Re: Reply To Marilyn: Have to get colon fully removed in next few weeks

[Guest guest]

Mark,

Sorry for the delay in getting back to you. Lucy's advice is always

good -- she was completely unable to leave her house for years before she

found SCD, and she was Elaine's personal friend.

With regards to the " high calorie drinks " with all the

illegals, I think you can do much better than that kind of junk, which

will only worsen the inflammation in your entire digestive system. You

can make the " savory smoothies " that I've mentioned elsewhere.

Good meats, good vegetables, perhaps, if fats are tolerated, some coconut

oil or even butter or ghee.

You can do an " egg nog " with hard boiled egg yolks, yogurt, a

little honey, a little nutmeg. You might toss in a ripe banana.

If you need/want my recipes for both beef soup / stew and chicken soup /

stew, I can post them.

The s. boulardii is very good for dealing with the diarrhea.

One of the things I think we lose track of in trying to follow the

Pecanbread Stages is that although they are very helpful as a guideline,

they aren't absolute. SCD is intended to be a balanced diet. If you've

followed some of the other discussions on this board, you know that

eating the same dull things every day lead to you not wanting to eat

enough to get the calories you need. It's also a characteristic of IBD

that when you aren't feeling well, you often lose your appetite.

This is just my personal opinion -- and you may take it for what it's

worth.

The banana / raw egg / whatever else was in that smoothie you've been

having would have increased my diarrhea significantly in the early days

of the diet because my system wasn't ready for a lot of fresh, raw fruit

and raw egg. What about some yogurt and some cooked fruit -- the

applesauce, if you peeled the apples may work.

You don't HAVE to puree your food, but with your colon in the shape it

isn't, you might consider doing at least some of your snacks and whatever

as the savory smoothies to make things easier. When I had my cancer

surgery, and went in to see my oncologist about ten days after I got out

of the hospital, she asked what I'd been eating. I told her, and

mentioned the smoothies, and she said that it was an excellent idea, to

make things easier on my gut which had been disturbed by the

surgery.

I'm assuming that you ARE eating not only three meals a day, but some

snacks, as well? Small meals, every couple of hours are often better

under these circumstances than three big meals far apart.

I'm going to go digging for my " hospital food stuff " -- the

clear liquids and thick liquids, and so forth that I mentioned. I should

have two sets of these -- the food I used, and the list I made up for

Jodi when she had her surgery.

Be sure that if you are going to have someone bring your food in that you

have it ready to go before the surgery. And that you have your surgeon

write on the orders that so-and-so will be bringing your food from home.

I discovered, to my dismay, that because of its food service contract,

that not even a hospital could provide food which was safe for me to

consume.

Cauliflower and broccoli are both considered advanced, but they are

vegetables which I like, and I took to them faster than I did carrots,

which are on intro.

I am sure that just eating State One and Intro foods won't help you gain

weight.

Getting things set up in advance is good -- ask Jodi about getting on and

off a chair if you don't have a good support. I've already told you

about my experience! Pole for your bed -- I found the trapeze was great.

In fact, I still use the pole by my bed when my arthritis decides to ask

up, and we still use the pole by the shower (it's a tub shower, and

involves stepping in and out) for safety reasons. The wedge pillow

is also good -- and it's not so much about sitting up all the time, as

not having to lie flat and THEN sit up. I recommend the small pillow

(mine came from the Hyster Sisters web site) to hold over your stomach

when you have to cough, or when you are in the car, traveling.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

At 10:47 AM 5/25/2010, you wrote:

Hi Marilyn,

I was just wondering what you thought about my food choices etc below in

my previous post from the other day and should i try the more advanced

foods, I have the following recipe books at home, " Roman Parasads's

Recipes For The SCD " , " Lucys SCD Cookbook " and Elaines

BTVC book so yesterday my sister made me a shepards pie which was lovely

and she also made me sun dried tomatoe bread and banana muffins, I spoke

with lucy on the phone as i order stuff from her and she advised to me to

try a variety of foods. I just wanted to ask your opinion on this as i

suppose my aim is to slow the diorreha and put as much weight on me

before surgery. I have also ordered some s.boullardi as i hear its good

for reducing diorreha, What do u think about the fresubin drinks should i

take them even though there not scd legal, will i be getting enough vit c

from my freeda multi vits or do you reccommend i get more?

I know the likes of almound flour which are in my muffins and bread my

sister made, the cauliflower and onions (which would have been in the

shepards pie she made) are all advanced foods even avacodos which ive had

are advanced but i feel that eating intro and stage 1 foods only, is not

helping me gain weight.

In your last post to me you said " You might ask your doctor what

your food regimen will be after the surgery. It may well start with clear

liquids, progress to thick liquids, then to soft foods, and finally to

whatever your new normal foods will be.If that's the case, I can help you

formulate SCD-legal menus for this time, and you can have your foods made

up in advance. I also recommend having someone prepare food for you for

at least six weeks after your hospital stay, because you are not going to

feel like cooking while you recover "

This would be of great help to me thank you. I will try find out more And

like i said as far as i know il be on a feed after surgerey im guessing

this is some sort of nutritional feed but il check this out with the

stoma nurse and get back to you.

Hopefully recovery wont be too bad, at home we have a downstairs bedroom

with bathroom (toilet and electric shower) so i wont have to climb any

stairs and il look into getting a pole like you said and even the pillow

that was mentioned as i suppose il have to sit upright all the

time

Thanks Mark

[Guest guest]

I don't know of any store bought broth that is legal, and not nearly as

nutritious as broth made from the bones.

http://findarticles.com/p/articles/mi_m0ISW/is_259-260/ai_n10299306/

Maybe your mom can make some.You can make a large amount at a time and freeze it

in smaller containers.

PJ

>

>  

> >

> >

> >Hi Marilyn,

> >I was just wondering what you thought about my food choices etc below in my

previous post from the other day and should i try the more advanced foods, I

have the following recipe books at home, " Roman Parasads's Recipes For The SCD " ,

" Lucys SCD Cookbook " and Elaines BTVC book so yesterday my sister made me a

shepards pie which was lovely and she also made me sun dried tomatoe bread and

banana muffins, I spoke with lucy on the phone as i order stuff from her and she

advised to me to try a variety of foods. I just wanted to ask your opinion on

this as i suppose my aim is to slow the diorreha and put as much weight on me

before surgery. I have also ordered some s.boullardi as i hear its good for

reducing diorreha, What do u think about the fresubin drinks should i take them

even though there not scd legal, will i be getting enough vit c from my freeda

multi vits or do you reccommend i get more?

> >I know the likes of almound flour which are in my muffins and bread my sister

made, the cauliflower and onions (which would have been in the shepards pie she

made) are all advanced foods even avacodos which ive had are advanced but i feel

that eating intro and stage 1 foods only, is not helping me gain weight.

> > 

> >In your last post to me you said " You might ask your doctor what your food

regimen will be after the surgery. It may well start with clear liquids,

progress to thick liquids, then to soft foods, and finally to whatever your new

normal foods will be.If that's the case, I can help you formulate SCD-legal

menus for this time, and you can have your foods made up in advance. I also

recommend having someone prepare food for you for at least six weeks after your

hospital stay, because you are not going to feel like cooking while you recover "

> >This would be of great help to me thank you. I will try find out more And

like i said as far as i know il be on a feed after surgerey im guessing this is

some sort of nutritional feed but il check this out with the stoma nurse and get

back to you.

> > 

> >Hopefully recovery wont be too bad, at home we have a downstairs bedroom with

bathroom (toilet and electric shower) so i wont have to climb any stairs and il

look into getting a pole like you said and even the pillow that was mentioned as

i suppose il have to sit upright all the time

> >

> >Thanks Mark

> > 

> >

> >

>

>        

>

[Guest guest]

At 03:20 AM 5/26/2010, you wrote:

I'l take any help you can give

me and thanks for taking the time to do this for me. I actually have some

beef broth that my mother just bought.

Lucy emailed me this today so i will look into it as its not something id

heard of before:

" Hi Mark, Have they thoroughly checked you out for C Dif? I've

heard it is important to have more than one test. One doctor wrote that

he ran one once a week for 3 weeks, and if all were negative he was

satisfied. The C Dif bacteria can often trigger aggresive diarrhea. How

soon are they wanting to operate? "

Lucy

Mark,

Check the beef broth ingredients VERY carefully -- I have yet to find a

commercial broth of any kind which does not contain some illegals -- and

tiny bits of illegals can have MAJOR effects.

I know it becomes dreadfully tiresome to hear " Make Your Own, Make

Your Own, Make Your Own, " all the time, but home made food can make

a MAJOR difference!

Lucy is wise to mention the c. difficile bacteria, because it can be a

factor.

I remember when I started s. boulardii (which can help with c.

difficile). I had been SCD for several years and was really doing well,

but wanted to do even better -- and when I started the s. boulardii, I

took the full dose instead of easing into it. Since I'm plus size,

normally, the full dose of anything IS easing into it, because I

typically need more than the full dose. Not with boulardii! I had MAJOR

die off, had to back off and go slow with it, which told me that there

were some things that needed a push.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle