An update on maddy's hospital stay

March 22, 2005

Hey everyone,

I know Jodi has kept you all posted on maddy's situation well it only gets worse

today is tuesday and we have been here since saturday and we still donot have

her tube placed. After a good screaming from Dr. H ( yet again today) We are

waiting to hear from some of our local hospitals to see if they have a g-j tube

in a 14 french. If we are not takin care of by tonight then we are leaving here

and heading straight to NY where Dr. H is going to admitt her and take of

things!!! This has been the worst roller coatser ride ever. I really don't know

what i would do without Dr. H, She is so pissed that a children's hospital can

be this difficult when it comes to pt care.

Chrissy

March 22, 2005

Chrissy,

I am so sorry that you are going through all of this. When I did

not hear from you after you called me on Saturday, I assumed things

were okay. Then Jodie C called me to tell me what was going on.

I am so glad that you followed my advice and called Dr. H.'s

emergency number! I just knew she would take over. I'm just

surprised that she did not have you take Maddy to NYC before now.

How awful for both of you!

I did suggest to Jodie, and now you, that if you ever run into

needing the g-j replaced again, you should consider town

Memorial. It is closer to you than NY and the GI docs there are

really good. Max has had his g-j placed and replaced there three

times and it has gone without a hitch. They just need to know in

advance what size and they keep it onhand for situations like

yours. I can give you the info when things settle down. It's hard

to get an appointment in a timely manner these days for the initial

visit, but once you're in, you are taken care of. And they know

about RSS and Dr. H. If nothing else, Max has trained them pretty

well!

Let me know when you are settled. I'm thinking of you!

Jodi Z

March 22, 2005

hey chrissy!!

that is just nuts!!! let me know if you head to nyc!! i cant

believe after all of this they didnt have the right size, they have

know for days that this needed to be done!! hang in there girl!!

((HUGS))

jodie c

> Hey everyone,

> I know Jodi has kept you all posted on maddy's situation well it

only gets worse today is tuesday and we have been here since

saturday and we still donot have her tube placed. After a good

screaming from Dr. H ( yet again today) We are waiting to hear from

some of our local hospitals to see if they have a g-j tube in a 14

french. If we are not takin care of by tonight then we are leaving

here and heading straight to NY where Dr. H is going to admitt her

and take of things!!! This has been the worst roller coatser ride

ever. I really don't know what i would do without Dr. H, She is so

pissed that a children's hospital can be this difficult when it

comes to pt care.

> Chrissy

March 22, 2005

i am sorry to hear this is being so tuff for her. iti s such a good thing to

have doc h on your side hope all things get better

cara mom to jacob

chrissynlou@... wrote: