Re: Hello From A New Member

[Guest guest]

Hi Bellori,

Welcome to our group. I hope we can help you.

I think it's great you trying to help your grand daughter's best

friend.

Does your grand daughter's best friend's parents (say that 3 times

fast)know about our group? Please let them know about us. It would be

great if they are members even if they just lurk on the list.

As for what you can do, you can go to the Magic web site

(http://www.magicfoundation.org) and print a copy of the RSS

characteristics and give it to the daycare operator, if you think

this is appropriate.

If you get a chance to observe this girl in school again, try and see

if you can notice any developmetal delays, or any modifications to

the class room that might help her.

I'm sure many others will be welcoming you soon and will have much

better ideas than I do.

I hope this helps.

Ken M

>

>

> Hello all,

> I am very glad I found this group,you have all been very

informative

> and I just joined today.

>

> I am a grandmother who used to work at a home-based daycare. One of

> the children there has Silver Syndrome but is only half way

> through the testing. I adore her and have been researching what I

can

> find online to better understand her situation.My grand daughter is

> her best friend, LOL.

>

> Thank you for the information and I think it is wonderful that

there

> is a support system for parents.

>

>

> Bellorri

[Guest guest]

That is wonderful that you are looking into this for

her. You found a great place to start and I see that

you have been pointed in the direction of the Magic

Foundation.

B

5 and Kelli 2 1/2

--- bellorri wrote:

>

>

> Hello all,

> I am very glad I found this group,you have all been

> very informative

> and I just joined today.

>

> I am a grandmother who used to work at a home-based

> daycare. One of

> the children there has Silver Syndrome but

> is only half way

> through the testing. I adore her and have been

> researching what I can

> find online to better understand her situation.My

> grand daughter is

> her best friend, LOL.

>

> Thank you for the information and I think it is

> wonderful that there

> is a support system for parents.

>

>

> Bellorri

>

>

>

>

>

>

>

__________________________________________________

[Guest guest]

Hi!

My daughter Emerence is 2 and is diagnosed SGA by Dr. Harbison (who

you will often see referred to here as Dr. H) and probable mild RSS

by her Geneticist. She JUST cracked 20 lbs and now weighs 20lb 11oz

and is 31 " . Hopefully you can get the child's parent(s) to join the

listserve and MAGIC. Lots of info here and plenty of helpful people

who want to share what they know.

, mom to 5 and Emerence 2

>

>

> Hello all,

> I am very glad I found this group,you have all been very

informative

> and I just joined today.

>

> I am a grandmother who used to work at a home-based daycare. One of

> the children there has Silver Syndrome but is only half way

> through the testing. I adore her and have been researching what I

can

> find online to better understand her situation.My grand daughter is

> her best friend, LOL.

>

> Thank you for the information and I think it is wonderful that

there

> is a support system for parents.

>

>

> Bellorri

[Guest guest]

bellorri,

wellcome it is great to see other take intress in anthors child life you will

find that this group os great and have helped each out is support.

cara mom to jacob 8 SGA 45 LB 4FT. GHT peractin prevacid zertec and flonace

bellorri wrote:

Hello all,

I am very glad I found this group,you have all been very informative

and I just joined today.

I am a grandmother who used to work at a home-based daycare. One of

the children there has Silver Syndrome but is only half way

through the testing. I adore her and have been researching what I can

find online to better understand her situation.My grand daughter is

her best friend, LOL.

Thank you for the information and I think it is wonderful that there

is a support system for parents.

Bellorri