Re: Thanks-Amelietrice

[Guest guest]

Amelietrice,

The first thing to jump out at me in your email was the fact that the Endo

is already talking GH. First, GH does not rule growth in the human body

until after the age of 2. Up until that time, caloric intake is what makes

us grow. So keep on doing the high calorie stuff. Endo are always more

concerned with height, and have a tendency to forget to worry about weight!

You want to make sure of two things before you start GH.

One, your son has completed all caloric catch-up growth before starting GH.

Dr H felt that had completed his caloric catch-up when his growth

flat-lined while he weight kept going up.

Two, your son needs to be capable of gaining weight at 1.5-2 times his

" normal " rate. This will allow his weight to keep up with his height. GH

should increase you son's growth velocity by 1.5-2 times what it was without

GH. To keep a good weight to height ratio, the child has to be able to eat

well enough to gain at the same increased rate.

I agree with Ken, only about 10% of RSS kids prove positive for UPD #7, so

don't count on this test to prove either RSS or SGA. UPD #7 can also be

found in other syndromes.

We haven't tried Periactin yet. My g-son, , is 100% g-tube fed, with

a severe oral aversion, so it's not really an issue for us yet. It can be

started before GH, and should be ramped up to the full dose, or it can make

the kids really crabby! If you decide to use it, then just ask and I'm sure

that someone here can help you with the ramping procedure.

I'm not a nurse, just an interested, involved g-ma, but like you, I tend to

soak up information like a sponge! LOL It helps me feel less helpless when

confronted with a new situation.

Hope this helps!

HUGS!!

Pat (g-ma to , RSS, 3 yrs 4 months old, 23.2#, 33.2 " , G-tube, GHT)