Guest guest Posted December 2, 2009 Report Share Posted December 2, 2009 Hi everyone, I just received word from my brother in NJ that my 9 year old niece has a brain tumor and will be having surgery to remove it sometime in the next 2 or 3 weeks. After that she will also be having chemotherapy and radiation. has a disorder called neurofibromatosis and has had problems since she was very small but they were manageable (seizure disorder, some mild learning disabilities) but she has been by and large healthy and normal until now. The tumor is in an area that controls coordination of her right side so obviously we are concerned about the effects of the surgery but it must be done. If you would keep , her parents and her sister Bridget in your thoughts and prayers I would appreciate it tremendously. Thanks everyone Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
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