Re: Weight gain - good news!

[Guest guest]

hey kim!!!

YEAH!!! good for matthew!!! that is so great!!!

jodie c

>

> I rarely get a chance to brag on here about an accomplishment, so

I am excited to

> announce that has gained 6 lbs. in a month! Yes, I wrote

that right... How did we

> do this? We increased 's calories via g-tube from 1500/day

to 2250/day (4 cans

> to 6 cans of Nutren 1.5) & put him on continuous feeds during the

day as well as the

> night. I looked back at 's growth record, and he has been

in the same weight

> range since he was 8 years old (that was 3 years & 4 months ago

folks!). I would still like

> him to gain a few more pounds & then I guess we will need to back

off on some of his

> feeds. I need to contact Dr. H & ask or her advice at this point.

Does anyone know what

> the best way to contact her is? I called her & left a message

twice last month, and never

> got a return call. Has anyone had success in emailing her?

>

> Kim C.

[Guest guest]

Absolutely phenomenal!!!!! Dr. H has always been the one saying " if

the child isn't gaining weight, no matter how many calories it is,

it probably isn't enough. " Your son is showing the incredible

caloric needs that so many of our kids have.

Yes, you can try writing Dr. H via email -- make sure to put your

son's name in the subject header. Do you have a copy of your visit

summary form from last year's convention? She put her email address

on it at the bottom. Otherwise, write me privately. I can not post

her address on yahoo.

Phone calls are difficult. Yadira is in a DIFFERENT BLDG!! And she

meets with Dr. H every Thursday to go over all calls, etc. and

emergencies she tries to reach her. But Yadira admitted that many

times they can't get through all the notes in one Thurs meeting, and

some are held for an additional week. It is not a good system right

now, and no one is happy about it there. They are trying to work

things out within the " Mt. Sinai " system...

Jenn

>

> I rarely get a chance to brag on here about an accomplishment, so

I am excited to

> announce that has gained 6 lbs. in a month! Yes, I wrote

that right... How did we

> do this? We increased 's calories via g-tube from 1500/day

to 2250/day (4 cans

> to 6 cans of Nutren 1.5) & put him on continuous feeds during the

day as well as the

> night. I looked back at 's growth record, and he has been

in the same weight

> range since he was 8 years old (that was 3 years & 4 months ago

folks!). I would still like

> him to gain a few more pounds & then I guess we will need to back

off on some of his

> feeds. I need to contact Dr. H & ask or her advice at this point.

Does anyone know what

> the best way to contact her is? I called her & left a message

twice last month, and never

> got a return call. Has anyone had success in emailing her?

>

> Kim C.