progress

[Guest guest]

Hello all,

I have been reading about all of your progress and challenges but

have not posted in awhile. It is amazing how much we all have in

common with our kids. I just wanted to let you know, you may remember

that I was desperately searching for a GI doctor in the Boston area.

Well, by the luck of the draw we found one!! His name is

and he is at Children's. He is absolutely wonderful!! I sent

him all of 's gi records from the other providers with test

results, etc. He said, " you guys have done every test known to man, I

don't think I would repeat anything. I am a very simple thinker and

if the food is not going in it is not going to come out in any way.

So I think we should just start feeding this kid and see what

happens! " . had an NG tube placed at the end of February. He

has been about 37 pounds for the last 1 1/2 years. Last week, he

weighed in at 42lbs!!! Hooray!! I just can't even believe it. Now we

are awaiting the date for Gtube placement. Does anyone have Dr. H's

email address, I want to let her know everything and see when she

wants to see him again! All for now.... Pounds