Re: mildly elavated IGF-I levels - Cara

[Guest guest]

Hi Cara,

Although did go to NY in Sept 2002, he is not a regular NY patient

of Dr H, and she is still willing to consult with whichever Drs are willing

to talk to her. She definitely realizes that she is only one person, and

that we need more Drs to learn about RSS, and the treatments that she uses

that work.

We, however, have run into numerous physicians that absolutely refuse to

even contact her. Dr H has never been the problem here. I don't know if it's

an ego problem, or if it's that the Drs feel she's impinging on " their "

territory, but it's really been a problem for us!

Pat (g-ma to , RSS, 3 yrs 3 months old, G-tube, GHT)

[Guest guest]

pat

yes i se how that could go i schould rattle my doc here and see if they would

speck with her

i do know my endo took the infomation on the dvd done from last years convention

but am not sure if her got them or not i will ask next time we see him

cara mom to jacob

pcpets wrote:

Hi Cara,

Although did go to NY in Sept 2002, he is not a regular NY patient

of Dr H, and she is still willing to consult with whichever Drs are willing

to talk to her. She definitely realizes that she is only one person, and

that we need more Drs to learn about RSS, and the treatments that she uses

that work.

We, however, have run into numerous physicians that absolutely refuse to

even contact her. Dr H has never been the problem here. I don't know if it's

an ego problem, or if it's that the Drs feel she's impinging on " their "

territory, but it's really been a problem for us!

Pat (g-ma to , RSS, 3 yrs 3 months old, G-tube, GHT)