Re: Sudden leakage around Mickey Button??

[Guest guest]

Wish I could help with the button but all I can say is I hope things

get better! My own kids keep passing back and forth several

tolerable and several unpleasant bugs. YUCK.

Good luck with the Dr. hope antibiotics help.

(your bingo table mate), mom to now 5 and Emerence 22

months and roaring into terrible 2s way too early...

>

> Season's Greetings to all- I hope everybody had a

> safe, healthy, happy & blessed holiday.

>

> Trying to keep sick children happy at Team Lapish

> It seems we keep passing it around...

>

> Suddenly Pippin has terrible leakage at her Mickey button?

> I changed it yesterday thinking that was the problem but still

> leaking... She is not on continual feeds so we remove the connector

> tube after each bolus feed sometimes the leakage is worse...

> can't seem to tell a difference when the connector tube is in place.

> Sometimes I notice the leakage hours after a bolus.

> Any advice from the GT pros out there? I've checked the water in

> the balloon and even added an additional 2 cc's of water into the

> balloon but still leaking? She has NEVER had any leakage from her

> site. We've never had any problems with her site before...

>

> We've got a DR appt tomorrow as Tully's virus turned bacterial

> on Friday, and it seems Pippin has also turned bacterial, i.e. the

> fever she's been fighting since Christmas day It's been a lay-

low

> holiday for us. The first ever!

>

> TIA for all your help.

> Jenyfer & the Team

[Guest guest]

Jenyfer,

Max has always had some sort of leakage around his button. Even

now. He wears a loose gauze wrapped around it at all times. He has

to keep it loose because otherwise the leakage can eat away at his

skin and wear it down. This way the leaking is contained (no stains

on his shirts, for example - very embarassing for a teenager!) and

air can still get to it.

I was told that the leaking for Max is due to his delayed gastric

emptying. If the food/liquids don't digest in a timely manner, then

there will be stuff left that builds up and there has to be a way

out. Sometimes he gets terrible hiccups from the gases that build

up and irritate his diaphragm. And he will have some reflux, but

not much because of the Nissan.

Also, as Max has grown, the natural " seal " that formed around the

button loosened up. The skin is supposed to grow up to and around

the button, but his does not. He gets a lot of granulation tissue

that I have to cauterize from time to time, but then the leaking

gets worse.

I don't know if I am helping, but at least you know our experience

and that the leaking is not abnormal. You should still have it

checked out, though. Anything that is not the " norm " for Pippin

should be examined by a doctor.

Jodi Z

[Guest guest]

My son Henry has an AMT 14 FR mini button and has had granulation tissue and

leakeage since the g-tube was placed in two years ago. I was told it was a

reaction from the silicone of the g-tube. It is rather gross I will admit but

seems harmless.

I have tried to keep gauze around the button but he continually pulls it off

so we found these little muscle man t-shirts that seem to absorb most of the

schmuchts (has Henry calls the discharge) and the rest washes away in the bath.

One product I do think helps a bit with the leakage but is a mess as well is

Calmoseptine ointment. We apply it around the granualtion tissue and that

seems to dry things up a bit.

Happy Holidays to all,

Henry 4yrs RSS

8yrs nonRSS