Re: Re: scared/ pink joyce

[Guest guest]

egg noodle, cottage cheese, sour cream and eggs are some of the basic ingredients in a kugel

farfel is broken up matzos usually sold around passover

i use it for stuffing, sprinkle in a cup of chicken soup

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: scared/ pink joyceTo: Breathe-Support Date: Monday, November 16, 2009, 12:28 PM

What is farfel? And, was going to send me a recipe for Kugel but never did..I also like the dairy kugel best...and the white fish is so delicious! Here, if it weren't for Costco I couldn't get lox or herring! And, I don't think any store here has ever seen a smoked white fish! Those sweet little chubs! Yummy!His mother also made this thing which was egg noodles and cottage cheese and sour cream I think and it was warm when served...have you ever heard of such a thing? I have tried to reproduce it but it doesn't taste like hers. Joyce rudy AZ birds

In a message dated 11/16/2009 9:01:32 A.M. US Mountain Standard Time, pinkrockybeach@ yahoo.com writes:

Rudy Joyce

i would rather have a piece of white fish than lox, but i like lox too

there are a million kugel recipes -- i like the dairy kugels better than the sweet kugels -- personal preference

i have even used my noodle kugel recipes with matza farfel during Passover -- separating the eggs, and the whipped egg whites, makes the farfel much lighter

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Stefani <sfshaner (AT) gmail (DOT) com>Subject: Re: scaredTo: Breathe-Support@ yahoogroups. comDate: Saturday, November 14, 2009, 8:01 PM

Hey, I have been there!! I spent 3 years after one pulmo-dude said I had "an interstitial disease" and left it at that. I wasn't on oxygen, but developed coping strategies for my perceived shortness of breath. Then I went to NJ in Denver and learned all kinds of stuff, and got an oximeter as members of this board have recommended. I have since conpleted pulmonary rehab and have a much better idea what I can and cannot do. I have also learned the breathing techniques and coping strategies to best handle "road blocks". I have a light weight luggage carrier I keep in my car for transporting anything and everything on wheels. I have a portable tank with the "demand sensor" delivery system. I have a handicap parking banner for when I need it. I do not always use it, it is just nice to have for those times I need it. I don't hesitate to stop and catch my breath if my sats drop below 88-90. I monitor constantly as I have not yet learned to distinguish

fatigue from low oxygen. Hang in there... you will get the hang of it. I think it is cool that you are keeping active with your baked goods for a good cause... And,... I am tipping the scales at 230 (forever trying to lose weight, but always trying to eat smart and healthy). Remember, you can be fit and fat. I know skinny-Minnies that are not fit at all. They also have lousy eating habits. Don't let it scare you... conquer your fears with knowledge!!Stefani 61 year old UtahnILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009>> Joyce,> I'll lay odds it's not your weight. I think it's your lungs and has little to

do with fat. You've lost 15 pounds and you're exercising regularly. You are taking care of yourself.> > You didn't mention whether you checked your sat...what was it? Do you know? Did you try turning your oxygen up a bit? It's frustrating when you set your self a task and then can't complete it because you can't breathe. All of us have had that experience and understand how you are feeling. It sounds as though you were trying to accomplish too much. Carrying baked goods, an incline and two flights of stairs, it would definitely be way too much for me. As hard as it is to adjust your thinking, you've got to do it. You haven't found your new normal yet. You will. You bumped up against a limitation today. That's likely all it is. You will learn to be more realistic when it comes to this kind of stuff but it takes time.> > As to what your friends are saying...are these the same friends

who were against you seeking a second opinion at NJH? Please, please, please stop listening to people who don't understand your lung disease. > > > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08>  >  > > > > > ____________ _________ _________ __> From: Joyce <BlueLiddy@. ..>> To: Breathe-Support@ yahoogroups. com> Sent: Sat, November 14, 2009 5:29:13 PM> Subject: scared> >  > I went to deliver some baked goods to a bake sale for one of my groups and had to park in the lower lot. Had to walk up a 2% incline and 2 flights of stairs and couldn't make it up

the second flight without assistance. I asked for help retrieving the other baked goods and was given it. I knew I couldn't do it again. It scared me. I don't undestand why I couldn't do it. My 02 was on constant and I still co8uldn't make it. I left feeling scared and frustrated and embarrassed and blue...I think this illness is going to kill me. On my last visit to NJH what they didn't rerun was the test where you ride a bike on an incline...my friend said it is becaus I'm fat and my diaphram can't expand but that is bull shit. Everyone says it is because I amfat. But I have lost 15 pounds. there were fatter people then me going in and out that place. Every one blames it onmy beign fat. I amso sick of that! That is the reason i didn't go to the doctor sooner because I wasw> fat. Everyone says it is because i am fat. Screw them! Anyway, I think I am going todie ofbeing fat....I think thefat is going tokill me.Joyce rudy AZ

birds>

[Guest guest]

Joyce Rudy...Hey, I'll send the recipe..

just had stuff to do with the grand daughters this week-end.

Farfel is crushed up Matza used during Passover for side dishes that

might have had bread crumbs

or noodles in non-Passover dished=s.

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild†PH/10/07

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara 

    

“I’m

gonna be iron like a lion in Zionâ€Â  Bob Marley

Vinca

Minor-periwinkle is my flower

 

 

BlueLiddy@... wrote:

 

What is farfel? And, was going to send me a recipe for

Kugel but never did..I also like the dairy kugel best...and the white

fish is so delicious! Here, if it weren't for Costco I couldn't get lox

or herring! And, I don't think any store here has ever seen a smoked

white fish! Those sweet little chubs! Yummy!His mother also made this

thing which was egg noodles and cottage cheese and sour cream I think

and it was warm when served...have you ever heard of such a thing? I

have tried to reproduce it but it doesn't taste like hers. Joyce rudy

AZ birds

 

In a message dated 11/16/2009 9:01:32 A.M. US Mountain Standard

Time, pinkrockybeach (AT) yahoo (DOT) com writes:

 

Rudy Joyce

i would rather have a piece of white fish than lox, but

i like lox too

 

there are a million kugel recipes -- i like the dairy

kugels better than the sweet kugels -- personal preference

 

i have even used my noodle kugel recipes with matza

farfel during Passover -- separating the eggs, and the whipped egg

whites, makes the farfel much lighter

Pink Joyce R (IPF 3/06)  IFA 5/09

Pennsylvania

Donate Life

Listed 1/09

Inactive 4/09

www.transplantfund.org

From: Stefani <sfshaner (AT) gmail (DOT) com>

Subject: Re: scared

To: Breathe-Support@ yahoogroups. com

Date: Saturday, November 14, 2009, 8:01 PM

 

Hey, I have been there!! I spent 3 years

after one pulmo-dude said I had "an interstitial disease" and left it

at that. I wasn't on oxygen, but developed coping strategies for my

perceived shortness of breath. Then I went to NJ in Denver and learned

all kinds of stuff, and got an oximeter as members of this board have

recommended. I have since conpleted pulmonary rehab and have a much

better idea what I can and cannot do. I have also learned the breathing

techniques and coping strategies to best handle "road blocks". I have a

light weight luggage carrier I keep in my car for transporting anything

and everything on wheels. I have a portable tank with the "demand

sensor" delivery system. I have a handicap parking banner for when I

need it. I do not always use it, it is just nice to have for those

times I need it. I don't hesitate to stop and catch my breath if my

sats drop below 88-90. I monitor constantly as I have not yet learned

to distinguish fatigue from low oxygen. Hang in there... you will get

the hang of it. I think it is cool that you are keeping active with

your baked goods for a good cause... And,... I am tipping the scales at

230 (forever trying to lose weight, but always trying to eat smart and

healthy). Remember, you can be fit and fat. I know skinny-Minnies that

are not fit at all. They also have lousy eating habits. Don't let it

scare you... conquer your fears with knowledge!!

Stefani 61 year old Utahn

ILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea

4/2009

>

> Joyce,

> I'll lay odds it's not your weight. I think it's your lungs and

has little to do with fat. You've lost 15 pounds and you're exercising

regularly. You are taking care of yourself.

>

> You didn't mention whether you checked your sat...what was it? Do

you know?  Did you try turning your oxygen up a bit?  It's

frustrating when you set your self a task and then can't complete it

because you can't breathe. All of us have had that experience and

understand how you are feeling. It sounds as though you were trying to

accomplish too much. Carrying baked goods, an incline and two flights

of stairs, it would definitely be way too much for me. As hard as it is

to adjust your thinking, you've got to do it. You haven't found your

new normal yet. You will. You bumped up against a limitation today.

That's likely all it is. You will learn to be more realistic when it

comes to this kind of stuff but it takes time.

>

> As to what your friends are saying...are these the same friends

who were against you seeking a second opinion at NJH? Please, please,

please stop listening to people who don't understand your lung disease.

>

>

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>  

>  

>

>

>

>

> ____________ _________ _________ __

> From: Joyce <BlueLiddy@. ..>

> To: Breathe-Support@ yahoogroups. com

> Sent: Sat, November 14, 2009 5:29:13 PM

> Subject: scared

>

>  

> I went to deliver some baked goods to a bake sale for one of my

groups and had to park in the lower lot. Had to walk up a 2% incline

and 2 flights of stairs and couldn't make it up the second flight

without assistance. I asked for help retrieving the other baked goods

and was given it. I knew I couldn't do it again. It scared me. I don't

undestand why I couldn't do it. My 02 was on constant and I still

co8uldn't make it. I left feeling scared and frustrated and embarrassed

and blue...I think this illness is going to kill me. On my last visit

to NJH what they didn't rerun was the test where you ride a bike on an

incline...my friend said it is becaus I'm fat and my diaphram can't

expand but that is bull shit. Everyone says it is because I amfat. But

I have lost 15 pounds. there were fatter people then me going in and

out that place. Every one blames it onmy beign fat. I amso sick of

that! That is the reason i didn't go to the doctor sooner because I wasw

> fat. Everyone says it is because i am fat. Screw them! Anyway, I

think I am going todie ofbeing fat....I think thefat is going tokill

me.Joyce rudy AZ birds

>

[Guest guest]

MMMM This sounds good how do you make it exactly??? I love all those ingredients! Thxxxx!!Donna(Iowa)To: Breathe-Support Sent: Mon, November 16, 2009 1:37:35 PMSubject: Re: Re: scared/ pink joyce

Joyce Rudy, The noodle dish you

mentioned... elbow noodles, cream cheese, cottage cheese, sour cream and

butter

and lots of pepper...it could kill you...but it's so-o-o-o good! I

never had a recipe for it..just make it by taste!

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild†PH/10/07

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion†Bob Marley

Vinca

Minor-periwinkle is my flower

BlueLiddy (AT) aol (DOT) com wrote:

What is farfel? And, was going to send me a recipe for

Kugel but never did..I also like the dairy kugel best...and the white

fish is so delicious! Here, if it weren't for Costco I couldn't get lox

or herring! And, I don't think any store here has ever seen a smoked

white fish! Those sweet little chubs! Yummy!His mother also made this

thing which was egg noodles and cottage cheese and sour cream I think

and it was warm when served...have you ever heard of such a thing? I

have tried to reproduce it but it doesn't taste like hers. Joyce rudy

AZ birds

In a message dated 11/16/2009 9:01:32 A.M. US Mountain Standard

Time, pinkrockybeach@ yahoo.com writes:

Rudy Joyce

i would rather have a piece of white fish than lox, but

i like lox too

there are a million kugel recipes -- i like the dairy

kugels better than the sweet kugels -- personal preference

i have even used my noodle kugel recipes with matza

farfel during Passover -- separating the eggs, and the whipped egg

whites, makes the farfel much lighter

Pink Joyce R (IPF 3/06) IFA 5/09

Pennsylvania

Donate Life

Listed 1/09

Inactive 4/09

www.transplantfund. org

From: Stefani <sfshaner (AT) gmail (DOT) com>

Subject: Re: scared

To: Breathe-Support@ yahoogroups. com

Date: Saturday, November 14, 2009, 8:01 PM

Hey, I have been there!! I spent 3 years

after one pulmo-dude said I had "an interstitial disease" and left it

at that. I wasn't on oxygen, but developed coping strategies for my

perceived shortness of breath. Then I went to NJ in Denver and learned

all kinds of stuff, and got an oximeter as members of this board have

recommended. I have since conpleted pulmonary rehab and have a much

better idea what I can and cannot do. I have also learned the breathing

techniques and coping strategies to best handle "road blocks". I have a

light weight luggage carrier I keep in my car for transporting anything

and everything on wheels. I have a portable tank with the "demand

sensor" delivery system. I have a handicap parking banner for when I

need it. I do not always use it, it is just nice to have for those

times I need it. I don't hesitate to stop and catch my breath if my

sats drop below 88-90. I monitor constantly as I have not yet learned

to distinguish fatigue from low oxygen. Hang in there... you will get

the hang of it. I think it is cool that you are keeping active with

your baked goods for a good cause... And,... I am tipping the scales at

230 (forever trying to lose weight, but always trying to eat smart and

healthy). Remember, you can be fit and fat. I know skinny-Minnies that

are not fit at all. They also have lousy eating habits. Don't let it

scare you... conquer your fears with knowledge!!

Stefani 61 year old Utahn

ILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea

4/2009

>

> Joyce,

> I'll lay odds it's not your weight. I think it's your lungs and

has little to do with fat. You've lost 15 pounds and you're exercising

regularly. You are taking care of yourself.

>

> You didn't mention whether you checked your sat...what was it? Do

you know? Did you try turning your oxygen up a bit? It's

frustrating when you set your self a task and then can't complete it

because you can't breathe. All of us have had that experience and

understand how you are feeling. It sounds as though you were trying to

accomplish too much. Carrying baked goods, an incline and two flights

of stairs, it would definitely be way too much for me. As hard as it is

to adjust your thinking, you've got to do it. You haven't found your

new normal yet. You will. You bumped up against a limitation today.

That's likely all it is. You will learn to be more realistic when it

comes to this kind of stuff but it takes time.

>

> As to what your friends are saying...are these the same friends

who were against you seeking a second opinion at NJH? Please, please,

please stop listening to people who don't understand your lung disease.

>

>

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

> Â

> Â

>

>

>

>

> ____________ _________ _________ __

> From: Joyce <BlueLiddy@. ..>

> To: Breathe-Support@ yahoogroups. com

> Sent: Sat, November 14, 2009 5:29:13 PM

> Subject: scared

>

> Â

> I went to deliver some baked goods to a bake sale for one of my

groups and had to park in the lower lot. Had to walk up a 2% incline

and 2 flights of stairs and couldn't make it up the second flight

without assistance. I asked for help retrieving the other baked goods

and was given it. I knew I couldn't do it again. It scared me. I don't

undestand why I couldn't do it. My 02 was on constant and I still

co8uldn't make it. I left feeling scared and frustrated and embarrassed

and blue...I think this illness is going to kill me. On my last visit

to NJH what they didn't rerun was the test where you ride a bike on an

incline...my friend said it is becaus I'm fat and my diaphram can't

expand but that is bull shit. Everyone says it is because I amfat. But

I have lost 15 pounds. there were fatter people then me going in and

out that place. Every one blames it onmy beign fat. I amso sick of

that! That is the reason i didn't go to the doctor sooner because I wasw

> fat. Everyone says it is because i am fat. Screw them! Anyway, I

think I am going todie ofbeing fat....I think thefat is going tokill

me.Joyce rudy AZ birds

>

[Guest guest]

Yes! That is what was left out! cream cheese! And, it was sooo good! And, yes, lots and lots of pepper! I just loved it!!!

MMMM This sounds good how do you make it exactly??? I love all those ingredients! Thxxxx!!Donna(Iowa)

From: Zion <ljz741 (AT) verizon (DOT) net>To: Breathe-Support Sent: Mon, November 16, 2009 1:37:35 PMSubject: Re: Re: scared/ pink joyce

Joyce Rudy, The noodle dish you mentioned... elbow noodles, cream cheese, cottage cheese, sour cream and butterand lots of pepper...it could kill you...but it's so-o-o-o good! I never had a recipe for it..just make it by taste!

Z 65, fibriotic NSIP/05/PA

And “mild†PH/10/07

No, NSIP was not self-inflicted…I never smoked!

Potter, reader,carousel lover and MomMom to Darah and Sara

“I’m gonna be iron like a lion in Zion†Bob Marley

Vinca Minor-periwinkle is my flower

BlueLiddy (AT) aol (DOT) com wrote:

What is farfel? And, was going to send me a recipe for Kugel but never did..I also like the dairy kugel best...and the white fish is so delicious! Here, if it weren't for Costco I couldn't get lox or herring! And, I don't think any store here has ever seen a smoked white fish! Those sweet little chubs! Yummy!His mother also made this thing which was egg noodles and cottage cheese and sour cream I think and it was warm when served...have you ever heard of such a thing? I have tried to reproduce it but it doesn't taste like hers. Joyce rudy AZ birds

In a message dated 11/16/2009 9:01:32 A.M. US Mountain Standard Time, pinkrockybeach@ yahoo.com writes:

Rudy Joyce

i would rather have a piece of white fish than lox, but i like lox too

there are a million kugel recipes -- i like the dairy kugels better than the sweet kugels -- personal preference

i have even used my noodle kugel recipes with matza farfel during Passover -- separating the eggs, and the whipped egg whites, makes the farfel much lighter

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Stefani <sfshaner (AT) gmail (DOT) com>Subject: Re: scaredTo: Breathe-Support@ yahoogroups. comDate: Saturday, November 14, 2009, 8:01 PM

Hey, I have been there!! I spent 3 years after one pulmo-dude said I had "an interstitial disease" and left it at that. I wasn't on oxygen, but developed coping strategies for my perceived shortness of breath. Then I went to NJ in Denver and learned all kinds of stuff, and got an oximeter as members of this board have recommended. I have since conpleted pulmonary rehab and have a much better idea what I can and cannot do. I have also learned the breathing techniques and coping strategies to best handle "road blocks". I have a light weight luggage carrier I keep in my car for transporting anything and everything on wheels. I have a portable tank with the "demand sensor" delivery system. I have a handicap parking banner for when I need it. I do not always use it, it is just nice to have for those times I need it. I don't hesitate to stop and catch my breath if my sats drop below 88-90. I monitor constantly as I have not yet learned to distinguish fatigue from low oxygen. Hang in there... you will get the hang of it. I think it is cool that you are keeping active with your baked goods for a good cause... And,... I am tipping the scales at 230 (forever trying to lose weight, but always trying to eat smart and healthy). Remember, you can be fit and fat. I know skinny-Minnies that are not fit at all. They also have lousy eating habits. Don't let it scare you... conquer your fears with knowledge!!Stefani 61 year old UtahnILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009>> Joyce,> I'll lay odds it's not your weight. I think it's your lungs and has little to do with fat. You've lost 15 pounds and you're exercising regularly. You are taking care of yourself.> > You didn't mention whether you checked your sat...what was it? Do you know? Did you try turning your oxygen up a bit? It's frustrating when you set your self a task and then can't complete it because you can't breathe. All of us have had that experience and understand how you are feeling. It sounds as though you were trying to accomplish too much. Carrying baked goods, an incline and two flights of stairs, it would definitely be way too much for me. As hard as it is to adjust your thinking, you've got to do it. You haven't found your new normal yet. You will. You bumped up against a limitation today. That's likely all it is. You will learn to be more realistic when it comes to this kind of stuff but it takes time.> > As to what your friends are saying...are these the same friends who were against you seeking a second opinion at NJH? Please, please, please stop listening to people who don't understand your lung disease. > > > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08>  >  > > > > > ____________ _________ _________ __> From: Joyce <BlueLiddy@. ..>> To: Breathe-Support@ yahoogroups. com> Sent: Sat, November 14, 2009 5:29:13 PM> Subject: scared> >  > I went to deliver some baked goods to a bake sale for one of my groups and had to park in the lower lot. Had to walk up a 2% incline and 2 flights of stairs and couldn't make it up the second flight without assistance. I asked for help retrieving the other baked goods and was given it. I knew I couldn't do it again. It scared me. I don't undestand why I couldn't do it. My 02 was on constant and I still co8uldn't make it. I left feeling scared and frustrated and embarrassed and blue...I think this illness is going to kill me. On my last visit to NJH what they didn't rerun was the test where you ride a bike on an incline...my friend said it is becaus I'm fat and my diaphram can't expand but that is bull shit. Everyone says it is because I amfat. But I have lost 15 pounds. there were fatter people then me going in and out that place. Every one blames it onmy beign fat. I amso sick of that! That is the reason i didn't go to the doctor sooner because I wasw> fat. Everyone says it is because i am fat. Screw them! Anyway, I think I am going todie ofbeing fat....I think thefat is going tokill me.Joyce rudy AZ birds>

[Guest guest]

Matzos I had to learn to make fried matzo...boy is that good! Stuart just loved it! He loved lox and eggs but I hated it...but the fried matzo was delicious and my son loved it so much! LOL Joyce Rudy AZ birds

egg noodle, cottage cheese, sour cream and eggs are some of the basic ingredients in a kugel

farfel is broken up matzos usually sold around passover

i use it for stuffing, sprinkle in a cup of chicken soup

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org--- On Mon, 11/16/09, BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com> wrote:

From: BlueLiddy (AT) aol (DOT) com <BlueLiddy (AT) aol (DOT) com>Subject: Re: Re: scared/ pink joyceTo: Breathe-Support Date: Monday, November 16, 2009, 12:28 PM

What is farfel? And, was going to send me a recipe for Kugel but never did..I also like the dairy kugel best...and the white fish is so delicious! Here, if it weren't for Costco I couldn't get lox or herring! And, I don't think any store here has ever seen a smoked white fish! Those sweet little chubs! Yummy!His mother also made this thing which was egg noodles and cottage cheese and sour cream I think and it was warm when served...have you ever heard of such a thing? I have tried to reproduce it but it doesn't taste like hers. Joyce rudy AZ birds

In a message dated 11/16/2009 9:01:32 A.M. US Mountain Standard Time, pinkrockybeach@ yahoo.com writes:

Rudy Joyce

i would rather have a piece of white fish than lox, but i like lox too

there are a million kugel recipes -- i like the dairy kugels better than the sweet kugels -- personal preference

i have even used my noodle kugel recipes with matza farfel during Passover -- separating the eggs, and the whipped egg whites, makes the farfel much lighter

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Stefani <sfshaner (AT) gmail (DOT) com>Subject: Re: scaredTo: Breathe-Support@ yahoogroups. comDate: Saturday, November 14, 2009, 8:01 PM

Hey, I have been there!! I spent 3 years after one pulmo-dude said I had "an interstitial disease" and left it at that. I wasn't on oxygen, but developed coping strategies for my perceived shortness of breath. Then I went to NJ in Denver and learned all kinds of stuff, and got an oximeter as members of this board have recommended. I have since conpleted pulmonary rehab and have a much better idea what I can and cannot do. I have also learned the breathing techniques and coping strategies to best handle "road blocks". I have a light weight luggage carrier I keep in my car for transporting anything and everything on wheels. I have a portable tank with the "demand sensor" delivery system. I have a handicap parking banner for when I need it. I do not always use it, it is just nice to have for those times I need it. I don't hesitate to stop and catch my breath if my sats drop below 88-90. I monitor constantly as I have not yet learned to distinguish fatigue from low oxygen. Hang in there... you will get the hang of it. I think it is cool that you are keeping active with your baked goods for a good cause... And,... I am tipping the scales at 230 (forever trying to lose weight, but always trying to eat smart and healthy). Remember, you can be fit and fat. I know skinny-Minnies that are not fit at all. They also have lousy eating habits. Don't let it scare you... conquer your fears with knowledge!!Stefani 61 year old UtahnILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009>> Joyce,> I'll lay odds it's not your weight. I think it's your lungs and has little to do with fat. You've lost 15 pounds and you're exercising regularly. You are taking care of yourself.> > You didn't mention whether you checked your sat...what was it? Do you know? Did you try turning your oxygen up a bit? It's frustrating when you set your self a task and then can't complete it because you can't breathe. All of us have had that experience and understand how you are feeling. It sounds as though you were trying to accomplish too much. Carrying baked goods, an incline and two flights of stairs, it would definitely be way too much for me. As hard as it is to adjust your thinking, you've got to do it. You haven't found your new normal yet. You will. You bumped up against a limitation today. That's likely all it is. You will learn to be more realistic when it comes to this kind of stuff but it takes time.> > As to what your friends are saying...are these the same friends who were against you seeking a second opinion at NJH? Please, please, please stop listening to people who don't understand your lung disease. > > > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08>  >  > > > > > ____________ _________ _________ __> From: Joyce <BlueLiddy@. ..>> To: Breathe-Support@ yahoogroups. com> Sent: Sat, November 14, 2009 5:29:13 PM> Subject: scared> >  > I went to deliver some baked goods to a bake sale for one of my groups and had to park in the lower lot. Had to walk up a 2% incline and 2 flights of stairs and couldn't make it up the second flight without assistance. I asked for help retrieving the other baked goods and was given it. I knew I couldn't do it again. It scared me. I don't undestand why I couldn't do it. My 02 was on constant and I still co8uldn't make it. I left feeling scared and frustrated and embarrassed and blue...I think this illness is going to kill me. On my last visit to NJH what they didn't rerun was the test where you ride a bike on an incline...my friend said it is becaus I'm fat and my diaphram can't expand but that is bull shit. Everyone says it is because I amfat. But I have lost 15 pounds. there were fatter people then me going in and out that place. Every one blames it onmy beign fat. I amso sick of that! That is the reason i didn't go to the doctor sooner because I wasw> fat. Everyone says it is because i am fat. Screw them! Anyway, I think I am going todie ofbeing fat....I think thefat is going tokill me.Joyce rudy AZ birds>

[Guest guest]

you don't use eggs in your Kugels?

I use between 4 and 6 eggs per pound of noodles

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: scared/ pink joyceTo: Breathe-Support Date: Monday, November 16, 2009, 2:37 PM

Joyce Rudy, The noodle dish you mentioned... elbow noodles, cream cheese, cottage cheese, sour cream and butterand lots of pepper...it could kill you...but it's so-o-o-o good! I never had a recipe for it..just make it by taste!

Z 65, fibriotic NSIP/05/PA

And “mild†PH/10/07

No, NSIP was not self-inflicted…I never smoked!

Potter, reader,carousel lover and MomMom to Darah and Sara

“I’m gonna be iron like a lion in Zion†Bob Marley

Vinca Minor-periwinkle is my flower

BlueLiddy (AT) aol (DOT) com wrote:

What is farfel? And, was going to send me a recipe for Kugel but never did..I also like the dairy kugel best...and the white fish is so delicious! Here, if it weren't for Costco I couldn't get lox or herring! And, I don't think any store here has ever seen a smoked white fish! Those sweet little chubs! Yummy!His mother also made this thing which was egg noodles and cottage cheese and sour cream I think and it was warm when served...have you ever heard of such a thing? I have tried to reproduce it but it doesn't taste like hers. Joyce rudy AZ birds

In a message dated 11/16/2009 9:01:32 A.M. US Mountain Standard Time, pinkrockybeach@ yahoo.com writes:

Rudy Joyce

i would rather have a piece of white fish than lox, but i like lox too

there are a million kugel recipes -- i like the dairy kugels better than the sweet kugels -- personal preference

i have even used my noodle kugel recipes with matza farfel during Passover -- separating the eggs, and the whipped egg whites, makes the farfel much lighter

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Stefani <sfshaner (AT) gmail (DOT) com>Subject: Re: scaredTo: Breathe-Support@ yahoogroups. comDate: Saturday, November 14, 2009, 8:01 PM

Hey, I have been there!! I spent 3 years after one pulmo-dude said I had "an interstitial disease" and left it at that. I wasn't on oxygen, but developed coping strategies for my perceived shortness of breath. Then I went to NJ in Denver and learned all kinds of stuff, and got an oximeter as members of this board have recommended. I have since conpleted pulmonary rehab and have a much better idea what I can and cannot do. I have also learned the breathing techniques and coping strategies to best handle "road blocks". I have a light weight luggage carrier I keep in my car for transporting anything and everything on wheels. I have a portable tank with the "demand sensor" delivery system. I have a handicap parking banner for when I need it. I do not always use it, it is just nice to have for those times I need it. I don't hesitate to stop and catch my breath if my sats drop below 88-90. I monitor constantly as I have not yet learned to distinguish

fatigue from low oxygen. Hang in there... you will get the hang of it. I think it is cool that you are keeping active with your baked goods for a good cause... And,... I am tipping the scales at 230 (forever trying to lose weight, but always trying to eat smart and healthy). Remember, you can be fit and fat. I know skinny-Minnies that are not fit at all. They also have lousy eating habits. Don't let it scare you... conquer your fears with knowledge!!Stefani 61 year old UtahnILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009>> Joyce,> I'll lay odds it's not your weight. I think it's your lungs and has little to do with fat. You've lost 15 pounds and you're exercising regularly. You are taking care of yourself.> > You didn't mention whether you checked your sat...what was it? Do you know? Did you try turning your oxygen up a bit? It's frustrating when you set your self a task and then can't complete it because you can't breathe. All of us have had that experience and understand how you are feeling. It sounds as though you were trying to accomplish too much. Carrying baked goods, an incline and two flights of stairs, it would definitely be way too much for me. As hard as it is to adjust your thinking, you've got to do it. You haven't found your new normal yet. You will. You bumped up against a limitation today. That's likely all it is.

You will learn to be more realistic when it comes to this kind of stuff but it takes time.> > As to what your friends are saying...are these the same friends who were against you seeking a second opinion at NJH? Please, please, please stop listening to people who don't understand your lung disease. > > > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08>  >  > > > > > ____________ _________ _________ __> From: Joyce <BlueLiddy@. ..>> To: Breathe-Support@ yahoogroups. com> Sent: Sat, November 14, 2009 5:29:13 PM> Subject: scared> >  > I went to deliver some baked goods to a bake sale for one of my groups and had to park in the lower lot. Had to walk up a 2% incline and 2 flights of stairs and couldn't make it up the second flight without assistance. I asked for help retrieving the other baked goods and was given it. I knew I couldn't do it again. It scared me. I don't undestand why I couldn't do it. My 02 was on constant and I still co8uldn't make it. I left feeling scared and frustrated and embarrassed and blue...I think this illness is going to kill me. On my last visit to NJH what they didn't rerun was the test where you ride a bike on an incline...my friend said it is becaus I'm fat and my diaphram can't expand but that is bull shit. Everyone says it is because I amfat. But I have lost 15 pounds. there

were fatter people then me going in and out that place. Every one blames it onmy beign fat. I amso sick of that! That is the reason i didn't go to the doctor sooner because I wasw> fat. Everyone says it is because i am fat. Screw them! Anyway, I think I am going todie ofbeing fat....I think thefat is going tokill me.Joyce rudy AZ birds>__________________________________________________

[Guest guest]

sorry

thought you were talking about kugel

looks more like creamettes and cottage cheese

my mother used to make

i have never been successful with it

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: scared/ pink joyceTo: Breathe-Support Date: Monday, November 16, 2009, 2:37 PM

Joyce Rudy, The noodle dish you mentioned... elbow noodles, cream cheese, cottage cheese, sour cream and butterand lots of pepper...it could kill you...but it's so-o-o-o good! I never had a recipe for it..just make it by taste!

Z 65, fibriotic NSIP/05/PA

And “mild†PH/10/07

No, NSIP was not self-inflicted…I never smoked!

Potter, reader,carousel lover and MomMom to Darah and Sara

“I’m gonna be iron like a lion in Zion†Bob Marley

Vinca Minor-periwinkle is my flower

BlueLiddy (AT) aol (DOT) com wrote:

What is farfel? And, was going to send me a recipe for Kugel but never did..I also like the dairy kugel best...and the white fish is so delicious! Here, if it weren't for Costco I couldn't get lox or herring! And, I don't think any store here has ever seen a smoked white fish! Those sweet little chubs! Yummy!His mother also made this thing which was egg noodles and cottage cheese and sour cream I think and it was warm when served...have you ever heard of such a thing? I have tried to reproduce it but it doesn't taste like hers. Joyce rudy AZ birds

In a message dated 11/16/2009 9:01:32 A.M. US Mountain Standard Time, pinkrockybeach@ yahoo.com writes:

Rudy Joyce

i would rather have a piece of white fish than lox, but i like lox too

there are a million kugel recipes -- i like the dairy kugels better than the sweet kugels -- personal preference

i have even used my noodle kugel recipes with matza farfel during Passover -- separating the eggs, and the whipped egg whites, makes the farfel much lighter

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Stefani <sfshaner (AT) gmail (DOT) com>Subject: Re: scaredTo: Breathe-Support@ yahoogroups. comDate: Saturday, November 14, 2009, 8:01 PM

Hey, I have been there!! I spent 3 years after one pulmo-dude said I had "an interstitial disease" and left it at that. I wasn't on oxygen, but developed coping strategies for my perceived shortness of breath. Then I went to NJ in Denver and learned all kinds of stuff, and got an oximeter as members of this board have recommended. I have since conpleted pulmonary rehab and have a much better idea what I can and cannot do. I have also learned the breathing techniques and coping strategies to best handle "road blocks". I have a light weight luggage carrier I keep in my car for transporting anything and everything on wheels. I have a portable tank with the "demand sensor" delivery system. I have a handicap parking banner for when I need it. I do not always use it, it is just nice to have for those times I need it. I don't hesitate to stop and catch my breath if my sats drop below 88-90. I monitor constantly as I have not yet learned to distinguish

fatigue from low oxygen. Hang in there... you will get the hang of it. I think it is cool that you are keeping active with your baked goods for a good cause... And,... I am tipping the scales at 230 (forever trying to lose weight, but always trying to eat smart and healthy). Remember, you can be fit and fat. I know skinny-Minnies that are not fit at all. They also have lousy eating habits. Don't let it scare you... conquer your fears with knowledge!!Stefani 61 year old UtahnILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009>> Joyce,> I'll lay odds it's not your weight. I think it's your lungs and has little to do with fat. You've lost 15 pounds and you're exercising regularly. You are taking care of yourself.> > You didn't mention whether you checked your sat...what was it? Do you know? Did you try turning your oxygen up a bit? It's frustrating when you set your self a task and then can't complete it because you can't breathe. All of us have had that experience and understand how you are feeling. It sounds as though you were trying to accomplish too much. Carrying baked goods, an incline and two flights of stairs, it would definitely be way too much for me. As hard as it is to adjust your thinking, you've got to do it. You haven't found your new normal yet. You will. You bumped up against a limitation today. That's likely all it is.

You will learn to be more realistic when it comes to this kind of stuff but it takes time.> > As to what your friends are saying...are these the same friends who were against you seeking a second opinion at NJH? Please, please, please stop listening to people who don't understand your lung disease. > > > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08>  >  > > > > > ____________ _________ _________ __> From: Joyce <BlueLiddy@. ..>> To: Breathe-Support@ yahoogroups. com> Sent: Sat, November 14, 2009 5:29:13 PM> Subject: scared> >  > I went to deliver some baked goods to a bake sale for one of my groups and had to park in the lower lot. Had to walk up a 2% incline and 2 flights of stairs and couldn't make it up the second flight without assistance. I asked for help retrieving the other baked goods and was given it. I knew I couldn't do it again. It scared me. I don't undestand why I couldn't do it. My 02 was on constant and I still co8uldn't make it. I left feeling scared and frustrated and embarrassed and blue...I think this illness is going to kill me. On my last visit to NJH what they didn't rerun was the test where you ride a bike on an incline...my friend said it is becaus I'm fat and my diaphram can't expand but that is bull shit. Everyone says it is because I amfat. But I have lost 15 pounds. there

were fatter people then me going in and out that place. Every one blames it onmy beign fat. I amso sick of that! That is the reason i didn't go to the doctor sooner because I wasw> fat. Everyone says it is because i am fat. Screw them! Anyway, I think I am going todie ofbeing fat....I think thefat is going tokill me.Joyce rudy AZ birds>

[Guest guest]

how much of each item do you use?

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: scared/ pink joyceTo: Breathe-Support Date: Monday, November 16, 2009, 2:37 PM

Joyce Rudy, The noodle dish you mentioned... elbow noodles, cream cheese, cottage cheese, sour cream and butterand lots of pepper...it could kill you...but it's so-o-o-o good! I never had a recipe for it..just make it by taste!

Z 65, fibriotic NSIP/05/PA

And “mild†PH/10/07

No, NSIP was not self-inflicted…I never smoked!

Potter, reader,carousel lover and MomMom to Darah and Sara

“I’m gonna be iron like a lion in Zion†Bob Marley

Vinca Minor-periwinkle is my flower

BlueLiddy (AT) aol (DOT) com wrote:

What is farfel? And, was going to send me a recipe for Kugel but never did..I also like the dairy kugel best...and the white fish is so delicious! Here, if it weren't for Costco I couldn't get lox or herring! And, I don't think any store here has ever seen a smoked white fish! Those sweet little chubs! Yummy!His mother also made this thing which was egg noodles and cottage cheese and sour cream I think and it was warm when served...have you ever heard of such a thing? I have tried to reproduce it but it doesn't taste like hers. Joyce rudy AZ birds

In a message dated 11/16/2009 9:01:32 A.M. US Mountain Standard Time, pinkrockybeach@ yahoo.com writes:

Rudy Joyce

i would rather have a piece of white fish than lox, but i like lox too

there are a million kugel recipes -- i like the dairy kugels better than the sweet kugels -- personal preference

i have even used my noodle kugel recipes with matza farfel during Passover -- separating the eggs, and the whipped egg whites, makes the farfel much lighter

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Stefani <sfshaner (AT) gmail (DOT) com>Subject: Re: scaredTo: Breathe-Support@ yahoogroups. comDate: Saturday, November 14, 2009, 8:01 PM

Hey, I have been there!! I spent 3 years after one pulmo-dude said I had "an interstitial disease" and left it at that. I wasn't on oxygen, but developed coping strategies for my perceived shortness of breath. Then I went to NJ in Denver and learned all kinds of stuff, and got an oximeter as members of this board have recommended. I have since conpleted pulmonary rehab and have a much better idea what I can and cannot do. I have also learned the breathing techniques and coping strategies to best handle "road blocks". I have a light weight luggage carrier I keep in my car for transporting anything and everything on wheels. I have a portable tank with the "demand sensor" delivery system. I have a handicap parking banner for when I need it. I do not always use it, it is just nice to have for those times I need it. I don't hesitate to stop and catch my breath if my sats drop below 88-90. I monitor constantly as I have not yet learned to distinguish

fatigue from low oxygen. Hang in there... you will get the hang of it. I think it is cool that you are keeping active with your baked goods for a good cause... And,... I am tipping the scales at 230 (forever trying to lose weight, but always trying to eat smart and healthy). Remember, you can be fit and fat. I know skinny-Minnies that are not fit at all. They also have lousy eating habits. Don't let it scare you... conquer your fears with knowledge!!Stefani 61 year old UtahnILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009>> Joyce,> I'll lay odds it's not your weight. I think it's your lungs and has little to do with fat. You've lost 15 pounds and you're exercising regularly. You are taking care of yourself.> > You didn't mention whether you checked your sat...what was it? Do you know? Did you try turning your oxygen up a bit? It's frustrating when you set your self a task and then can't complete it because you can't breathe. All of us have had that experience and understand how you are feeling. It sounds as though you were trying to accomplish too much. Carrying baked goods, an incline and two flights of stairs, it would definitely be way too much for me. As hard as it is to adjust your thinking, you've got to do it. You haven't found your new normal yet. You will. You bumped up against a limitation today. That's likely all it is.

You will learn to be more realistic when it comes to this kind of stuff but it takes time.> > As to what your friends are saying...are these the same friends who were against you seeking a second opinion at NJH? Please, please, please stop listening to people who don't understand your lung disease. > > > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08>  >  > > > > > ____________ _________ _________ __> From: Joyce <BlueLiddy@. ..>> To: Breathe-Support@ yahoogroups. com> Sent: Sat, November 14, 2009 5:29:13 PM> Subject: scared> >  > I went to deliver some baked goods to a bake sale for one of my groups and had to park in the lower lot. Had to walk up a 2% incline and 2 flights of stairs and couldn't make it up the second flight without assistance. I asked for help retrieving the other baked goods and was given it. I knew I couldn't do it again. It scared me. I don't undestand why I couldn't do it. My 02 was on constant and I still co8uldn't make it. I left feeling scared and frustrated and embarrassed and blue...I think this illness is going to kill me. On my last visit to NJH what they didn't rerun was the test where you ride a bike on an incline...my friend said it is becaus I'm fat and my diaphram can't expand but that is bull shit. Everyone says it is because I amfat. But I have lost 15 pounds. there

were fatter people then me going in and out that place. Every one blames it onmy beign fat. I amso sick of that! That is the reason i didn't go to the doctor sooner because I wasw> fat. Everyone says it is because i am fat. Screw them! Anyway, I think I am going todie ofbeing fat....I think thefat is going tokill me.Joyce rudy AZ birds>