Guest guest Posted January 22, 2005 Report Share Posted January 22, 2005 Jay - if you end up at Cedar's, and need a good geneticist, I have an AWESOME geneticist, who is also just a basic great doctor. still goes once a year to see her, and Rena Falk (name of her) sees the RSS child " as a whole " -- gives me an entire report with recommendations for each part of (e.g., PT, speech, hypoglycemia, GI, etc.) Each time gets the stomach virus and needs an IV, we drive the 30 minutes up there and admit her, under Rena's care, even though Rena is a geneticist. Jenn > When you said you knew a mom that had the girl with Crohn's while a stay in > the hospital do you still have contact with them???? That would be great > to talk to her about her experience at Sinai as well.....You can give her my > email address so I can contact her...If she is willing?? > > Thanks so much, Jenn that was kind of you to offer information, I meant to > add that in the prior email and got on a tangent > > Jay jbrethen@s... > > > > > > > Jay, I know NOTHING about this. However, I remember learning at one > of my daughter's hospitalizations that there is some Crohn's GURU at > Cedar Sinai hospital -- the girl in the room next to has > Crohn's, and lives in Phoenix. When the girl had an attack, her mom > drove her to the AIRPORT instead of the ER, and flew the hour to LA > and took her right to this doctor, who is actually their treating > doctor. The mom commented that they did a lot of research about the > best Crohn's person on the west coast. Maybe I could find out who > it is and get her email address??? Jenn > > > > Quote Link to comment Share on other sites More sharing options...
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