Guest guest Posted April 6, 2005 Report Share Posted April 6, 2005 Hey all its kim t.Further to claire as many of you know i have gyne issues and some of us on the adult site think it may be part of rss as it is known about males with rss to have genital anomalies. As you know there is no research into adult health issues and rss. i talked with claire at the last convention and we found out we both have the same gyne issues and i researched into MRKH sydrome, and passed on info to claire. I'm seeing my endo in a couple of weeks and hope he may have some idea about if these gyne issues are due to a different syndrome or part of unknown rsss characteristics. claire and i both fit the symptoms for mrkh so it may as claire says, have nothing to do with rss so it was amazing for us to meet each other at an rss convention and also have another independent sydrome, it was great to meet claire and to share experiences with someone else who has health issues like me. A doctor i met at the UK version of magic works as an endo at major London Hospital and he is well known for his work with MRKH patients and possible treatments so i hope my endo has similar ideas and possible treatments for me. Quote Link to comment Share on other sites More sharing options...
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