Re: tired

[Guest guest]

Walt,

It is hard to believe that your doctor doesn't want you to do the right thing

and help you get into a situation in which you can safely breathe as you should.

If you file for disability with Social Security, he will have to cooperate with

them. Social Security may also ask you to see an independent pulmonologist at

their expense. If they do, this would add some time. But knowing this may ease

your mind as to your doctor's helping you.

If you go down to your local Social Security office, I think you will be

reassurred as reguards your chances for being declaired disabled. If you can

talk confidentially with someone in personnel at your work, you may feel easier

about such things as insurance and retirement benefits which may affect your

disability payments. I was self-employed, but I remember well the insecurity of

leaving that security blanket behind. I am still looking for that bit of self

worth I left behind at the job.

Jerry/Mississippi/54/IPF/dx April 05

>

> Hello

> I am SOOOOOO sick of doctors. I had my every three month apt. CT,PFT and pulmo

doc apt. I asked him about o2 So in his office we did a walk down the hallway

about 100 feet and sats dropped to 88% I told him there dropping to 80% at work

and he said NOTHING!  Then I asked him about going off work and filling SSI

disability he said I would qualify but it would take a long time to get on it. I

am not sure what to do.

> I have the 2006 UW Medical Center doctor reports and path reports that say my

DX is IPF, UIP and NSIP I have my new PFT results but not sure what they look at

for qualifications.

> I guess I start with looking for a new Doc. 

>  

> I am tired of feeling like it’s always a hassle to get anywhere.

>  

> Just venting

> Thanks for the understanding Ear  

>

> Walt on Whidbey IPF,Nsip.Uip. 06

>

>

>

> Courage doesn't always roar. Sometimes courage is the quiet voice at the end

of the day saying, " I will try again tomorrow.â€

>

[Guest guest]

You definitely need to find a new doctor. Those sats are just unacceptable and you should have oxygen.Beverley Joy,71, UIP,NSIP 1-09,Diabetes,Sjogren's,Fibromyalgia IdahoSubject: tiredTo: "Lung" <Breathe-Support >Date: Tuesday, September 15, 2009, 10:49 AM

Hello I am SOOOOOO sick of doctors. I had my every three month apt. CT,PFT and pulmo doc apt. I asked him about o2 So in his office we did a walk down the hallway about 100 feet and sats dropped to 88% I told him there dropping to 80% at work and he said NOTHING! Then I asked him about going off work and filling SSI disability he said I would qualify but it would take a long time to get on it. I am not sure what to do. I have the 2006 UW Medical Center doctor reports and path reports that say my DX is IPF, UIP and NSIP I have my new PFT results but not sure what they look at for qualifications. I guess I start with looking for a new Doc.

I am tired of feeling like it’s always a hassle to get anywhere. Just venting Thanks for the understanding Ear

Walt on Whidbey IPF,Nsip.Uip. 06

Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.â€

[Guest guest]

Please try another pulmonary Doctor. I have had IPF for nearly a year along with a competing Asthma condition. My local lung Doctor continues to say I do not have an Asthmatic problem. I have filled up on allergies this year. My VA P.D. tested me for these conditions and began a different treatment for asthma conditions. I had to move out of my for at least six weeks due to a reaction to mold, dust and chemicals. Today I met with an allergy Doctor for the first time and I am now taking shots. He said it may be a year before I get relief.

I work approximately six hours each spiting up white stuff from both nasal cavities and lungs. I do not know anyone else with this same problem.

Go for disability without delay. In Michigan a well documented case takes less than 120 days.

JOHN BURNS

To: Breathe-Support Sent: Tuesday, September 15, 2009 3:30:53 PMSubject: Re: tired

Walt,It is hard to believe that your doctor doesn't want you to do the right thing and help you get into a situation in which you can safely breathe as you should. If you file for disability with Social Security, he will have to cooperate with them. Social Security may also ask you to see an independent pulmonologist at their expense. If they do, this would add some time. But knowing this may ease your mind as to your doctor's helping you. If you go down to your local Social Security office, I think you will be reassurred as reguards your chances for being declaired disabled. If you can talk confidentially with someone in personnel at your work, you may feel easier about such things as insurance and retirement benefits which may affect your disability payments. I was self-employed, but I remember well the insecurity of leaving that security blanket behind. I am still looking for that bit of self worth I left behind at the

job.Jerry/Mississippi/ 54/IPF/dx April 05 >> Hello> I am SOOOOOO sick of doctors. I had my every three month apt. CT,PFT and pulmo doc apt. I asked him about o2 So in his office we did a walk down the hallway about 100 feet and sats dropped to 88% I told him there dropping to 80% at work and he said NOTHING! Then I asked him about going off work and filling SSI disability he said I would qualify but it would take a long time to get on it. I am not sure what to do. > I have the 2006 UW Medical Center doctor reports and path reports that say my DX is IPF, UIP and NSIP I have my new PFT results but not sure what they look at for qualifications.> I guess I start with looking for a

new Doc. > > I am tired of feeling like it’s always a hassle to get anywhere. > > Just venting> Thanks for the understanding Ear > > Walt on Whidbey IPF,Nsip.Uip. 06 > > > > Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.â€>

[Guest guest]

Thank you

Walt on Whidbey IPF,Nsip.Uip. 06

Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.â€

Subject: Re: Re: tiredTo: Breathe-Support@...Cc: "bill" Date: Tuesday, September 15, 2009, 1:28 PM

Please try another pulmonary Doctor. I have had IPF for nearly a year along with a competing Asthma condition. My local lung Doctor continues to say I do not have an Asthmatic problem. I have filled up on allergies this year. My VA P.D. tested me for these conditions and began a different treatment for asthma conditions. I had to move out of my for at least six weeks due to a reaction to mold, dust and chemicals. Today I met with an allergy Doctor for the first time and I am now taking shots. He said it may be a year before I get relief.

I work approximately six hours each spiting up white stuff from both nasal cavities and lungs. I do not know anyone else with this same problem.

Go for disability without delay. In Michigan a well documented case takes less than 120 days.

JOHN BURNS

From: jerryb888 <jerryb888 (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Tuesday, September 15, 2009 3:30:53 PMSubject: Re: tired

Walt,It is hard to believe that your doctor doesn't want you to do the right thing and help you get into a situation in which you can safely breathe as you should. If you file for disability with Social Security, he will have to cooperate with them. Social Security may also ask you to see an independent pulmonologist at their expense. If they do, this would add some time. But knowing this may ease your mind as to your doctor's helping you. If you go down to your local Social Security office, I think you will be reassurred as reguards your chances for being declaired disabled. If you can talk confidentially with someone in personnel at your work, you may feel easier about such things as insurance and retirement benefits which may affect your disability payments. I was self-employed, but I remember well the insecurity of leaving that security blanket behind. I am still looking for that bit of self worth I left behind at the

job.Jerry/Mississippi/ 54/IPF/dx April 05 >> Hello> I am SOOOOOO sick of doctors. I had my every three month apt. CT,PFT and pulmo doc apt. I asked him about o2 So in his office we did a walk down the hallway about 100 feet and sats dropped to 88% I told him there dropping to 80% at work and he said NOTHING! Then I asked him about going off work and filling SSI disability he said I would qualify but it would take a long time to get on it. I am not sure what to do. > I have the 2006 UW Medical Center doctor reports and path reports that say my DX is IPF, UIP and NSIP I have my new PFT results but not sure what they look at for qualifications.> I guess I start

with looking for a new Doc. > > I am tired of feeling like it’s always a hassle to get anywhere. > > Just venting> Thanks for the understanding Ear > > Walt on Whidbey IPF,Nsip.Uip. 06 > > > > Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.â€>

[Guest guest]

walt

contact social security and apply, my pulmonary told me that if someone is using o2, ssdi is usually granted

i applied in january, the money was in my bank account by February, going back to august of that year

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: tiredTo: "Lung" <Breathe-Support >Date: Tuesday, September 15, 2009, 1:49 PM

Hello I am SOOOOOO sick of doctors. I had my every three month apt. CT,PFT and pulmo doc apt. I asked him about o2 So in his office we did a walk down the hallway about 100 feet and sats dropped to 88% I told him there dropping to 80% at work and he said NOTHING! Then I asked him about going off work and filling SSI disability he said I would qualify but it would take a long time to get on it. I am not sure what to do.

I have the 2006 UW Medical Center doctor reports and path reports that say my DX is IPF, UIP and NSIP I have my new PFT results but not sure what they look at for qualifications. I guess I start with looking for a new Doc. I am tired of feeling like it’s always a hassle to get anywhere.

Just venting Thanks for the understanding Ear

Walt on Whidbey IPF,Nsip.Uip. 06

Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.â€

[Guest guest]

Walt,Ask your doctor for another referral to go back to the UWMC for an evaluation. I'm sure the doctors there would help you out with the filing of SSI disability. Back in 2005 my brother was seen and diagnosed at the UWMC for IPF and he got his SSI disability approved within 2 months. Unfortunately, he was at the end stage of the disease and only received one payment. C_53_Familial IPF_5/09WashingtonTo: Breathe-Support Sent: Tuesday, September 15, 2009 12:53:36 PMSubject: Re: tired

You definitely need to find a new doctor. Those sats are just unacceptable and you should have oxygen.Beverley Joy,71, UIP,NSIP 1-09,Diabetes, Sjogren's, Fibromyalgia IdahoFrom: Walt <island_walt@ yahoo.com>Subject: tiredTo: "Lung" <Breathe-Support@ yahoogroups. com>Date: Tuesday, September 15, 2009, 10:49 AM

Hello I am SOOOOOO sick of doctors. I had my every three month apt. CT,PFT and pulmo doc apt. I asked him about o2 So in his office we did a walk down the hallway about 100 feet and sats dropped to 88% I told him there dropping to 80% at work and he said NOTHING! Then I asked him about going off work and filling SSI disability he said I would qualify but it would take a long time to get on it. I am not sure what to do. I have the 2006 UW Medical Center doctor reports and path reports that say my DX is IPF, UIP and NSIP I have my new PFT results but not sure what they look at for qualifications. I guess I start with looking for a new Doc.

I am tired of feeling like it’s always a hassle to get anywhere. Just venting Thanks for the understanding Ear

Walt on Whidbey IPF,Nsip..Uip. 06

Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.â€