Guest guest Posted September 20, 2009 Report Share Posted September 20, 2009  HI GROUP. yOU HAVEN'T HEARD FROM ME FOR A-WHILE. I READ YOUR POSTS AND SHARE IN YOUR FLUSTRATIONS ABOUT DOCTORS WHO CAN DO NOTHING TO HELP US EXCEPT WRITE RXS AND SCULDULE OUR NEXT APP. MAKES ME FEEL HELPLESS. i HAVE FOUND A SUPPLEMENT THAT HELPS ME FEEL BETTER. hAVE BEEN IN PAIN FOR A LONG TIME. i FEEL GOOD NOW (AFTER A COUPLE SHOTS OF VODKA) IT'S SAD TO READ YOUR POSTS ABOUT ALL THE SUFFERING THIS GROUP IS GOING THRU. I HAVE LIVED A HARD LIFE AND FEEL IT'S ABOUT OVER. I'M 75 AND STILL HAVE A WORKING MIND SET. NOT VERY SMART. BUT I WORK SMART. TRYING TO LIVE OUT THE REST OF MY DAYS DOING WHAT I LIKE TO DO. GOING TO BE WORKING ON SETTING UP CO ON EBAY. WHEN IT'S GOING I'LL TELL YOU WHAT IT IS SO YOU CAN HELP ME TAILOR IT TO MAKE IT BETTER. I DO NOT LIKE TO TALK ABOUT NEGATIVE STUFF. IT'S NOT GOOD FOR MY MORRAL. WRITE ME A NOTE. GREY IPF 05 sex kills> > > > > > Ok I need more brain power than I have. If IPF is not enuff, now thay tell me I have Pulmonay Artery hyepr tension, and something called apical hypekensis. Also mentioned the left vent at the bottom of my heart is damaged and not beating right. Stated looks like I had a silent heart attack> > > > That is what they got from reading the echo and the ct scan. They could not view the right side of my heart cause my big ass old lungs block it.> > > > Now can someone tell me what this crap means-other than they would shoot me if i was horse> > > > Oh yea the treatment they want to give me is daily virgra, sucide by sex- go figure I was just kidding when I said I wanted to go out that way> >> Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (9) Recent Activity 3 New Members 1 New Photos 1 New FilesVisit Your Group Drive Traffic Sponsored Search can help increase your site traffic. Weight Loss Group on Yahoo! Groups Get support and make friends online. Yahoo! Groups Small Business Group Share experiences with owners like you Need to Reply? Click one of the "Reply" links to respond to a specific message in the Daily Digest. Create New Topic | Visit Your Group on the Web Messages | Photos | Database | Polls | Members | Calendar MARKETPLACE Mom Power: Discover the community of moms doing more for their families, for the world and for each other Change settings via the Web (Yahoo! ID required) Change settings via email: Switch delivery to Individual | Switch format to Traditional Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2009 Report Share Posted September 20, 2009 Hi GRAY my friend, What a pleasure to see a post from you. I have ask about you to anyone I thought might know you. I am sorry you are having so much pain. How's the breathing ? How much 02 do you use? I am excited to hear about your e-bay co. Let us know all the details.Still praying for you. You have given my Sunday some sunshine... Thank You. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  HI GROUP. yOU HAVEN'T HEARD FROM ME FOR A-WHILE. I READ YOUR POSTS AND SHARE IN YOUR FLUSTRATIONS ABOUT DOCTORS WHO CAN DO NOTHING TO HELP US EXCEPT WRITE RXS AND SCULDULE OUR NEXT APP. MAKES ME FEEL HELPLESS. i HAVE FOUND A SUPPLEMENT THAT HELPS ME FEEL BETTER. hAVE BEEN IN PAIN FOR A LONG TIME. i FEEL GOOD NOW (AFTER A COUPLE SHOTS OF VODKA) IT'S SAD TO READ YOUR POSTS ABOUT ALL THE SUFFERING THIS GROUP IS GOING THRU. I HAVE LIVED A HARD LIFE AND FEEL IT'S ABOUT OVER. I'M 75 AND STILL HAVE A WORKING MIND SET. NOT VERY SMART. BUT I WORK SMART. TRYING TO LIVE OUT THE REST OF MY DAYS DOING WHAT I LIKE TO DO. GOING TO BE WORKING ON SETTING UP CO ON EBAY. WHEN IT'S GOING I'LL TELL YOU WHAT IT IS SO YOU CAN HELP ME TAILOR IT TO MAKE IT BETTER. I DO NOT LIKE TO TALK ABOUT NEGATIVE STUFF. IT'S NOT GOOD FOR MY MORRAL. WRITE ME A NOTE. GREY IPF 05 sex kills> > > > > > Ok I need more brain power than I have. If IPF is not enuff, now thay tell me I have Pulmonay Artery hyepr tension, and something called apical hypekensis. Also mentioned the left vent at the bottom of my heart is damaged and not beating right. Stated looks like I had a silent heart attack> > > > That is what they got from reading the echo and the ct scan. They could not view the right side of my heart cause my big ass old lungs block it.> > > > Now can someone tell me what this crap means-other than they would shoot me if i was horse> > > > Oh yea the treatment they want to give me is daily virgra, sucide by sex- go figure I was just kidding when I said I wanted to go out that way> >> Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (9) Recent Activity 3 New Members 1 New Photos 1 New FilesVisit Your Group Drive TrafficSponsored Searchcan help increaseyour site traffic. Weight Loss Groupon Yahoo! GroupsGet support andmake friends online. Yahoo! GroupsSmall Business GroupShare experienceswith owners like you Need to Reply?Click one of the "Reply" links to respond to a specific message in the Daily Digest. Create New Topic | Visit Your Group on the Web Messages | Photos | Database | Polls | Members | Calendar MARKETPLACE Mom Power: Discover the community of moms doing more for their families, for the world and for each other Change settings via the Web (Yahoo! ID required) Change settings via email: Switch delivery to Individual | Switch format to Traditional Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2009 Report Share Posted September 20, 2009 Hi Grey, I just got back on the board after 2 yrs taking care of and his leg amputations. I have been wondering about you glad to hear from you. Take care and remember you are always in my thoughts and prayers A 60yr HP PF COPD 6/05 TN>>>> Stefani>> >> If the total bill from your oxygen supplier is more than $300 per month>> then you're being overbilled. Simple. As to not getting detailed bills,>> I would never pay something that I didn't get details on.>> >> > >> > Tony,> > All that mumbo jumbo boils down to this. Your heart has sustained damage, they have told you probably from an undiagnosed heart attack. It's not contracting efficiently, they've told you the left ventricle is not moving blood properly and the apical hypokinesis means that other areas of your heart are not functioning well either. > > Pulmonary hypertension is probably the most common long term complication of pulmonary fibrosis. It means as your heart struggles to get blood into your stiffening lungs the pressure in those arteries has risen to a level that they need to treat. The viagra (sildenifil) is meant to help relax those blood vessals and increase blood flow to your lungs. This is a very common treatment. I'll be keeping my fingers crossed that it helps!> > > > Beth> > Moderator> > Fibrotic NSIP 06/06 Dermatomyositis 11/08> > > > > > > > > > ____________ _________ _________ __> > From: tony s <oilfieldcop@ >> > To: Breathe-Support@ yahoogroups. com> > Sent: Friday, September 18, 2009 7:15:15 PM> > Subject: sex kills> > > > > > Ok I need more brain power than I have. If IPF is not enuff, now thay tell me I have Pulmonay Artery hyepr tension, and something called apical hypekensis. Also mentioned the left vent at the bottom of my heart is damaged and not beating right. Stated looks like I had a silent heart attack> > > > That is what they got from reading the echo and the ct scan. They could not view the right side of my heart cause my big ass old lungs block it.> > > > Now can someone tell me what this crap means-other than they would shoot me if i was horse> > > > Oh yea the treatment they want to give me is daily virgra, sucide by sex- go figure I was just kidding when I said I wanted to go out that way> >> Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (9) Recent Activity 3 New Members 1 New Photos 1 New FilesVisit Your Group Drive Traffic Sponsored Search can help increase your site traffic. Weight Loss Group on Yahoo! Groups Get support and make friends online. Yahoo! Groups Small Business Group Share experiences with owners like you Need to Reply? Click one of the "Reply" links to respond to a specific message in the Daily Digest. Create New Topic | Visit Your Group on the Web Messages | Photos | Database | Polls | Members | Calendar MARKETPLACE Mom Power: Discover the community of moms doing more for their families, for the world and for each other Change settings via the Web (Yahoo! ID required) Change settings via email: Switch delivery to Individual | Switch format to Traditional Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2009 Report Share Posted September 21, 2009 Dear Grey,I too feel your frustration with the doctors. Yet, you are 75 and still have a strong work ethic. I would definately put that in the plus column.It's funny how alcohol can make you feel so good so fast and yet it is gone just as fast. I had a beer about a week ago and it was just enough to make me feel tipsy but mellow. But, with all the meds I'm on I can't do that very often.You have a plan going there with Ebay and good luck with that.I'll look for your posts in the future.PJ in OH,54, IPF09, Sjogren's95 sex kills> > > > > > Ok I need more brain power than I have. If IPF is not enuff, now thay tell me I have Pulmonay Artery hyepr tension, and something called apical hypekensis. Also mentioned the left vent at the bottom of my heart is damaged and not beating right. Stated looks like I had a silent heart attack> > > > That is what they got from reading the echo and the ct scan. They could not view the right side of my heart cause my big ass old lungs block it.> > > > Now can someone tell me what this crap means-other than they would shoot me if i was horse> > > > Oh yea the treatment they want to give me is daily virgra, sucide by sex- go figure I was just kidding when I said I wanted to go out that way> >> Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (9) Recent Activity 3 New Members 1 New Photos 1 New Files Visit Your Group Drive Traffic Sponsored Search can help increase your site traffic. Weight Loss Group on Yahoo! Groups Get support and make friends online. Yahoo! Groups Small Business Group Share experiences with owners like you Need to Reply? Click one of the "Reply" links to respond to a specific message in the Daily Digest. Create New Topic | Visit Your Group on the Web Messages | Photos | Database | Polls | Members | Calendar MARKETPLACE Mom Power: Discover the community of moms doing more for their families, for the world and for each other Change settings via the Web (Yahoo! ID required) Change settings via email: Switch delivery to Individual | Switch format to Traditional Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe Quote Link to comment Share on other sites More sharing options...
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