Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 Hi Pat, You are not being too nosey, many questions that everyone is asking I too visited and revisited multiple times a year ago before committing. But I did my homework and was comfortable with the answers I was getting. Additionally, the conventional approach was not working well and I tend to be open minded more towards a holistic approach anyway. I am pasting a portion of a prior post I made about a couple months ago which should answer your questions; the only thing that has changed is that now she has grown about 5 inches over the past 13 months to 44 inches……She started GH around age 4. A year ago, at age 5, she was 39 inches when her GH was tapered off and has since grown about 3 1/2+ inches. Side affects, included an initial period of a few months where she lost a little weight, but the doctor convinced us to tough it out while her metabolism made the transition to more good fats and protein diet. He likened it to somewhat like eliminating an addictive drug. To quote the book, " The disappearance of hyperinsulinism on the low-carbohydrate diet removes one of the reasons why such patients ate at all--their hypoglycemia. Generally, thin individuals are driven to eat by low blood sugar, not by a general hunger " . Another side affect was constipation. After a short period this cleared up since some muscular aspect of the intestine recovered and hormones were rebalanced. I know putting on weight is needed for growth, but more importantly you first need to control insulin levels with a lower carbohydrate diet. Then after a short period, weight and muscle increase along with height. Much of this is covered in the book. She has encountered mostly reflux, H pylori, Candida and constipation, which resolved fairly rapidly by our more natural approach. The principle drugs she had been on were growth hormone and Prilosec. As to the emotional side, the diet smoothed out 's blood sugar levels, so she no longer encounters rapid swings that can occur with hypoglycemia along with the accompanying moodiness and frustration issues. Pat, I believe that at birth we are given an immune system that should be fighting off the really tough problems our bodies encounter. But handicapping it with a poor diet high in processed carbohydrates only will make the situation worse and that is what I believe has happened to our RSS kids. Boost the immune system and let natures powers start to heal the digestive system, which then allows the hormonal system to re-regulate. Beth > Hi Beth, > > I was wondering if you would elaborate on what kinds of problems your > daughter had before this diet, and how they were resolved?? You stated: > > " She is no longer on any drugs, is feeling great, growing extremely well and > with " real " muscles, and doing much better emotionally. " > > I was wondering what kinds of drugs she was on, and for what?? What exactly > does " growing extremely well " mean?? And how is she doing better > emotionally?? What kinds of problems did she have and how has this changed?? > > Not trying to be nosy, just really interested in what types of problems were > resolved with only a change in diet. > > Pat (g-ma to , RSS, 3 yrs old, 23.5# (10.7kg), 32.8 " (83.3cm), > G-Tube) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 Pat, I can only base my suggestions on what has happened with my daughter and the books and other resources I have at my disposal. It seems your grandson's situation is indeed complicated beyond ours. But still the underlying premise is the same. From what I have read, in more complicated situations the movement towards lowering carbohydrates is much slower and involves extra steps. It appears that your grandson is a prime example of how a diet based solely on carbohydrates has resulted in major complications. As a first step would definitely buy Life Without Bread to gain a better understanding of Dr. Lutz's interpretation of the hormone system and the vast resources of documentation and graphs to support his protocol along with his long experience with insulin resistant related issues. This will not only familiarize your with his approach but equally important to understand the history of high carbohydrate diets and debunking clinical tests that are riddled with conflicts of interest and manipulated facts. In my opinion this is what has created the huge problems western society faces today with insulin resistant diseases. Next, I would see an alternative style doctor that focuses on insulin resistance type issues, or if that is not possible do at least a telephone consult. The reason why I recommend alternative doctors is that from my experience they know far more about nutrition than most conventional doctors. Most conventional doctors only have a few hours nutritional training in med school. I would recommend mine but at the moment he is not seeing new patients since he is conducting clinical tests that he plans on publishing in then near future hopefully. I think an even better idea is to see the doctor that first got me interested in this whole approach. His name is Cowan MD, and lives in San Francisco (). I met him a couple years ago when he lectured at my other child's Waldorf School. He is considered to be the " guru " on this approach, but because he was located far away at that time it was not possible for us to travel. Instead he recommended our doctor as an option along with one other, Ron Schmid ND of Middleburry, CT (). Last time I checked Cowan charged around $200 for an initial consultation. I just remembered that in the book Cowan just published, " Fourfold Path to Healing " , he devotes a chapter to asthma and another to reflux related issues. This is a great book and it compliments Lutz's book, but it is more technical and discusses treatment modalities in greater detail. I think once you have read the book then you will be better prepared to ask me more questions that I can perhaps help with. Please understand I do not want to try to play doctor, but I can give you general ideas to consider. I hope this will at least get you started in the right direction. Beth > Hi Beth, > > Thanks for responding. condition seems to be more complicated than > your daughter. He is continually g-tube fed, and suffers from an oral > aversion, and severe hypo-g. Depending on activity levels, 's BS can > drop 30-40 points within 30 minutes off feeds. His is an asthmatic, with RAD > and severe scarring of the lungs from an RSV infection. He takes Singulair > for the asthma, and does nebulizer treatments to help keep his lungs open. > He is on Zantac and Prevacid for reflux. He's had several severe ear > infections, and just had tubes placed yesterday. > > He recently started accepting enough Stage 2 baby foods to lower his pump > feed rates for the first time, but most " other " foods or textures aren't > acceptable to him. He's never felt " hunger " as far as we can tell. He eats > because he's been conditioned to do so, but he only eats what he wants. > There is no forcing " correct " foods for any oral feeding regimen down him. > If he doesn't want it, it won't go in his mouth, no matter how much you try. > > I am very interested in introducing to healthier, more diabetic-type > foods because he's insulin resistant, and with the back up of the g-tube, we > have time to work with him. Time to shape his tastes towards foods that > would be healthier for him in the long run. But I don't understand how this > food regimen would work for him. He eats NO meats whatsoever, NO veggies > unless pureed, same for fruits. As far as table food, he'll only do those > things that have certain textures, and those are mainly carbs, French fries, > White bread (no whole grains)Cheerios, Fruit Loops, crackers, chips. He has > SID so there are numerous textures that he won't touch (meaning they won't > make it into his mouth either), or that make him gag. > > What would your suggestions be? > > Pat (g-ma to , RSS, 3 yrs old, 23.5# (10.7kg), 32.8 " (83.3cm), > G-Tube) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 Pat, I just remembered I left something out of my last post and perhaps you already read these quotes from Life Without Bread. In 's situation I believe the following paragraphs apply directly to his lack of interest in anything other than carbohydrates. " The very thin carbohydrate eater usually has very little muscle with a very slight bone structure. These people tend to burn the excess energy from overeating of carbohydrates, instead of storing it into adipose tissue as in the case in the obese/overweight body type " . " On the surface, this burning of energy would seem a good thing, and very thin people often have an enhanced energy profile. This is only true, however, if a constant supply of carbohydrates is available. The thin carbohydrate eater cannot afford to even delay a meal. Metabolically, they are probably not too different than the overweight carbohydrate eater. Thin people will often experience low blood sugar episodes because they are still faced with the fundamental problem associated with eating too many carbohydrates: insulin resistance and hyperinsulinemia " . " There is no available fat metabolism to provide the thin carbohydrate eater with a balance of energy. Thus carbohydrates constitute the only source of energy for them. As with overweight high-carbohydrate eaters, fat metabolism is restricted. Because fat supplies the majority of energy reserves in humans, the thin carbohydrate eaters must continually eat in order to satisfy the body's energy requirements " . " The low-carbohydrate program augments the anabolic processes that contribute to increased body mass in the form of bone density, muscle, and connective tissue. But the underweight person must be diligent. It takes some time to see the benefit of weight gain. Usually thin people experience a loss of weight during the first few months on the diet. This eventually gives way to increased body mass as the production of GROWTH HORMONE eventually increases, and nutrients needed to build tissue (fat and protein) are consumed. Over a long period of time, from one to two years, they will eventually reach a larger body mass compared to when they began the low carbohydrate program. The new weight, however, will be in all the right places. " Beth > > Pat, > > I can only base my suggestions on what has happened with my daughter > and the books and other resources I have at my disposal. It seems > your grandson's situation is indeed complicated beyond ours. But > still the underlying premise is the same. From what I have read, in > more complicated situations the movement towards lowering > carbohydrates is much slower and involves extra steps. It appears > that your grandson is a prime example of how a diet based solely on > carbohydrates has resulted in major complications. > > As a first step would definitely buy Life Without Bread to gain a > better understanding of Dr. Lutz's interpretation of the hormone > system and the vast resources of documentation and graphs to support > his protocol along with his long experience with insulin resistant > related issues. This will not only familiarize your with his > approach but equally important to understand the history of high > carbohydrate diets and debunking clinical tests that are riddled > with conflicts of interest and manipulated facts. In my opinion > this is what has created the huge problems western society faces > today with insulin resistant diseases. > > Next, I would see an alternative style doctor that focuses on > insulin resistance type issues, or if that is not possible do at > least a telephone consult. The reason why I recommend alternative > doctors is that from my experience they know far more about > nutrition than most conventional doctors. Most conventional doctors > only have a few hours nutritional training in med school. > > I would recommend mine but at the moment he is not seeing new > patients since he is conducting clinical tests that he plans on > publishing in then near future hopefully. I think an even better > idea is to see the doctor that first got me interested in this whole > approach. His name is Cowan MD, and lives in San Francisco > (). I met him a couple years ago when he lectured at > my other child's Waldorf School. He is considered to be the > " guru " on this approach, but because he was located far away > at that time it was not possible for us to travel. > > Instead he recommended our doctor as an option along with one other, > Ron Schmid ND of Middleburry, CT (). Last time I > checked Cowan charged around $200 for an initial consultation. I > just remembered that in the book Cowan just published, " Fourfold > Path to Healing " , he devotes a chapter to asthma and another to > reflux related issues. This is a great book and it compliments > Lutz's book, but it is more technical and discusses treatment > modalities in greater detail. > > I think once you have read the book then you will be better prepared > to ask me more questions that I can perhaps help with. Please > understand I do not want to try to play doctor, but I can give you > general ideas to consider. I hope this will at least get you > started in the right direction. > > Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2005 Report Share Posted January 31, 2005 Pat Have you tried the gerber 2 chicken? It has 100 cals and 8 gm protein in 2.5 oz. smells and tastes awful, but Naomi eats it mixed with things she likes such as banana or sweet potato puree and she cant tell its there. My daughter has severe texture issues as well, she is not tube fed but gags on lumps. She licks crackers pretzels if they are salty, she only likes the salt on them. It She is also eating cheese sauce and smashed avocado now. Does like cheese products? Naomi does lick on chicken and fish (from our plate), she actually comes over to try our food when we eat, but only for the salty/spicy gravy on them she cant eat the meat yet. Sabina mother of Naomi now at 17.5 lbs 27 inches almost 27 months Sabina mother of Naomi > Hillary!! Thanks for the input. WHAT do you eat for oral proteins??? Or what > suppliments do you take?? Protein is a necessity, especially with B on GHT, > but other than what he gets in his formula, there's none in his diet. Oh nix > that... I do get him to eat the occasional egg yolk blended into his Stage 2 > foods. > > Thanks again! > Pat (g-ma to , RSS, 3 yrs old, 23.5# (10.7kg), 32.8 " (83.3cm), > G-Tube) Quote Link to comment Share on other sites More sharing options...
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