Re: Where do I go from here?

[Guest guest]

,

If the Predenisone would help then take it. I've been diabetic for

going on 15 years, its not the end of the world, very managable. If you

can manage your Aids then manageing diabetes should not be a problem.

Breathing better would be worth it all to me.

Dyane Phoenix, ifp 02

>

> I went to a new pulmonary specialist yesterday. I was tired of not

getting any definitive answers from my current doctor. She requested all

my tests results, the last CAT scan and bronchoscope results from my

current pulmo dude and any pertinent information from my PCP.

>

> She explained what she found by reviewing everything.

>

> It was confirmed that I do have (P-ANCA) vasculitis. Vasculitis is

inflammation of the blood vessels. My bronchoscope showed no vasculitis

in the sections of the biopsies that were performed. We spoke of an open

lung biopsy. She feels it would be out of the question since I would

have great difficulty recuperating.

>

> She explained that I belong on a lung transplant list. BUT, since I

have AIDS, I would be immediately rejected. The only possible drug I can

take for any inflammation would be prednisone. I explained that

prednisone makes me a diabetic. She said that I could start on a low

dose of approx. 25mg. If need be, I would have to take insulin shots.

>

> What am I supposed to do now? I'm really frightened!

>