Re: OT Prayer and good thought request

[Guest guest]

Beth

Certainly will. The thought of such problems so young is just so

painful. But between what doctors can do and the incredible strength of

kids to overcome things we don't dream of I certainly hold hope.

>

> Hi everyone,

> I just received word from my brother in NJ that my 9 year old niece

has a brain tumor and will be having surgery to remove it

sometime in the next 2 or 3 weeks. After that she will also be having

chemotherapy and radiation.

> has a disorder called neurofibromatosis and has had problems

since she was very small but they were manageable (seizure disorder,

some mild learning disabilities) but she has been by and large healthy

and normal until now.

> The tumor is in an area that controls coordination of her right side

so obviously we are concerned about the effects of the surgery but it

must be done.

>

> If you would keep , her parents and her sister Bridget in

your thoughts and prayers I would appreciate it tremendously. Thanks

everyone

>

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>

[Guest guest]

Oh Beth what dreadfully worrying news. Your family is tucked ijnto my special Pocket of Thoughts as of now........

sending lots of positive energy to help with the anxiety!

love,

>> Hi everyone,> I just received word from my brother in NJ that my 9 year old niece has a brain tumor and will be having surgery to remove it sometime in the next 2 or 3 weeks. After that she will also be having chemotherapy and radiation. > has a disorder called neurofibromatosis and has had problems since she was very small but they were manageable (seizure disorder, some mild learning disabilities) but she has been by and large healthy and normal until now.> The tumor is in an area that controls coordination of her right side so obviously we are concerned about the effects of the surgery but it must be done. > > If you would keep , her parents and her sister Bridget in your thoughts and prayers I would appreciate it tremendously. Thanks everyone> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08>

[Guest guest]

Beth,

I will pray for your family and your neice''s medical team. God bless all.

Bettye Kline

To: Breathe-Support Sent: Wed, December 2, 2009 7:49:48 PMSubject: Re: OT Prayer and good thought request

Oh Beth what dreadfully worrying news. Your family is tucked ijnto my special Pocket of Thoughts as of now........

sending lots of positive energy to help with the anxiety!

love,

>> Hi everyone,> I just received word from my brother in NJ that my 9 year old niece has a brain tumor and will be having surgery to remove it sometime in the next 2 or 3 weeks. After that she will also be having chemotherapy and radiation. > has a disorder called neurofibromatosis and has had problems since she was very small but they were manageable (seizure disorder, some mild learning disabilities) but she has been by and large healthy and normal until now.> The tumor is in an area that controls coordination of her right side so obviously we are concerned about the effects of the surgery but it must be done. > > If you would keep , her parents and her sister Bridget in your thoughts and prayers I

would appreciate it tremendously. Thanks everyone> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08>

[Guest guest]

Beth, and all your

family will be in my thoughts.

Wishing her a pain free and speedy recovery so she can return to her

childhood.

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild” PH/10/07

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Beth wrote:

Hi everyone,

I just received word from my brother in NJ that my 9 year old

niece has a brain tumor and will be having surgery to remove

it sometime in the next 2 or 3 weeks. After that she will also be

having chemotherapy and radiation.

has a disorder called neurofibromatosis and has had

problems since she was very small but they were manageable (seizure

disorder, some mild learning disabilities) but she has been by and

large healthy and normal until now.

The tumor is in an area that controls coordination of her right

side so obviously we are concerned about the effects of the surgery but

it must be done.

If you would keep , her parents and her sister Bridget

in your thoughts and prayers I would appreciate it tremendously. Thanks

everyone

Beth

Moderator

Fibrotic

NSIP 06/06 Dermatomyositis 11/08

[Guest guest]

Beth,

When it Rains, it Pours, I will add to my prayer list and of

course my heart goes out to you. Remember children can recover from

things adults don't handle well. Give your brother and family all our

best wishes.

Dyane Phoenix

>

> Hi everyone,

> I just received word from my brother in NJ that my 9 year old niece

has a brain tumor and will be having surgery to remove it

sometime in the next 2 or 3 weeks. After that she will also be having

chemotherapy and radiation.

> has a disorder called neurofibromatosis and has had problems

since she was very small but they were manageable (seizure disorder,

some mild learning disabilities) but she has been by and large healthy

and normal until now.

> The tumor is in an area that controls coordination of her right side

so obviously we are concerned about the effects of the surgery but it

must be done.

>

> If you would keep , her parents and her sister Bridget in

your thoughts and prayers I would appreciate it tremendously. Thanks

everyone

>

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>

[Guest guest]

Oh MB, You know the prayers are on the way and don't forget God knows and is with her and all of your family. I am so sorry about this. Please keep us posted.

I love you..Love & PrayersPeggy, IPF 2004

Hi everyone,

I just received word from my brother in NJ that my 9 year old niece has a brain tumor and will be having surgery to remove it sometime in the next 2 or 3 weeks. After that she will also be having chemotherapy and radiation.

has a disorder called neurofibromatosis and has had problems since she was very small but they were manageable (seizure disorder, some mild learning disabilities) but she has been by and large healthy and normal until now.

The tumor is in an area that controls coordination of her right side so obviously we are concerned about the effects of the surgery but it must be done.

If you would keep , her parents and her sister Bridget in your thoughts and prayers I would appreciate it tremendously. Thanks everyone BethModeratorFibrotic NSIP 06/06 Dermatomyositis 11/08

[Guest guest]

Beth,

i will have them put on our church bulletin. Please know we will be interceding!

Dot/uip10/08/42/sa,tx

Subject: OT Prayer and good thought requestTo: Breathe-Support Date: Wednesday, December 2, 2009, 7:26 PM

Hi everyone,

I just received word from my brother in NJ that my 9 year old niece has a brain tumor and will be having surgery to remove it sometime in the next 2 or 3 weeks. After that she will also be having chemotherapy and radiation.

has a disorder called neurofibromatosis and has had problems since she was very small but they were manageable (seizure disorder, some mild learning disabilities) but she has been by and large healthy and normal until now.

The tumor is in an area that controls coordination of her right side so obviously we are concerned about the effects of the surgery but it must be done.

If you would keep , her parents and her sister Bridget in your thoughts and prayers I would appreciate it tremendously. Thanks everyone

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

[Guest guest]

Of course we will, Beth. I'm so sorry to hear about your niece's tumor & I

am praying that her surgery is successful with no bad after effects.

It's also sad that a 9-year-old may need to be hospitalized during the holidays.

If you think it's OK, why don't you send me her address so I can send her a

Christmas or Hannukah card, or even just a Happy Holiday card to let her know

that people care -- even way across country on the other coast.

Cees, S Calif

IPF/UIP 10/08

>

> Hi everyone,

> I just received word from my brother in NJ that my 9 year old niece

 has a brain tumor and will be having surgery to remove it sometime in

the next 2 or 3 weeks. After that she will also be having chemotherapy and

radiation.

> has a disorder called neurofibromatosis and has had problems since

she was very small but they were manageable (seizure disorder, some mild

learning disabilities) but she has been by and large healthy and normal until

now.

> The tumor is in an area that controls coordination of her right side so

obviously we are concerned about the effects of the surgery but it must be

done. 

>

> If you would keep , her parents and her sister Bridget in your

thoughts and prayers I would appreciate it tremendously. Thanks everyone

>  

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>