Re: Stirling saw a consultant today -

[Guest guest]

> Hi

> ? Where did you get the RSS growth chart

>

>

> Stirling saw a consultant today

>

>

>

> Basically he has confirmed RSS as best he can (he has seen a

> previous case many years ao and recognised it in Stirling) and is

> now going to refer us to the growth specialists at Addenbrookes

> Cambridge for plans and treatment. He may need Growth Hormone

> Therapy and/or Periactin but that will be discussed with the experts.

>

> He did mention overnight feeding and Gastromy button (?) I got the

> impression that is only considered if all else fails to put weight

> on him. Any thoughts folks? is it a horrendous prospect? it can't

> be any worse than NG feeding can it?

>

> I was also given an RSS Length chart and Stirling appears on the

> average line for it. It's really good to actually see him on a

> chart instead of being way below it!

>

> So all in all it was a positive experience and the consultant was

> very supportive. He gave me advice on how to 'shut up' health

> people who wish to insult me!

>

> so it looks like we're going to become 'proper' members of this

> group after all!

>

> cheers

> T and Stirling:)

>

>

>

>

>

>

>

[Guest guest]

Sorry about the last post having nothing in it.

Anyway, you know the growth charts that the doctors all use?

Well there is a chart for RSS girls or boys. I have some. If you

want I could try to scan it and e-mail it to you or I can fax it or

just mail it to you. Let me know. I believe I got it from the Magic

Foundation. In fact I think it shows the regular growth chart line

and then below it is the curve for RSS kids. is above the RSS

line by about 1 or 2 standards, however, below the regular curve.

Sounds like and Tori are the same size but I will be more than

happy to provide you with the chart.

B

5 and Kelli 2 1/2

> Hi

> ? Where did you get the RSS growth chart

>

>

> Stirling saw a consultant today

>

>

>

> Basically he has confirmed RSS as best he can (he has seen a

> previous case many years ao and recognised it in Stirling) and is

> now going to refer us to the growth specialists at Addenbrookes

> Cambridge for plans and treatment. He may need Growth Hormone

> Therapy and/or Periactin but that will be discussed with the experts.

>

> He did mention overnight feeding and Gastromy button (?) I got the

> impression that is only considered if all else fails to put weight

> on him. Any thoughts folks? is it a horrendous prospect? it can't

> be any worse than NG feeding can it?

>

> I was also given an RSS Length chart and Stirling appears on the

> average line for it. It's really good to actually see him on a

> chart instead of being way below it!

>

> So all in all it was a positive experience and the consultant was

> very supportive. He gave me advice on how to 'shut up' health

> people who wish to insult me!

>

> so it looks like we're going to become 'proper' members of this

> group after all!

>

> cheers

> T and Stirling:)

>

>

>

>

>

>

>

[Guest guest]

Sorry I have not been on in a couple of days. That would be great you could

email or regular mail my address is po box 212 kerhonkson ny 12446. Thanks

alot.

Stirling saw a consultant today

>

>

>

> Basically he has confirmed RSS as best he can (he has seen a

> previous case many years ao and recognised it in Stirling) and is

> now going to refer us to the growth specialists at Addenbrookes

> Cambridge for plans and treatment. He may need Growth Hormone

> Therapy and/or Periactin but that will be discussed with the experts.

>

> He did mention overnight feeding and Gastromy button (?) I got the

> impression that is only considered if all else fails to put weight

> on him. Any thoughts folks? is it a horrendous prospect? it can't

> be any worse than NG feeding can it?

>

> I was also given an RSS Length chart and Stirling appears on the

> average line for it. It's really good to actually see him on a

> chart instead of being way below it!

>

> So all in all it was a positive experience and the consultant was

> very supportive. He gave me advice on how to 'shut up' health

> people who wish to insult me!

>

> so it looks like we're going to become 'proper' members of this

> group after all!

>

> cheers

> T and Stirling:)

>

>

>

>

>

>

>