Re: OK

[Guest guest]

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A CPAP is a machine for treating sleep apnea. It is a Continuous Positive

Airway Pressure machine that blows air at a prescribed pressure during sleep.

Typically when first diagnosed with Pulmonary Fibrosis you should have some or

all of the following procedures/tests;

.. Blood Gas Test

.. Full Pulmonary Function Test battery

.. Sleep Apnea testing

.. HRCT (High Resolution Cat Scan)

.. 6-minute walk test with and without oxygen

.. Exercise Tolerance Test (optional)

.. Heart Ultrasound analysis

.. Barium swallow (check for Gastro Enteritus Reflux Disease-GERD)

.. Broncoscopy

.. VATS biopsy

I have had two pulmo-dudes (doctors) tell me the 3-5 years. Then I talked with

my specialist at National Jewish as well as Beth, the moderator of this

site. NONE of us have an expiration date stamped anywhere on our bodies. My

specialist in Denver said he was impressed at my general good health and saw no

reason I may not live for 10 or more years. He did say I needed to eat a

healthy diet and take a pulmonary rehab course (4-6 weeks). I needed to get flu

and pneumonia shots as needed and use oxygen as needed (not let sats drop below

88-90). I am in the process of trying to find a doctor who will be there if I

have a need to be hospitalized and need a pulmo-dude to monitor oxygen needs and

speak on my behalf.

Stefani 61 year old Utahn

ILD 2/2006, NSIP (cellular) 6/2009, UIP 9/2009, Diabetes II 2/2006, Sleep Apnea

4/2009

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> >> Hi everyone,

> >> Just a quick word that there will not be any chat this evening. Peggy

> >> is not feeling well and I am babysitting for my nieces. So next time

> >> will be two weeks from today October 15th!

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> >> Beth

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> >> Moderator

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> >> Fibrotic NSIP 06/06 Dermatomyositis 11/08

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