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maddy's sick again

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Hi everyone,

Madison is sick again probably just the stomach bug but she hasn't

eaten in 24 hours and everything she's drinks comes back up. theres

no way we'll be able to put her on the pump tonight so thats probably

a hospital visit in the making. So far her sugar has been good

becuase we found this medicine for nausea and vomiting it's in the

little tummies group of meds. well it causes an increase in sugar so

if we keep giving it to her it keeps the vomiting limited and her

sugar hasn't gone lower than 62.

Are next problem is she can't gain weight now matter what we try

she's been 18 lbs for over a year but with the GHT she keeps growing

taller so now she looks so sick it's like all bones. My husband was

freaking out tonight because of her weight. she fits in a 2T in

lenght but she's 6-9months in the waist.

well any ideas would be great

chrissy mom of 4

louis 5

maddy 3 RSS

shane 1

ryan 6 months

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Hey Chrissy,

I don't know if you have ketostix, but I would be testing for ketones, and

if they are present, I would take her to the hospital, especially because

she's so thin. Dehydration and hypo-g are really big problems for our skinny

kids. I would have them put her on a D10 IV, for at least 24 hours of gut

rest, and then, try restarting her feeds at a very slow rate.

Just my opinion, hope this helps!

Pat (g-ma to , RSS, 3 yrs old, 23.5# (10.7kg), 32.8 " (83.3cm),

G-Tube)

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Chrissy

So sorry to hear Maddy's not feeling well. Whenever Pippin is sick

with a belly bug and not tolerating her feeds...(on the pump) we

always just use 100% pedilyte (no formula) at the same rate we would

use during her overnight feeds...It gives her belly a bit of a rest.

We test her blood sugar & ketones during this and will use the

glucose gel if needed. I just suck the gel into a syringe and then

put it through her tube. Kinda messy & sticky but w/ lots of

pedilyte flushes, it goes down..or in. Then when she's feeling

better we go to 75/25. 75% pedylite and 25% formula then 50/50 then

25/75 then to normal 100% formuala. She's been on 50/50 for more

than a day with the flu with no low blood sugar problems. But

everyone is different. I hope I'm making sense?!?!!

This 'system' has kept her out of the hospital a few times.

Hope this helps and I hope she gets better soon!

Team Lapish

Jenyfer, Dan, Tully, Pippin (2yrs & not yet 20lbs!) & Ryker

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Ugh. NO fun. Hope she feels better soon...

, mom to 5 and Emerence, 2, SGA 31 " 20lb 10 oz!

>

> Hi everyone,

> Madison is sick again probably just the stomach bug but she hasn't

> eaten in 24 hours and everything she's drinks comes back up. theres

> no way we'll be able to put her on the pump tonight so thats

probably

> a hospital visit in the making. So far her sugar has been good

> becuase we found this medicine for nausea and vomiting it's in the

> little tummies group of meds. well it causes an increase in sugar

so

> if we keep giving it to her it keeps the vomiting limited and her

> sugar hasn't gone lower than 62.

>

> Are next problem is she can't gain weight now matter what we try

> she's been 18 lbs for over a year but with the GHT she keeps

growing

> taller so now she looks so sick it's like all bones. My husband was

> freaking out tonight because of her weight. she fits in a 2T in

> lenght but she's 6-9months in the waist.

> well any ideas would be great

> chrissy mom of 4

> louis 5

> maddy 3 RSS

> shane 1

> ryan 6 months

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Jodi,

I don't think it's the flu cause she doesn't have any other symptoms but

has c-Diff so now i think she might have it too but we all know how bad

these kids get the GI viruses.

Lou said last night Dr. H is gonna have a fit when she see's her cause she's

all skin and bones but maybe thats what we need is for her to get pissed

maybe things will get taken care of then

THanks so much,

chrissy

ps they better get well by next week!!!

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hey chrissy!!

i am so sorry to hear that maddie is sick again!! do you think it

is the flu, i know that is going around again. my friends daughter

just went to the dr. for it and they have some new medicine they can

give them if they catch it within 48hrs it is suppose to minimize

the effects of flu so they recover faster, maybe you should see if

you can get that for maddie. as far as her weight you will see dr h

of wed. and you know she is probably going to stop the ght, and

hopefully start the periactin so she can do her catch up growth. if

you nedd to chat give me a call!!

jodie c

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hey chrissy!!

those 2 poor little things!! i hope they feel better soon!! maybe

lou's right but if that is what it takes you will be better off!!

maybe you can stick with seein dr h every 3 months instead of just

going to st. christopher's. ((HUGS)) to you guys!!! hope they are

well by next sat!!! give me a call on wed or thurs to let me know

how you made out with dr h!! if you need anything before then just

let me know!! i will email you the directions this weekend!!

jodie c.

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