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Re: Maddy is finally home

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Chrissy - Who said that the growth hormone caused her early

puberty. Dr. H didn't tell you that, did she? And do you mean

puberty or adrenarche? Adrenarche is when their is body hair and/or

body odor. Puberty (gonadarche) is when testicular volume increases

and/or breast buds begin. That is the onset of puberty -- then

menarche, of course, for girls. I have just started working on that

section of the guidebook (adrenarche/puberty) and not a single study

found that SGA/RSS children on growth hormone had an earlier onset

of puberty compared to SGA/RSS children not on growth hormone.

However, many many RSS/SGA children have early onset adrenarche

(where they get some body hair, often peach fuzz, and body odor). I

want to make sure that Dr. H didn't tell you something different --

as she had just told me in January that 's early adrenarche

had nothing to do with the GH, as the studies have indicated.

Will you email me back?

> Hello everyone,

> We came home from the hospital last night and we're in NYC to

see Dr. H

> by 3pm today.

> after 15 min of being disaplined she calmed down and began to set

a

> treatment plan for Madison. We are going back to be admitted to

prespiterian hospital

> in 2-3 weeks and she is going to have yet another surgery. Dr. H

wants her

> to keep her g tube and now place a second tube ( the j tube). We

are going to

> the other hospital because Dr. H knows and trust the surgent there

Dr.

> spigland ( she did maddy's surgery the first time).

> We also touched on a few more problems. We knew she had

Hypoglycemia but now

> it turns it out she also has Hyperglcemia!!! When her sugar drops,

in an

> effort to get it back up we give her more sugar. But then she has

like 3 days of

> really terrible sugars we're talkin like 523!!!

> Now since this has happened so much it has caused her heart to be

inlarged.

> She has to have a whole cardiac work up but she feels that it may

have caused

> her right atrial heart damage. Also dropping blood sugars so often

can cause

> brain damage so now we have to keep an eye out for that but so far

she seems

> to be ok in that department.

> Then as if this wasn't enough it turns out that from the GHT she

is begining

> early puberty. So now we have to figure out if it's better to stop

the GHT.

> What a mess. So now we sit and wait till Dr. H gets back from

vacation.

> But on the up side to things looks like we will make it to the

convention

> for the first time!!!!

> Chrissy

> Mom to maddy (3 1/2) RSS 18lbs

> prevacid, GHT

>

>

>

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