Re: Brrrrr...it's fall in NC

[Guest guest]

MB, I am glad that you are enjoying your Yoga class. There isn't one for patients like us where I go. The temperatures are going to cool off this weekend in NW Georgia (and Chattanooga, too). The leaves are just starting to change color. Since we are no longer in a drought, I hope the color will be good this year.

I finally made it to the Chat tonight and we had a good discussion. Wally, Gail, and Pink Joyce were there. We missed everyone else.

Toodles!

Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl>> Good Lord where did the 70's go? I'd even take the 60's or the high 50's. But 40's and raining is just miserable. Of course I understand there were snow flurries where I used to live in NY today so I'll keep quiet now.> > I'm sorry I missed chat tonight. I had a birthday party to go to and one thing that's true about me....I never say no to a party. LOL> > Had my first pulmonary yoga class today, it was wonderful. I've been wanting to get back to yoga for a long time but it's been difficult or rather next to impossible to find a yoga class where my oxygen was welcome. This class is part of the pulmonary rehab graduate program I started this week. So now that's a must do every Thursday.> > Hope tomorrow is a good day for everyone. I am looking forward to the weekend and taking a little break!> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08>

[Guest guest]

Beth

40's and raining is the worst. I recall spending time in the winter in

Atlanta when that would be fairly common with wind tossed in. Cold and

dry or warmer and raining or even snow I can take over what you

describe.

I was always afraid of yoga...afraid I'd get into one of those positions

and never be able to get out of it. Glad you're getting to enjoy it.

>

> Good Lord where did the 70's go? I'd even take the 60's or the high

50's. But 40's and raining is just miserable. Of course I understand

there were snow flurries where I used to live in NY today so I'll keep

quiet now.

>

> I'm sorry I missed chat tonight. I had a birthday party to go to and

one thing that's true about me....I never say no to a party. LOL

>

> Had my first pulmonary yoga class today, it was wonderful. I've been

wanting to get back to yoga for a long time but it's been difficult or

rather next to impossible to find a yoga class where my oxygen was

welcome. This class is part of the pulmonary rehab graduate program I

started this week. So now that's a must do every Thursday.

>

> Hope tomorrow is a good day for everyone. I am looking forward to the

weekend and taking a little break!

>

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>

[Guest guest]

Beth -

I am curious. What is unique or different about pulmonary yoga versus regular

yoga? Are there specific movements to the pulmonary yoga? Is there a

particular core to the yoga that is more advantageous to PF patients? Or, is it

simply that you can have your oxygen with you? Are you still swimming? Are

there any other " graduate studies " for PF rehab graduates? What was the most

helpful part of your rehab? I have one more week of my rehab here at the

University of Utah. The only follow " graduate program " that I am aware of is a

$35.00/month self monitoring follow-on available for people who want to

continue. You check in, strap on a monitor and maintain your own records of

achievement. You have access to the staff for questions on continued physical

fitness guidance, but you check your own sats (and record them). They will

check your blood pressure for your records if you request and they will monitor

your heart rate while you exercise and advise you if there appear to be

problems.

Stefani 61 year old Utahn

ILD 2/2006, NSIP (cellular) 6/2009, UIP 9/2009, Diabetes II 2/2006, Sleep Apnea

4/2009

>

> Good Lord where did the 70's go? I'd even take the 60's or the high 50's.

But 40's and raining is just miserable. Of course I understand there were snow

flurries where I used to live in NY today so I'll keep quiet now.

>

> I'm sorry I missed chat tonight. I had a birthday party to go to and one thing

that's true about me....I never say no to a party. LOL

>

> Had my first pulmonary yoga class today, it was wonderful. I've been wanting

to get back to yoga for a long time but it's been difficult or rather next to

impossible to find a yoga class where my oxygen was welcome. This class is part

of the pulmonary rehab graduate program I started this week. So now that's a

must do every Thursday.

>

> Hope tomorrow is a good day for everyone. I am looking forward to the weekend

and taking a little break!

>  

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>

[Guest guest]

glad i finally made the chat last night

Gail -- re: oximeters -- look up nonin.com -- they have 2 models that some of us have

also, other people on line will post the address for the cheaper model that a lot of people have been buying

the important thing is that you get one so you can monitor your oxygen levels -- SAT's

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Brrrrr...it's fall in NCTo: Breathe-Support Date: Thursday, October 15, 2009, 10:28 PM

MB, I am glad that you are enjoying your Yoga class. There isn't one for patients like us where I go. The temperatures are going to cool off this weekend in NW Georgia (and Chattanooga, too). The leaves are just starting to change color. Since we are no longer in a drought, I hope the color will be good this year.

I finally made it to the Chat tonight and we had a good discussion. Wally, Gail, and Pink Joyce were there. We missed everyone else.

Toodles!

Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl>> Good Lord where did the 70's go? I'd even take the 60's or the high 50's. But 40's and raining is just miserable. Of course I understand there were snow flurries where I used to live in NY today so I'll keep quiet now.> > I'm sorry I missed chat tonight. I had a birthday party to go to and one thing that's true about me....I never say no to a party. LOL> > Had my first pulmonary yoga class today, it was wonderful. I've been wanting to get back to yoga for a long time but it's been difficult or rather next to impossible to find a yoga class where my oxygen was welcome. This class is part of the pulmonary rehab graduate program I started this week. So now that's a must do every Thursday.>

> Hope tomorrow is a good day for everyone. I am looking forward to the weekend and taking a little break!> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08>

[Guest guest]

Stefani and Beth

where i went for rehab, they have a twice a week maintenance program -- i think it's $7 per session

they supply the oxygen, take blood pressure before and after exercise, we check SAT before and after exercise, and they check SAT during exercise, there is a card for us to record the data

due to he limited hours 7am to 3pm twice a week -- after retiring i found it difficult to get there on time

i joined the wellness center on the floor above the rehab floor

they take blood pressure upon request, it's set up like a regular gym, which is the way most people use it and it's $40 per month -- i need to supply my own oxygen -- they teach you how to use the equipment -- then you are on your own, but there is always someone there to talk to

some people pay for personal training -- but i don't know the details of that

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Brrrrr...it's fall in NCTo: Breathe-Support Date: Friday, October 16, 2009, 4:32 AM

Beth -I am curious. What is unique or different about pulmonary yoga versus regular yoga? Are there specific movements to the pulmonary yoga? Is there a particular core to the yoga that is more advantageous to PF patients? Or, is it simply that you can have your oxygen with you? Are you still swimming? Are there any other "graduate studies" for PF rehab graduates? What was the most helpful part of your rehab? I have one more week of my rehab here at the University of Utah. The only follow "graduate program" that I am aware of is a $35.00/month self monitoring follow-on available for people who want to continue. You check in, strap on a monitor and maintain your own records of achievement. You have access to the staff for questions on continued physical fitness guidance, but you check your own sats (and record them). They will check your blood pressure for your records if you request and they will monitor your heart rate while you

exercise and advise you if there appear to be problems.Stefani 61 year old UtahnILD 2/2006, NSIP (cellular) 6/2009, UIP 9/2009, Diabetes II 2/2006, Sleep Apnea 4/2009>> Good Lord where did the 70's go? I'd even take the 60's or the high 50's. But 40's and raining is just miserable. Of course I understand there were snow flurries where I used to live in NY today so I'll keep quiet now.> > I'm sorry I missed chat tonight. I had a birthday party to go to and one thing that's true about me....I never say no to a party. LOL> > Had my first pulmonary yoga class today, it was wonderful. I've been wanting to get back to yoga

for a long time but it's been difficult or rather next to impossible to find a yoga class where my oxygen was welcome. This class is part of the pulmonary rehab graduate program I started this week. So now that's a must do every Thursday.> > Hope tomorrow is a good day for everyone. I am looking forward to the weekend and taking a little break!> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08>

[Guest guest]

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Brrrrr...it's fall in NCTo: Breathe-Support Date: Friday, October 16, 2009, 4:32 AM

Beth -I am curious. What is unique or different about pulmonary yoga versus regular yoga? Are there specific movements to the pulmonary yoga? Is there a particular core to the yoga that is more advantageous to PF patients? Or, is it simply that you can have your oxygen with you? Are you still swimming? Are there any other "graduate studies" for PF rehab graduates? What was the most helpful part of your rehab? I have one more week of my rehab here at the University of Utah. The only follow "graduate program" that I am aware of is a $35.00/month self monitoring follow-on available for people who want to continue. You check in, strap on a monitor and maintain your own records of achievement. You have access to the staff for questions on continued physical fitness guidance, but you check your own sats (and record them). They will check your blood pressure for your records if you request and they will monitor your heart rate while you

exercise and advise you if there appear to be problems.Stefani 61 year old UtahnILD 2/2006, NSIP (cellular) 6/2009, UIP 9/2009, Diabetes II 2/2006, Sleep Apnea 4/2009>> Good Lord where did the 70's go? I'd even take the 60's or the high 50's. But 40's and raining is just miserable. Of course I understand there were snow flurries where I used to live in NY today so I'll keep quiet now.> > I'm sorry I missed chat tonight. I had a birthday party to go to and one thing that's true about me....I never say no to a party. LOL> > Had my first pulmonary yoga class today, it was wonderful. I've been wanting to get back to yoga

for a long time but it's been difficult or rather next to impossible to find a yoga class where my oxygen was welcome. This class is part of the pulmonary rehab graduate program I started this week. So now that's a must do every Thursday.> > Hope tomorrow is a good day for everyone. I am looking forward to the weekend and taking a little break!> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08>

[Guest guest]

Stefani,

Well I've only had an opportunity to do one yoga class and that was yesterday so I'll know more as I go along. I can say though that it's not just named "pulmonary yoga" because most of us use supplementary oxygen. Our yoga instructor is also a physical therapist and heads up the pulmonary rehab program at Duke. The program that she has designed is specifically for pulmonary patients based on her observations over the years of the specific issues that those of us with lung disease have. To that end there is lots of upper body work, shoulders, chest etc. Lots of breath work (which is a core of most yoga practise anyway) And interestingly (at least to me) lots of work with balance. She says they find that many people with long term lung disease have at least some problems with balance.

The class is very low key and gentle as there is a wide range of fitness and experience with yoga but it felt very good to get back to that type of class. It's been way too long for me.

The 'graduate' program that I'm enrolled in now is basically the exactly the same in structure as the intensive program. The differences are our floor class is more demanding and we maintain our own charts and then hand them in to be reviewed by the staff on a weekly basis. We then get the charts back with whatever suggestions or modifications to our programs they want us to make. Our vitals and O2 sats are still monitored by staff, though I tend to monitor my sats myself also.

Part of the reason the graduate program is as structured as the intensive program is that we have folks who are waiting for transplant in the graduate program. Anyone listed for lung transplant at Duke has to be in pulmonary rehab up until the day they get 'the call'. If the wait is longer than the 5 weeks of the intensive program, they move over and do the graduate program until they get their new lungs.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Fri, October 16, 2009 4:32:12 AMSubject: Re: Brrrrr...it's fall in NC

Beth -I am curious. What is unique or different about pulmonary yoga versus regular yoga? Are there specific movements to the pulmonary yoga? Is there a particular core to the yoga that is more advantageous to PF patients? Or, is it simply that you can have your oxygen with you? Are you still swimming? Are there any other "graduate studies" for PF rehab graduates? What was the most helpful part of your rehab? I have one more week of my rehab here at the University of Utah. The only follow "graduate program" that I am aware of is a $35.00/month self monitoring follow-on available for people who want to continue. You check in, strap on a monitor and maintain your own records of achievement. You have access to the staff for questions on continued physical fitness guidance, but you check your own sats (and record them). They will check your blood pressure for your records if you request and they will monitor your heart rate while you exercise

and advise you if there appear to be problems.Stefani 61 year old UtahnILD 2/2006, NSIP (cellular) 6/2009, UIP 9/2009, Diabetes II 2/2006, Sleep Apnea 4/2009>> Good Lord where did the 70's go? I'd even take the 60's or the high 50's. But 40's and raining is just miserable. Of course I understand there were snow flurries where I used to live in NY today so I'll keep quiet now.> > I'm sorry I missed chat tonight. I had a birthday party to go to and one thing that's true about me....I never say no to a party. LOL> > Had my first pulmonary yoga class today, it was wonderful. I've been wanting to get back to yoga for a long time but it's been difficult or

rather next to impossible to find a yoga class where my oxygen was welcome. This class is part of the pulmonary rehab graduate program I started this week. So now that's a must do every Thursday.> > Hope tomorrow is a good day for everyone. I am looking forward to the weekend and taking a little break!> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08>

[Guest guest]

I can't wait for the end of daylight savings so I will be mountain again not CA time and I can actually do chat. Please send some of the rain from NC our way, gonna get to the high 90's this weekend. Oh well (everyone yell now) At Least Its A DRY HeatDyane Phoenix ipf 02> >> > Good Lord where did the 70's go? I'd even take the 60's or the high> 50's. But 40's and raining is just miserable. Of course I understand> there were snow flurries where I used to live in NY today so I'll keep> quiet now.> >> > I'm sorry I missed chat tonight. I had a birthday party to go to and> one thing that's true about me....I never say no to a party. LOL> >> > Had my first pulmonary yoga class today, it was wonderful. I've been> wanting to get back to yoga for a long time but it's been difficult or> rather next to impossible to find a yoga class where my oxygen was> welcome. This class is part of the pulmonary rehab graduate program I> started this week. So now that's a must do every Thursday.> >> > Hope tomorrow is a good day for everyone. I am looking forward to the> weekend and taking a little break!> >> > Beth> > Moderator> > Fibrotic NSIP 06/06 Dermatomyositis 11/08> >>

[Guest guest]

Sounds like a really great program - I envy you - I do wish we had a facility like Duke near Atlanta. Dorothy Reinecke

To: Breathe-Support Sent: Friday, October 16, 2009 11:06:55 AMSubject: Re: Re: Brrrrr...it's fall in NC

Stefani,

Well I've only had an opportunity to do one yoga class and that was yesterday so I'll know more as I go along. I can say though that it's not just named "pulmonary yoga" because most of us use supplementary oxygen. Our yoga instructor is also a physical therapist and heads up the pulmonary rehab program at Duke. The program that she has designed is specifically for pulmonary patients based on her observations over the years of the specific issues that those of us with lung disease have. To that end there is lots of upper body work, shoulders, chest etc. Lots of breath work (which is a core of most yoga practise anyway) And interestingly (at least to me) lots of work with balance. She says they find that many people with long term lung disease have at least some problems with balance.

The class is very low key and gentle as there is a wide range of fitness and experience with yoga but it felt very good to get back to that type of class. It's been way too long for me..

The 'graduate' program that I'm enrolled in now is basically the exactly the same in structure as the intensive program. The differences are our floor class is more demanding and we maintain our own charts and then hand them in to be reviewed by the staff on a weekly basis. We then get the charts back with whatever suggestions or modifications to our programs they want us to make. Our vitals and O2 sats are still monitored by staff, though I tend to monitor my sats myself also.

Part of the reason the graduate program is as structured as the intensive program is that we have folks who are waiting for transplant in the graduate program.. Anyone listed for lung transplant at Duke has to be in pulmonary rehab up until the day they get 'the call'. If the wait is longer than the 5 weeks of the intensive program, they move over and do the graduate program until they get their new lungs.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: Stefani <sfshaner (AT) gmail (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Fri, October 16, 2009 4:32:12 AMSubject: Re: Brrrrr...it' s fall in NC

Beth -I am curious. What is unique or different about pulmonary yoga versus regular yoga? Are there specific movements to the pulmonary yoga? Is there a particular core to the yoga that is more advantageous to PF patients? Or, is it simply that you can have your oxygen with you? Are you still swimming? Are there any other "graduate studies" for PF rehab graduates? What was the most helpful part of your rehab? I have one more week of my rehab here at the University of Utah. The only follow "graduate program" that I am aware of is a $35.00/month self monitoring follow-on available for people who want to continue. You check in, strap on a monitor and maintain your own records of achievement. You have access to the staff for questions on continued physical fitness guidance, but you check your own sats (and record them). They will check your blood pressure for your records if you request and they will monitor your heart rate while you exercise

and advise you if there appear to be problems.Stefani 61 year old UtahnILD 2/2006, NSIP (cellular) 6/2009, UIP 9/2009, Diabetes II 2/2006, Sleep Apnea 4/2009>> Good Lord where did the 70's go? I'd even take the 60's or the high 50's. But 40's and raining is just miserable. Of course I understand there were snow flurries where I used to live in NY today so I'll keep quiet now.> > I'm sorry I missed chat tonight. I had a birthday party to go to and one thing that's true about me....I never say no to a party. LOL> > Had my first pulmonary yoga class today, it was wonderful. I've been wanting to get back to yoga for a long time but it's been difficult or

rather next to impossible to find a yoga class where my oxygen was welcome. This class is part of the pulmonary rehab graduate program I started this week. So now that's a must do every Thursday.> > Hope tomorrow is a good day for everyone. I am looking forward to the weekend and taking a little break!> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08>

[Guest guest]

Dorothy:

Where are you in Atlanta? I'm in Marietta

<FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT>

To: Breathe-Support Sent: Fri, October 16, 2009 12:35:14 PMSubject: Re: Re: Brrrrr...it's fall in NC

Sounds like a really great program - I envy you - I do wish we had a facility like Duke near Atlanta. Dorothy Reinecke

From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Friday, October 16, 2009 11:06:55 AMSubject: Re: Re: Brrrrr...it' s fall in NC

Stefani,

Well I've only had an opportunity to do one yoga class and that was yesterday so I'll know more as I go along. I can say though that it's not just named "pulmonary yoga" because most of us use supplementary oxygen. Our yoga instructor is also a physical therapist and heads up the pulmonary rehab program at Duke. The program that she has designed is specifically for pulmonary patients based on her observations over the years of the specific issues that those of us with lung disease have. To that end there is lots of upper body work, shoulders, chest etc. Lots of breath work (which is a core of most yoga practise anyway) And interestingly (at least to me) lots of work with balance. She says they find that many people with long term lung disease have at least some problems with balance.

The class is very low key and gentle as there is a wide range of fitness and experience with yoga but it felt very good to get back to that type of class. It's been way too long for me..

The 'graduate' program that I'm enrolled in now is basically the exactly the same in structure as the intensive program. The differences are our floor class is more demanding and we maintain our own charts and then hand them in to be reviewed by the staff on a weekly basis. We then get the charts back with whatever suggestions or modifications to our programs they want us to make. Our vitals and O2 sats are still monitored by staff, though I tend to monitor my sats myself also.

Part of the reason the graduate program is as structured as the intensive program is that we have folks who are waiting for transplant in the graduate program.. Anyone listed for lung transplant at Duke has to be in pulmonary rehab up until the day they get 'the call'. If the wait is longer than the 5 weeks of the intensive program, they move over and do the graduate program until they get their new lungs.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: Stefani <sfshaner (AT) gmail (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Fri, October 16, 2009 4:32:12 AMSubject: Re: Brrrrr...it' s fall in NC

Beth -I am curious. What is unique or different about pulmonary yoga versus regular yoga? Are there specific movements to the pulmonary yoga? Is there a particular core to the yoga that is more advantageous to PF patients? Or, is it simply that you can have your oxygen with you? Are you still swimming? Are there any other "graduate studies" for PF rehab graduates? What was the most helpful part of your rehab? I have one more week of my rehab here at the University of Utah. The only follow "graduate program" that I am aware of is a $35.00/month self monitoring follow-on available for people who want to continue. You check in, strap on a monitor and maintain your own records of achievement. You have access to the staff for questions on continued physical fitness guidance, but you check your own sats (and record them). They will check your blood pressure for your records if you request and they will monitor your heart rate while you exercise

and advise you if there appear to be problems.Stefani 61 year old UtahnILD 2/2006, NSIP (cellular) 6/2009, UIP 9/2009, Diabetes II 2/2006, Sleep Apnea 4/2009>> Good Lord where did the 70's go? I'd even take the 60's or the high 50's. But 40's and raining is just miserable. Of course I understand there were snow flurries where I used to live in NY today so I'll keep quiet now.> > I'm sorry I missed chat tonight. I had a birthday party to go to and one thing that's true about me....I never say no to a party. LOL> > Had my first pulmonary yoga class today, it was wonderful. I've been wanting to get back to yoga for a long time but it's been difficult or

rather next to impossible to find a yoga class where my oxygen was welcome. This class is part of the pulmonary rehab graduate program I started this week. So now that's a must do every Thursday.> > Hope tomorrow is a good day for everyone. I am looking forward to the weekend and taking a little break!> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08>