Re: just SID and no PDD?

[Guest guest]

Thanks Janelle,

I can see why you are frustrated! I think it all depends on the " expert "

you are seeing as to what diagnosis you actually receive. Annoying. What

is the SID board?

Love,

Kirstin <><

Wife to Bobby (7 years)

Momma to Grant (4.5), Caleb (3), Libby (1.25), and " Lil' Bit " (due 4/26/02)

I sell books kids love!!!

I'm an Usborne Books at Home Independent Consultant!

http://usbornekirstin.tripod.com/

[Guest guest]

> Most of the sensory issues have

> disappeared and more of the autism issues have surfaced.

This is what confuses me - which is which? Which issues would be considered

" only " autistic and not SID? Thanks! (No your story didn't scare me at

all. :-) )

Love,

Kirstin <><

Wife to Bobby (7 years)

Momma to Grant (4.5), Caleb (3), Libby (1.25), and " Lil' Bit " (due 4/26/02)

I sell books kids love!!!

I'm an Usborne Books at Home Independent Consultant!

http://usbornekirstin.tripod.com/

[Guest guest]

None of these diagnosis are black and white. I don't think anyone

can ever be certain a diagnosis is an exact fit. There are a few

things I would like to say. First, if your child gets a diagnosis of

autism, you will get more funding for therapy. Even if you child is

typical, therapy can help anyone and to get it for free is

wonderful. When my son was diagnosed PDD and he was to be evaluated

by the Regional Center, I wrote down every bad thing I could think

that he does so he would get the autism diagnosis. As a result, he

gets 15 hours a week group therapy (Sensory Integration - all

therapists trained by the Ayers clinic which happens to be a couple

blocks away) and 10 hours a week one-on-one Floortime and is only 2

years old - all paid for by the state. Who cares if the label is

PDD, SID or AS - he is getting help so in the future he may have none

of those labels. I have read much skepticism regarding the label

SID. There are many that believe there is no such thing. I have

read some of The Out of Sync Child and it does a wonderful job of

helping us understand our kids, but they are still autistic. As for

the PDD vs. AS, many as well as myself, believe the term PDD is used

by doctor's that are afraid to tell the truth. It doesn't sound as

bad as autism. I recently read an article I believe by Bernard

Rimland that explains it well. I will forward the web addy when I

find it. As for diet, I have read heard many children benefit from

the diet that are SID, ADD or even NT. It cannot hurt to try it.

> We are still awaiting a " final diagnosis " (notice the quotes ha ha)

for my 3yo son Caleb. It will be a few months though. In the

meantime I'm reading as much as I can and learning as much as I can.

He seems to fall on the PDD spectrum, near the high end, but in

reading " The Out-of-Sync Child " I'm wondering if Caleb's problems are

ONLY SID, not PDD as well (although I know it's possible to have

both, and if he DOES have PDD then he'll have SID). Can the

diet/enzymes do something with SID ONLY or would he have to have true

PDD in order for them to help? Or is only therapy his best bet?

>

> It's so frustrating not even knowing if I can rely on what the

doctors tell me if/when we finally get to see someone.

>

> Thanks.

>

> Love,

> Kirstin <><

>

> Wife to Bobby (7 years)

> Momma to Grant (4.5), Caleb (3), Libby (1.25), and " Lil' Bit " (due

4/26/02)

>

> I sell books kids love!!!

> I'm an Usborne Books at Home Independent Consultant!

> http://usbornekirstin.tripod.com/

>

>

>