointment with a > neuro pschyco on Feb 9th. I decided that I would record his blood > sugar levels a few times a day to see if that could be part of his > problem. Coby has only had one episode of gypo-g that we knew about > and it was after surgery. However, after taking his blood sugar > this for the first time today and it was at 57 I think we may have a > problem. He absolutely refused to eat anything so I gave him a cup > of his whole milk with chocolate carnation instant breakfast. It > went up to 107. > > My questions are: > > 1) What if they refuse to eat, what do you do? > > 2) Could you give me a few examples of good snacks to raise their > bs quickly? > > 3) Could his new bs issues be related to his GH? > > Thanks for any idea's. > > le, mom to: > Shye 10, Brock 8, and Coby (rss) & Carlee 2 > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2005 Report Share Posted January 23, 2005 hey danielle!! welcome back!! i just want to let you know i have 2 boxes full of clothes for coby, i will try and get them out to you this week!! i have been finding more stuff that the boys dont fit in (winter items) i hope you will be able to use them, some of the stuff is brand new!! as far as his bs, what i do is i try to make sure atleast every 2 hrs christopher eats something (anything-cookie, crackers, apple, ect) carbs. are really good and you can try oj or cake icing if it drops to bring it back up. but follow up with something to eat because candy and icing will bring it up quickly but wont maintain it. as long as christopher eats something every 2hrs his bs never seams to be a problem. i only had a problem recently at school where there was a sub and a sub aide that decided to do their own thing and not what was writen down for them to follow. as a result he only got one snack during the middle of his school time(his iep states he is to be given a snack 2x atleast as well as on demand) his bs dropped and when i picked him up he was hystrical and crying and throwing himself on the floor. once i got him home and got something in him after a few mins he was back to normal. good luck!! jodie c. > > I've not been on in a while because my computer died, but I have a > new one now so I'm BACK! hehehe > > I'm sure you all remember that I have been trying to find a solution > to Coby's behavior changes. Well, he has an appointment with a > neuro pschyco on Feb 9th. I decided that I would record his blood > sugar levels a few times a day to see if that could be part of his > problem. Coby has only had one episode of gypo-g that we knew about > and it was after surgery. However, after taking his blood sugar > this for the first time today and it was at 57 I think we may have a > problem. He absolutely refused to eat anything so I gave him a cup > of his whole milk with chocolate carnation instant breakfast. It > went up to 107. > > My questions are: > > 1) What if they refuse to eat, what do you do? > > 2) Could you give me a few examples of good snacks to raise their > bs quickly? > > 3) Could his new bs issues be related to his GH? > > Thanks for any idea's. > > le, mom to: > Shye 10, Brock 8, and Coby (rss) & Carlee 2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2005 Report Share Posted January 23, 2005 le, You can buy glucose in a tube at the drug store. It's with the diabetic supplies. All you have to do is squeeze it into Coby's cheek and it is absorbed. It will raise his BS if he won't eat or if he is just too out of it. In a pinch, you can also use gel cake icing tubes, but they are not as effective. They are better than nothing, though. Please let me know more about what the neuro-psychologist does and asks. Max's psychologist has suggested that we take him to one in the next year because we are thinking about plans after high school... (VERY scary thought!) For some reason, which I cannot remember, she thought this would be a good step. We are waiting for her to get us the name of one. Jodi Z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2005 Report Share Posted January 23, 2005 Hi le, The following exerts from the book I have been recommending parents read, Life Without Bread by Wolfgang Lutz MD, spends a great deal of time addressing the specific issue you are running into. Dr Lutz writes, " We realize that this idea goes against the concept that most doctors promote. They say if blood sugar is low, then eat more sugar and carbohydrates to raise it. Certainly in a moment of very low blood sugar, you would need some carbohydrates to remove the immediate problem, but this does nothing to put your body back into a normal insulin response situation " . " As you shall see, too much carbohydrate in the diet is precisely the reason low blood sugar episodes occur. The process goes like this: Excessive consumption of carbohydrates leads too much insulin release in the blood. In some people, this results in the constant removal of glucose from the blood, causing dangerously low levels of glucose. If sugar is consumed to help the condition, more insulin is produced and the low blood sugar episodes continue, often getting worse over time. Telling a patient, " If blood sugar is low, then eat more sugar and carbohydrates to raise it, " is the same philosophy as telling drug addicts to keep taking that drug every time they go into withdrawal. In the long run, the drug addict should reduce the amount of drugs taken, until no more is being consumed and the episodes disappear " . Essentially our RSS children, due to their high incidence of insulin resistance during childhood, are pre-diabetics. If this is the case as our doctor believes and it appears that Dr. H is also in agreement, then a diabetic's diet would be appropriate to resolve their problem. That is why our doctor placed our on a high fat and protein diet with some complex carbohydrates. In the situation outlined above, if a person has a dangerously low blood sugar then some immediate carbohydrates are needed but then it should be followed up with good fats and protein to smooth out the blood sugar levels. I hope that this is helpful. Beth > > I've not been on in a while because my computer died, but I have a > new one now so I'm BACK! hehehe > > I'm sure you all remember that I have been trying to find a solution > to Coby's behavior changes. Well, he has an appointment with a > neuro pschyco on Feb 9th. I decided that I would record his blood > sugar levels a few times a day to see if that could be part of his > problem. Coby has only had one episode of gypo-g that we knew about > and it was after surgery. However, after taking his blood sugar > this for the first time today and it was at 57 I think we may have a > problem. He absolutely refused to eat anything so I gave him a cup > of his whole milk with chocolate carnation instant breakfast. It > went up to 107. > > My questions are: > > 1) What if they refuse to eat, what do you do? > > 2) Could you give me a few examples of good snacks to raise their > bs quickly? > > 3) Could his new bs issues be related to his GH? > > Thanks for any idea's. > > le, mom to: > Shye 10, Brock 8, and Coby (rss) & Carlee 2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2005 Report Share Posted January 23, 2005 Absolutely his blood sugar levels could be a result of the GH. The one thing that I have tried to include in my writings about GH is that the single negative side effect that is most common is the fact that GH raises the child's fasting and glucose insulin levels. This can cause what some doctors refer to as " sudden onset hypoglycemia. " After 4 years on GH, we have found that as long as literally snacks every 60-90 minutes, her levels are really fine. But at 5 years old, boy, her behavioral changes would have scared anyone. You should continue to monitor his BSL 3-5 times a day for 3 days straight. It is important to test the same times a day, and write down what and when they last ate. We did this for and what they found was that her behavioral changes seemed to be related more to the DROP in levels than what the actual number was. So what we found was that her " normal " on our glucometer was about 114 (the same number popped up several times during the 3 days). But there were meltdowns that were followed by tests of 70 or so (which would still be normal but would be a 44 point drop). If he just gets cranky, then any complex carbo snack is good; or even a quick sip of orange juice or apple juice is the fastest. However, if he becomes lethargic or gets dark circles under the eyes, then your doctor may tell you to put glucogel or gel icing frosting (the kinds in the little tubes for decorating bday cakes) in his cheek. This works the fastest, and for kids with delayed gastric emptying, you don't have to worry about it sitting in his tummy. In fact, it is one thing that has caused me to wonder if I should do a 3-day BSL testing for my non-RSS son, who has been having wicked behavioral changes - meltdowns out of the blue, and we are beginning to watch and many are occuring at times where it appears he has not eaten for awhile. Hmmm.... Jenn > > I've not been on in a while because my computer died, but I have a > new one now so I'm BACK! hehehe > > I'm sure you all remember that I have been trying to find a solution > to Coby's behavior changes. Well, he has an appointment with a > neuro pschyco on Feb 9th. I decided that I would record his blood > sugar levels a few times a day to see if that could be part of his > problem. Coby has only had one episode of gypo-g that we knew about > and it was after surgery. However, after taking his blood sugar > this for the first time today and it was at 57 I think we may have a > problem. He absolutely refused to eat anything so I gave him a cup > of his whole milk with chocolate carnation instant breakfast. It > went up to 107. > > My questions are: > > 1) What if they refuse to eat, what do you do? > > 2) Could you give me a few examples of good snacks to raise their > bs quickly? > > 3) Could his new bs issues be related to his GH? > > Thanks for any idea's. > > le, mom to: > Shye 10, Brock 8, and Coby (rss) & Carlee 2 Quote Link to comment Share on other sites More sharing options...
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