Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 Hi Alison, Sorry about the email address. I'll give you my work email address instead- jzylich@.... Feel free to contact me anytime as I'd love to talk some more. We live in Vancouver, Canada but my sister lives in the UK so we see Dr. Stanhope when we visit her and make a holiday of it. He is a lovely man. I'm happy to mail the info- don't worry about the postage! Sincerely, Jana > > Hi Jana > I was unable to reply to the email address you gave me - it kept > coming back undeliverable..... > > Great to hear from you - are you in the UK? We are in Sydney, > Australia. I have heard that upd 7 kids tend to have the milder end > of the RSS spectrum which makes sense to me as Charlie doesn't seem > to look much like the other kids I know although he certainly does > have some facial traits. It makes sense what Dr Stanhope told you re > the smaller size - Charlie seems to be one of the smallest RSS kids > I know! Would love to get some of the info you have amassed - my > mailing address is 27 Ferndale Road Normanhurst NSW 2076 Australia. > I'd be happy to pay postage, let me know. Lovely to hear from you, > thanks for responding to my email Regards Alison Binet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 Alison, Oops my email address wasn't complete again-sorry! It is jzylich@... Jana > > > > Hi Jana > > I was unable to reply to the email address you gave me - it kept > > coming back undeliverable..... > > > > Great to hear from you - are you in the UK? We are in Sydney, > > Australia. I have heard that upd 7 kids tend to have the milder end > > of the RSS spectrum which makes sense to me as Charlie doesn't seem > > to look much like the other kids I know although he certainly does > > have some facial traits. It makes sense what Dr Stanhope told you re > > the smaller size - Charlie seems to be one of the smallest RSS kids > > I know! Would love to get some of the info you have amassed - my > > mailing address is 27 Ferndale Road Normanhurst NSW 2076 Australia. > > I'd be happy to pay postage, let me know. Lovely to hear from you, > > thanks for responding to my email Regards Alison Binet Quote Link to comment Share on other sites More sharing options...
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