Re: Update on Colin- - UPDATE

[Guest guest]

,

I'm glad to hear a happy ending. We were told we had 2 hours to get a

new tube in if we lost one, and that even then it would be a tight

squeeze. We always keep a new, spare tube at home.

>

> Colin- is fine. They put in a new button that should last 4

> months, but didn't answer why the hole started closing up so quickly

> or how to prevent him from doing it again. They also commented on

> how emergency rooms only see a case like this once in a while and

> are not experts on how to fix it. Boy am I glad I got some answers

> and they could make us feel at ease now. Sorry, I just get so

> frustrated with it all. It also doesn't help that my husband and I

> are on different pages. I mean should my husband spend the rest of

> our son's life sleeping in his room to ensure this doesn't happen

> again.

>

> Anyway, thanks for listening.

> M.

> (mom to Colin- 4 RSS and Gillian 7 months non-RSS)

[Guest guest]

Thank you for the thoughts. No. We did have a spare and the button

that he pulled out was still in tact that we could have put that

back in. The point is that first of all the surgeon never went over

how to replace the button with us if it did fall out until just 1

month ago and when we said he never showed us his response was I

thought I did. Secondly, the hole started closing up so quickly I

couldn't get it back in which is why he had to the hospital. The

ABC's to g-tubes would have been very handy for me a year ago.

M.

(mom to COlin- 4 RSS and Gillian 7 months non-RSS)

> >

> > Colin- is fine. They put in a new button that should last 4

> > months, but didn't answer why the hole started closing up so

quickly

> > or how to prevent him from doing it again. They also commented

on

> > how emergency rooms only see a case like this once in a while

and

> > are not experts on how to fix it. Boy am I glad I got some

answers

> > and they could make us feel at ease now. Sorry, I just get so

> > frustrated with it all. It also doesn't help that my husband and

I

> > are on different pages. I mean should my husband spend the rest

of

> > our son's life sleeping in his room to ensure this doesn't

happen

> > again.

> >

> > Anyway, thanks for listening.

> > M.

> > (mom to Colin- 4 RSS and Gillian 7 months non-RSS)

[Guest guest]

Hey M.!!!

Glad to hear that Colin- is doing fine and that they were able

to redo his button!!! This happened to a friend of mine in philly

who's daughter is rss and has a button (her and her brother were

wrestling around and it got pulled out) it can be scary but atleast

you know now what to do!! good luck!!

jodie c.

(nicholas-6 1/2 nonrss, christopher-4 rss 27lbs 6oz 36 1/4 "

periactin 4.5cc, ght genotropin .5, assmentry(left side 1cm), ADHD

and OCD possible, Johanthon-20m nonrss)