RE: Re: struggling...

[Guest guest]

I agree that the aloe vera and molocure are not long-term solutions, but is the SCD? I was on it faithfully for 3.5 years and still had flares. Is it typical for someone to still get severe flares when they are on the SCD for a significant amount of time? I don't know if it is typical but it certainly happens regularly if notfrequently.You may have had some sensitivities you did not realize you had - or there were issues with food combining that did not occur when certain foods weresolitary.I'm almost 3 years and I recently discovered that - at the moment at least -dairy is causing a big reaction - but it is not in the gut, or not altogether, which is the reason it was so hard to pinpoint, it's that it creates a sinus inflammation issue, apparently. Anyway, not to go on about my issues, the point being merely thatyou may have had another layer of stuff going on that needed tobe healed. Sometimes certain effects only become obvious after other things are healedenough for you to be able to pinpoint something new.Mara

[Guest guest]

Hey Kylie,I don't really know what to tell you, however there was just a thread about Welch's Grape Juice starting Apr 6. some people said that since they changed the cap color it has been giving them problems that were resolved when they stopped drinking it. I'd watch out with that. Sorry I don't know how to link to that thread here.

Also, I would try emphasizing foods and supplements that promote healing, like lots and lots of bone and soft tissue broths and marrow, and maybe probiotics and yogurt. I don't know what to tell you about those illegals. I can just really emphasize how much I regret my experiences with illegals and how horribly I am set back now.

B4 I knew it was illegal, and a little after, I messed with aloe vera juice for my bleeding ulcer. It helped a lot, but in the long run may have caused me worse problems. I'm not sure. I fortunately was not at my sickest when I did it, which may explain why I seemed to be able to get away with it. I sure as heck got a lot sicker later on. I sure don't want to mess with it again, and have not touched it despite developing a new ulcer. I think it is entirely possible people feel short term relief from using aloe vera, I really do not think however that it will be possible to encourage long term healing with it because it is counter-productive. I encourage you to continue to look for ways to encourage healing though, perhaps when you get advanced enough to working on lots of greens and chlorophyll stuff etc., and maybe looking into legal supplements, especially in terms of EFAs and oils. I highly recommend fish oil, for EFAs, vitamin A and vitamin D, and I would strongly encourage you to try legal multivitamins and b-complexs as soon as you are able. And maybe an enzyme.

Instead of just watching legal foods, I would start keeping a really sharp eye on making sure you are getting adequate nutrition as well, within that framework. There's plenty of ways to experiment around with legal foods and legal supplements for a long time before you'll run out and need to consider illegals.

Best,

 

I agree that the aloe vera and molocure are not long-term solutions, but is the SCD? I was on it faithfully for 3.5 years and still had flares. Is it typical for someone to still get severe flares when they are on the SCD for a significant amount of time?

I don't know if it is typical but it certainly happens regularly if notfrequently.You may have had some sensitivities you did not realize you had - or there 

were issues with food combining that did not occur when certain foods weresolitary.I'm almost 3 years and I recently discovered that - at the moment at least -dairy is causing a big reaction - but it is not in the gut, or not altogether, 

which is the reason it was so hard to pinpoint, it's that it creates a sinus inflammation issue, apparently. Anyway, not to go on about my issues, the point being merely that

you may have had another layer of stuff going on that needed tobe healed.  Sometimes certain effects only become obvious after other things are healedenough for you to be able to pinpoint something new.

Mara

[Guest guest]

At 07:25 PM 4/10/2010, you wrote:

but is the SCD? I was on it

faithfully for 3.5 years and still had flares. Is it typical for someone

to still get severe flares when they are on the SCD for a significant

amount of time?

Without knowing exactly what you were eating on a day to day basis, it

would be hard to trouble shoot what happened. This is why I recommend

keeping a food diary. Date and time of every thing you eat, date and time

of all the results. Only then can you go back and trouble shoot.

Let me see: at 3.5 years on the diet, I went to Canada for two weeks. I

had been doing pretty well -- still some issues with soft mushy stool and

urgency, but nothing like what I had been having. And yes, I'd have

flares from time to time. But when I compared where I had been 3.5 years

earlier with where I was then, the difference was so phenomenal that it

was amazing.

In any case -- I went to Canada. I took lots of my own food, but I was

also eating out a bunch because we were doing research for my writing,

and often weren't near a kitchen come meal-time. (I usually fixed

breakfast, and carried lunch, but by dinner, I wanted something

hot!) Now, I did the best I could -- but I'm sure I got stuff with

margarine, and maybe stuff that wasn't cooked on a clean grill, and yes,

I did end up with a flare. It took scrupulous adherence to the diet to

get things back under control when I got home. But the flare was nowhere

near what I had taken for granted as " normal " four years

before.

Fast forward 14 months to the evacuation for Hurricane Katrina. Because

we were here, there, and the other place, I ate out a bunch... and the

same things which bugged me 14 months before were no longer an

issue.

Fast forward another 2.5 years to my diagnosis with endometrial cancer.

(This had nothing to do with gut issues.) I came through the surgery

better than any other patient my surgeon had had. I healed fast. All

because my body was healthy from eating SCD. And, when I had to have a

colonoscopy about eight months later, I had NO sign of " the family

disease " of diverticulitis which claimed the life of my grandmother,

and contributed to my mother's final illness.

Our guts -- from " soft-n-mushy " to " rock hard

pellets " -- will vary from day to day and week to week, depending on

what we eat.

I spent twenty-five years trying this supplement and that diet. SCD is

the ONLY thing which has worked for me long term.

Healing takes time. I know that's not what you want to hear. But it does.

You didn't get sick over night. You won't heal overnight. But you WILL

heal.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

Welche's wasn't giving me a problem, but I haven't been doing so hot so I have been drinking only NOT from concentrate juices like orange and apple cider. I'm finally seeing a slight change. Hopefully that may help you too!-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD From: scdquery@...Date: Sun, 11 Apr 2010 00:25:41 -0400Subject: Re: Re: struggling...

Hey Kylie,I don't really know what to tell you, however there was just a thread about Welch's Grape Juice starting Apr 6. some people said that since they changed the cap color it has been giving them problems that were resolved when they stopped drinking it. I'd watch out with that. Sorry I don't know how to link to that thread here.

Also, I would try emphasizing foods and supplements that promote healing, like lots and lots of bone and soft tissue broths and marrow, and maybe probiotics and yogurt. I don't know what to tell you about those illegals. I can just really emphasize how much I regret my experiences with illegals and how horribly I am set back now.

B4 I knew it was illegal, and a little after, I messed with aloe vera juice for my bleeding ulcer. It helped a lot, but in the long run may have caused me worse problems. I'm not sure. I fortunately was not at my sickest when I did it, which may explain why I seemed to be able to get away with it. I sure as heck got a lot sicker later on. I sure don't want to mess with it again, and have not touched it despite developing a new ulcer. I think it is entirely possible people feel short term relief from using aloe vera, I really do not think however that it will be possible to encourage long term healing with it because it is counter-productive. I encourage you to continue to look for ways to encourage healing though, perhaps when you get advanced enough to working on lots of greens and chlorophyll stuff etc., and maybe looking into legal supplements, especially in terms of EFAs and oils. I highly recommend fish oil, for EFAs, vitamin A and vitamin D, and I would strongly encourage you to try legal multivitamins and b-complexs as soon as you are able. And maybe an enzyme.

Instead of just watching legal foods, I would start keeping a really sharp eye on making sure you are getting adequate nutrition as well, within that framework. There's plenty of ways to experiment around with legal foods and legal supplements for a long time before you'll run out and need to consider illegals.

Best,On Sat, Apr 10, 2010 at 8:59 PM, Mara Schiffren <alcibiades (AT) rcn (DOT) com> wrote:

I agree that the aloe vera and molocure are not long-term solutions, but is the SCD? I was on it faithfully for 3.5 years and still had flares. Is it typical for someone to still get severe flares when they are on the SCD for a significant amount of time?

I don't know if it is typical but it certainly happens regularly if notfrequently.You may have had some sensitivities you did not realize you had - or there

were issues with food combining that did not occur when certain foods weresolitary.I'm almost 3 years and I recently discovered that - at the moment at least -dairy is causing a big reaction - but it is not in the gut, or not altogether,

which is the reason it was so hard to pinpoint, it's that it creates a sinus inflammation issue, apparently. Anyway, not to go on about my issues, the point being merely that

you may have had another layer of stuff going on that needed tobe healed. Sometimes certain effects only become obvious after other things are healedenough for you to be able to pinpoint something new.

Mara

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