Re:Re: Acceptance- choices- coffee

[Guest guest]

I’ve

had my share of bad experiences with the medical community, but I have found it

extremely helpful to go through tests and get the diagnoses. Once I know

what I’m dealing with I can then do the research and figure out how I can

cope best, learn how to live with the chronic symptoms, do as much as I can to encourage

healing of my body systems.

Colonoscopy

is an important tool, even if it only eliminates the more common possibilities.

It is reassuring to know you don’t have an IBD or cancer even if there isn’t

anything identified that is the cause of chronic symptoms. I had to find

the strength to see several gastroenterologists before I found my current one

who was able to rapidly pinpoint the possible causes of my severe symptoms

because I’d already been through the standard tests. So he

could order the more uncommon tests which identified my digestive dysfunctions.

In my case there isn’t a whole lot to be done, but in my search for

strategies to cope and minimize my chronic symptoms I came across SCD, and have

been able to stabilize my digestive system and manage my symptoms enough so I

can lead a fairly normal life.

Since

my digestive dysfunction diagnosis my body has gone on to develop other

conditions in the neurological territory. All part of a gradual

deterioration of my nervous systems. Somewhat frustrating and worrying,

but I can cope. It helped when my neurologist gave me a thorough work-up,

so I knew what I was dealing with even if no test has identified the exact

cause of the decline. There are still a lot of unknowns when it comes to

our body’s nervous systems. But I get the diagnosis label for

various conditions, so that gives me a starting place for my research.

I

do check in with my doctors regularly, to get the blood work-ups so I know what

I’m dealing with. I don’t look to them for help in my

day-to-day life, but I do seek their suggestions when I develop new symptoms,

or my current symptoms get worse. I do a lot of research so I can discuss

things with my doctors (speaking the same terminology helps!), make wise

decisions on what my diet needs to be, what supplements are most helpful for

me, and so on.

My

body is on its own path of deterioration. All I can do is learn to live

with it, try to slow it down. Eating a healthy diet that SCD provides is

one of the strategies I use to cope, and it is one of the best decisions I made

in terms of my health. Even if I can only eat about half of the permitted

foods [grin]

Kim M.

SCD 6 years

Sphincter of Oddi dysfunction 6+ years

neurological & spinal deterioration 3+ years

>>>>>>>>>>>>>>>>>>>>>>>>>>>

So

many of you have written about the negative experiences you have had

with the Medical world, of which I am not inclinded to trust. In all

honesty how much has the Western Medical world helped you. Every time I

turn, some doctor is telling me I must get a colonoscopy. If I don't

want to go on meds and I don't want to treat it with their solutions

why?