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--- In , " melmeighen "

> Yesterday we started Carnitone, just 8 mls once a day for a week,

> then three times a day. (I've read about Carn-aware, but I love the

> fact that the Carnitone is a liquid. He takes it very well.)

I think CarnAware is carnosine, which is different than carnitine.

Hopefully someone else can verify that.

>

> From what I'm reading so far, this carnitine deficiency could be the

> result of " leaky gut, " correct?

Yes, or metals, or a host of other potential issues.

And if that's the case, shouldn't I

> start him on Peptizyde and Zyme Prime as well? Then do I eventually

> phase out the Carnitone?

You can try that and see if it helps.

>

> How about zinc to heal the gut? I haven't found at what dosage

> anywhere.

Zinc is good to reduce high copper levels. Start with USRDA, scroll

down here

http://www.danasview.net/metals.htm

>

> We're currently taking a multi-vitamin without iron. Should we add

> iron?

Only if your child is deficient. Iron overload is a problem for many

kids.

Dana

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  • 2 years later...
Guest guest

> Hi my name is Matt and we're just starting Peptizyde and ZymePrime. I

> finished 's book but have a question about the frequency of

> giving the enzymes. Should I be giving them with every meal AND

> snack?

My son tolerated no foods unless given with enzymes, so I had to give

enzymes with everything he ate or drank.

>>If the meals/snacks are within 60-90 minutes of one another

> will the previous enzyme cover the recent snack?

For my son, enzymes went for 60-90 minutes. If the snack was 60

minutes later, and a small snack, the enzymes would have covered it.

But a larger snack, or closer to 90 minutes, I would have had to give

additional enzymes.

>>Should the Peptizyde

> and ZymePrime be given together with all meals/snacks?

I gave them together, along with No-Fenol, with everything.

Dana

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Hi Matt

As you are just starting out I would repeat the enzymes if over the 60 min

time frame, in fact I'd probably just give some more.

As time goes on and he adjusts to the enzymes and gets some active healing

done in the gut (I personally don't beleive GFCF does this at all) then you

will be able to experiement and judge best for your lad.

If he is having several small meals/snacks (my son is a grazer) you can

empty a cap out into a cold drink, give him a few swigs before each sitting and

put in back in the fridge for later. They are good for up to 4 hours this way.

Good luck, we came of the GFCF deit with HNI 4 years ago this month :) Much

more improvements off diet than on (YEAHHHHHHHHHHHH!)

Mandi in UK

Should I be giving them with every meal AND

snack? If the meals/snacks are within 60-90 minutes of one another

will the previous enzyme cover the recent snack? Should the Peptizyde

and ZymePrime be given together with all meals/snacks? Sorry so many

questions but I just wanna do this right. My son is 5 and has been

GF/CF for over three years. I was going to do SCD but if this works

I'll be psyched! He's doing really well but I'm never satisfied

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  • 5 months later...

Hi Jenifer, My son is going to have his first DAN visit this Friday after

months of being on the waiting list.

Since I noticed his possible diagnosis of ASD, I have done the following in a

course of six months on my own and with the help of this group:

Cod Liver Oil( Nordic Natural), 1 tsp

All three Houston Enzymes with meals and snacks ,1/2 capsule

GFCF Diet

Kirkman's Probio Gold, 2 caps

and recently added:

Multi Vitamins and Minerals 1 tsp, 3x day

0.5 milligram of melatonin before bedtime

the result are the following:

Reduced obssesive behavior

lost his excessive separation anxiety

End of symptoms of irritable bowls syndrome

reduced stimming

and he stopped hitting himself

Cognitive improvements

Vocalization

happiness

sense of humor

expresstion of love

sustained eye contact

and doesn't seem to be in pain

My son has learned more in the past three months of GFCF diet than in the

14th month prior to that. also he has put on 1.5 lb of weight in the past

three months while the 11 months prior to the diet, he had only gained 0.5 lb

while he had grown 4 inches in height. He is still below the 5th percentile of

BMI which makes him underweight but has gained great muscle tone.

The problem I still struggle with are yeast.

Best,

haleh

--- steve & jennifer paulson <son@...> wrote:

> HI,

> I am newbie. My daughter (4)was recently diagnosed with Asperger's and my

> son (9) has his share of problems.....APD, anxiety, many autistic traits but

> functions OK. Both of my kids are always sick---asthma, ears with a few

> surgeries, skin rashes, GI problems. I have an appt. with a DAN Dr. on

> December 8th.

> The question I want to ask you all is if you think it is OK for me to order

> some supplements and get my kids started prior to seeing our Dr. I was

> looking in Kirkman and thinking of 1.) magnesium/melatonin to help them

> sleep 2.) probiotics as they both have GI problems 3.) vitamin B

> supplements and possibly 4.) enzymes. I've slowly started weaning the dairy

> and am looking into some gluten recipes.

> I'm not sure that I will have the money to do all of the recommended lab

> work for both of my kids and I hated to wait another month to do something

> since I know from their health condition that they are physically sick kids.

> I've read Dr. McCandless's book and feel I have a grasp on the path to

> follow. As a matter of fact, I am a RN and am planning to attend the next

> DAN conference to become a DAN RN. Any advice or suggestions for me? This

> is all new to me. Being a RN, I am used to traditional medicine, which I've

> come to have little use for. I've done that and my kids are not healthy-any

> way you look at it.

> son-WI

>

>

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---

Dear Haleh:

I am so happy that you are finally going to see a DAN after waiting for so

long.

I am also glad to know that your son is doing so good on the bio-med

interventions you

've started on your own .

Best of luck with everything. Keep us posted.

Manju

, haleh niazmand <halniaz@y...> wrote:

>

> Hi Jenifer, My son is going to have his first DAN visit this Friday after

> months of being on the waiting list.

> Since I noticed his possible diagnosis of ASD, I have done the following in a

> course of six months on my own and with the help of this group:

>

> Cod Liver Oil( Nordic Natural), 1 tsp

> All three Houston Enzymes with meals and snacks ,1/2 capsule

> GFCF Diet

> Kirkman's Probio Gold, 2 caps

> and recently added:

> Multi Vitamins and Minerals 1 tsp, 3x day

> 0.5 milligram of melatonin before bedtime

>

> the result are the following:

> Reduced obssesive behavior

> lost his excessive separation anxiety

> End of symptoms of irritable bowls syndrome

> reduced stimming

> and he stopped hitting himself

> Cognitive improvements

> Vocalization

> happiness

> sense of humor

> expresstion of love

> sustained eye contact

> and doesn't seem to be in pain

>

> My son has learned more in the past three months of GFCF diet than in the

> 14th month prior to that. also he has put on 1.5 lb of weight in the past

> three months while the 11 months prior to the diet, he had only gained 0.5 lb

> while he had grown 4 inches in height. He is still below the 5th percentile of

> BMI which makes him underweight but has gained great muscle tone.

>

> The problem I still struggle with are yeast.

> Best,

> haleh

>

>

>

> --- steve & jennifer paulson <son@t...> wrote:

>

> > HI,

> > I am newbie. My daughter (4)was recently diagnosed with Asperger's and my

> > son (9) has his share of problems.....APD, anxiety, many autistic traits but

> > functions OK. Both of my kids are always sick---asthma, ears with a few

> > surgeries, skin rashes, GI problems. I have an appt. with a DAN Dr. on

> > December 8th.

> > The question I want to ask you all is if you think it is OK for me to order

> > some supplements and get my kids started prior to seeing our Dr. I was

> > looking in Kirkman and thinking of 1.) magnesium/melatonin to help them

> > sleep 2.) probiotics as they both have GI problems 3.) vitamin B

> > supplements and possibly 4.) enzymes. I've slowly started weaning the dairy

> > and am looking into some gluten recipes.

> > I'm not sure that I will have the money to do all of the recommended lab

> > work for both of my kids and I hated to wait another month to do something

> > since I know from their health condition that they are physically sick kids.

> > I've read Dr. McCandless's book and feel I have a grasp on the path to

> > follow. As a matter of fact, I am a RN and am planning to attend the next

> > DAN conference to become a DAN RN. Any advice or suggestions for me? This

> > is all new to me. Being a RN, I am used to traditional medicine, which I've

> > come to have little use for. I've done that and my kids are not healthy-any

> > way you look at it.

> > son-WI

> >

> >

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  • 3 weeks later...

>>>I started the enzymes last month but had to stop my son

> became very ill.only did enzymes for one day.

What enzymes did you give (product and dose)?

>>>He had step in aug. then last month he was sick again,the doctors

are still unable to tell me what it was.

You mean strep? What do the doctors recommend you do now?

>>>Is there any supplement I can give with enzymes to strenghten the

immune system.

There are some. The enzymes may make the immune system strengtheners

work better. Do you know why he stopped the reliv? Was it around the

same time as the strep problem? Oh, and do you give anything else

besides the meds and supplements you mentioned? Thanks.

Welcome, Helen!

.

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>>He had step in aug. then

> last month he was sick again,the doctors are still unable to tell me

> what it was.

Strep? I used olive leaf extract for strep issues for my kids.

He ended up in the hospital do to loss of fluids.He's

> ped.had given him penicillen,then the hosiptol give something

> else.withtin twentyfour hours he was coverd in hives.Which continued

> for four days.They said it was either viral or bactiral.

Hives can be an allergy or intolerance to something he was given in

the hospital. It can also mean viral die off.

DUH!Is there

> any supplement I can give with enzymes to strenghten the immune

> system.

I use olive leaf extract and ViraStop enzyme as anti-virals. I give

colostrum, astralagus root, vitamin C, and occasionally a small amount

of iron [i apparently pulled too much with the IP6] to strenthen the

immune system.

Dana

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  • 1 year later...

> next week and today I went out and bought ALA. I don't know how much

> to give my 10yo dd, who weighs around 60lbs. I was thinking about

> 30mg every 8 hours - does that sound OK?

ALA is a chelator, so first research what to watch for.

http://www.danasview.net/parent3.htm#chelation

Some kids need to take it every 3 hours, so watch for that.

I gave it 3x per day for my kids, but I started at a lower dose than 30mg.

Dana

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  • 3 months later...

> We have started the GFCF diet with our 4 year old. It is going well.

> Our doctor told us that we could give him goat's yogurt/mil as long

> as w give him an enzyme to help him digest it.

> Any very good enzymes that we could buy?? Our son also suffers from

> seizures and *bromalain* ( pineapple ) interacts with his medication.

> I am trying to find a product that does not use any fruit enzymes.

HNI AFP Peptizyde would digest the casein from the goat yoghurt, and

it does not contain papain or bromelain.

http://www.houstonni.com/

Dana

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  • 1 year later...
Guest guest

Today is my daughters second day with the helmet/band on. She had a terrible

first day, but today has gone better...so far. She just cries off and on and

wants to be held (more so yesterday). I feel pretty down since yesterday. I

just hoope these next few months fly by. Any advise, stories to tell please

share.

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