New to the Group - Newly diagnosed son

[Guest guest]

My son is 13 months old and was recently diagnosed with RSS.

One of my son's doctors (it's amazing just how many are involved in

his life right now!) referred me to another family near where I live

who also have a child with RSS. They were kind enough to point me to

this group and to the Magic Foundation.

I'm a bit overwhelmed with all of this, but have a couple of

questions that I'm hoping to get some input on.

First, my son seems to be eating well, but I'm wondering if it is

advisable to get him on a feeding tube, anyway? I'm concerned that

he receives good nutrition and I'm not confident that he is, even

though he seems to be eating well.

Second, I'm concerned that he isn't saying any words yet, although he

seems to be on-track developmentally, otherwise. Can anyone give me

some insight into what I can maybe expect in this regard?

Any other advice that you are willing to share with me, I would

greatly appreciate! I just don't know what to expect at this point---

or what I should be doing.....

Thank you!