Guest guest Posted November 14, 2009 Report Share Posted November 14, 2009 Thanks for your response, Bruce. Since I have been diagnosed with BOOP as well as UIP the doc has had me on oxygen. At first it was 24/7 and now every night and during the day as needed. I suspect that she feels that having my head elevated will help with the oxygen supply. Unfortunately, though she is an expert in the field I feel that she would like to put a more posititive spin on what is happening to me, and only when she has no other explanation for symptoms I am having, will she admit that the dosage of steroids is not helping and she puts me on a higher dosage. I, myself, would rather she be more direct as what to expect,(I am learning it for myself through research anyway.)so that I can plan my life more intelligently. But she is very knowledgable in the area of these pneumonias, and I have not found many specialists in my area. Thanks very much for your input on what to expect in terms of Medicare supplying a more comfortable bed. I am looking into that. Thanks again, Sandy > > > > Hi, sorry that I haven't visited for quite a while. Lots of time > spent in hospitals and rehab centers. (Most recently for a broken hip.) > > > > I have Usual Interstitial Pneumonia and my pulmonary doctor has told > me that I should have a hospital bed for the remainder of my life. I > now have one which was supplied by Medicare when I was diagnosed last > Spring, but I really hate it and have not slept well at all. Therefore, > I am thinking of purchasing either a hospital bed or an adjustable bed. > The problem is that I have heard that some mattresses contain products > which could hurt the lungs. If anyone has any information about this, I > would very much appreciate hearing from you. > > Wishing you all well, > > > > Sandy Mash > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2009 Report Share Posted November 14, 2009 Thanks very much, Beth. I will be following Bruce's suggestion in terms of seeing what Medicare will do for me and also research 100% latex foam mattress which you suggested. I had done some research on what I might buy on my own, and it was while doing the research that the question of toxicity came to mind, so the information you gave me is very reassuring. Thanks again, Sandy > > , > I'm so sorry that you've been having such a difficult time. Hope that your hip is healing and you are comfortable. > I'm sure that having the adjustability of a hospital bed will make your life somewhat easier. Since you can raise and ower not just the head but the foot of the bed helps and even the side rails can give you something to grab onto making it easier to shift position in the bed. > > Back 3 years ago when I was discharged from the hospital I also was told needed a hospital bed. They can be wonderful but many times the mattresses are pretty horrible. Bruce is absolutely right. The first thing to do is call the supplier and tell them they need to send you a mattress that you can actually sleep on. As he said, don't let them bully you into accepting something that isn't working. > > If you decide however you want to purchase a mattress for the bed, give some serious thought to a flexible mattress that will work either with the hospital bed or another adjustable bed. After alot of research I opted for a 100% latex foam mattress about 3 years ago. It's hypo-allergenic, mold resistant and does not off gas any fumes. Latex foam also lasts a very very long time. I love mine but there are other options and some of the other folks here may have more suggestions. > > You are in my thoughts! > >  > Beth > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 >  >  > > > > > ________________________________ > > To: Breathe-Support > Sent: Fri, November 13, 2009 8:14:16 PM > Subject: Choosing a mattress > >  > Hi, sorry that I haven't visited for quite a while. Lots of time spent in hospitals and rehab centers. (Most recently for a broken hip.) > > I have Usual Interstitial Pneumonia and my pulmonary doctor has told me that I should have a hospital bed for the remainder of my life. I now have one which was supplied by Medicare when I was diagnosed last Spring, but I really hate it and have not slept well at all. Therefore, I am thinking of purchasing either a hospital bed or an adjustable bed. The problem is that I have heard that some mattresses contain products which could hurt the lungs. If anyone has any information about this, I would very much appreciate hearing from you. > Wishing you all well, > > Sandy Mash > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2009 Report Share Posted November 14, 2009 , when i was released from hospital i too had a hospital bed & i went to walmart & got an egg shell kinda thing that goes on top of bed-there are different sizes & different prices, but they go under your sheets...it did help until i was able to move onto my regular bed & i ended up buying new mattress's & NOW i sleep so very very well..thank God!! Subject: Re: Choosing a mattressTo: Breathe-Support Date: Friday, November 13, 2009, 8:03 PM , I'm so sorry that you've been having such a difficult time. Hope that your hip is healing and you are comfortable. I'm sure that having the adjustability of a hospital bed will make your life somewhat easier. Since you can raise and ower not just the head but the foot of the bed helps and even the side rails can give you something to grab onto making it easier to shift position in the bed. Back 3 years ago when I was discharged from the hospital I also was told needed a hospital bed. They can be wonderful but many times the mattresses are pretty horrible. Bruce is absolutely right. The first thing to do is call the supplier and tell them they need to send you a mattress that you can actually sleep on. As he said, don't let them bully you into accepting something that isn't working. If you decide however you want to purchase a mattress for the bed, give some serious thought to a flexible mattress that will work either with the hospital bed or another adjustable bed. After alot of research I opted for a 100% latex foam mattress about 3 years ago. It's hypo-allergenic, mold resistant and does not off gas any fumes. Latex foam also lasts a very very long time. I love mine but there are other options and some of the other folks here may have more suggestions. You are in my thoughts! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: sandra_mash <SMash37 (AT) aol (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Fri, November 13, 2009 8:14:16 PMSubject: Choosing a mattress Hi, sorry that I haven't visited for quite a while. Lots of time spent in hospitals and rehab centers. (Most recently for a broken hip.)I have Usual Interstitial Pneumonia and my pulmonary doctor has told me that I should have a hospital bed for the remainder of my life. I now have one which was supplied by Medicare when I was diagnosed last Spring, but I really hate it and have not slept well at all. Therefore, I am thinking of purchasing either a hospital bed or an adjustable bed. The problem is that I have heard that some mattresses contain products which could hurt the lungs. If anyone has any information about this, I would very much appreciate hearing from you.Wishing you all well,Sandy Mash Quote Link to comment Share on other sites More sharing options...
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