Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 I went in again yesterday to see mine to whine and hold forth about all the stuff going on in my body and to plead for a cortisone shot in my right knee. Which I thought I would never do but was grateful for getting it. Anyway - he's been seeing me every 3 months and we are desparately trying to get the monster inside my body to show itself. So far he has called it seronegative rheumatoid arthritis because nothing shows up in the bloodwork but it acts that way. Whatever it is, it is getting worse. Now it is going after my brain. The MRI in the hospital indicated microvascular ischemic disease and there is a non-specific abnormal EEG wtih generalized cerebral slowing indicating cerebral dysfunction. And evidently maybe a baby aneurysm in there. And non-specific neurodegeneration. YA THINK THERE COULD POSSIBLY BE ANY MORE NON-SPECIFIC CRAP GOING ON IN MY BODY????? So what is taking Imuran like? Evidently it may become a new player in my medicine box next month if I can tolerate taking it. We did all the bloodwork for that yesterday. If anybody sees me wandering around in the streets of Lubbock blathering about things that don't make sense or trying to ride my Labrador Retriever like a horse, ya'll call somebody. Evidently my brain could go tottering off on its own and leave the world behind. But my kidneys still work. So FPPPTPPPTTTTTTTTTTHHHHH, damn autoimmune disease whatever you are. Mess with me, I'll just go pee. S, Lubbock, TX NSIP w/PF 12/2006 et al > > > > > > Does anyone know how long it takes for approval - are we looking > > at months, or years? > > >  Dorothy Reinecke > > > > > > UIP-7/05 > > > > > > > > > > > > ____________ _________ _________ __ > > > From: " Paradis3@ . " Paradis3@ > > > To: Breathe-Support@ yahoogroups. > > <mailto:Breathe-Support%40yahoogroups.com> com > > > Sent: Thu, November 5, 2009 9:37:47 AM > > > Subject: Perfinedone application made to the FDA > > > > > >  > > > I don't know if it's new news, but it is to me. Intermune has > > applied for a new drug approval for Perfinedone as a treatment for > > pulmonary fibrosis. I was alerted to that by the coalitionforpf. > > org I'll check with my pulmo guys and see what that means, if > > anything. Some time ago I asked them about the drug, having heard > > it was in testing, and didn't get much of a rise out of anybody, so I > > dunno. > > > > > > Bill C. IPF 10/08 > > > N.E. PA > > > > > > Quote Link to comment Share on other sites More sharing options...
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