Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 Hi , We have the same problem. Dr H wants us to up the Miralax so goes every day, but that is just impossible. If we up the Miralax, he still doesn't go every day and he gets diarhea. goes about every other day now (which is much better than before the Miralax) and I just don't worry about it. Judith, Steve, (RSS) and (non RSS) twins soon to be 5 year old on 2/4/05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 HI. All I can tell you is what the doc told us about my 2 1/2 yr old (non RSS with MAJOR constipation issues). He has been on Mirilax for over a year and has the same situation. He has a bm every 2-3 days regardless of the Mirilax amount. His doc says that that is 'his' schedule and not to worry. It is consistant (been that schedule for 1 1/2 yrs)and when he does go, it is not painful or bloody, it is easy to pass. She said that different kids have different norms for bms and we just want him to not be in pain. The runny BM sounds like it may be too much Mirilax, but I'd call the ped and ask. Maybe try 3/4 tbsp. Hope this helps a little. mom to Autumn RSS 2 boys and baby on the way > > Hi, > > In the past Colin has always had a difficult time pooping. For him > to go every other day was a good thing, sometimes he goes as long as > 5 days or more. He was taking 1/2 Tbsp of Miralax every other day, > but it seemed to stop working and he was going longer between > stools. Dr. H sent our Ped an email saying that he needed to stool > DAILY so we upped the Miralax to 1 Tbsp every night, but he is still > going only every 2-3 days and now it is so runny that he isn't > making it to the toilet. I'm just wondering if it really is not > possible for him to go that frequently and if we should be happy > with every other day. Does anyone have any thoughts on this? I just > want to get a handle on this. I'm worried he is going to have an > accident at preschool and that won't be pretty for the teachers! > > > Colin (RSS, gtube) and Hayden - 4 year old twins > Grant -1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 Liam goes everyother day to every 3rd day and the Endo here is fine with that, for now. She did not want to make too many changes today because of the thyroid issues starting back up. She also thinks it could have something to do with the Thyroid and wants to see if the Synthyroid helps.. If not we will decide if anything else needs to be added in April at his next appointment.... R Mom to: Jed (1/22/93) Tic disorder, Asthma, Heart Murmur..... Liam (12/12/00) SGA/RSS, Asthma, Epilepsy, Hearing Impaired, Sensory Issues Food Allergies, Heart Murmur... Orlando Fl ---------- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.300 / Virus Database: 265.7.4 - Release Date: 1/25/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 Thanks, Judith for your reply. What dose are you giving? I would rather Colin go every other day than have diarrhea and have him fear going so maybe we need to back off a little on the dose. > > Hi , > > We have the same problem. Dr H wants us to up the Miralax so > goes every day, but that is just impossible. If we up the Miralax, > he still doesn't go every day and he gets diarhea. goes about > every other day now (which is much better than before the Miralax) > and I just don't worry about it. > > Judith, Steve, (RSS) and (non RSS) twins soon to be 5 > year old on 2/4/05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2005 Report Share Posted January 28, 2005 Hi , I have to check. I keep a measuring spoon set up with the medicine and I can't remember if it is a teaspoon or a tablespoon. I am at work, but will see if I can get my husband to check before he leaves for work. Judith, Steve, (RSS) and (non RSS) almost 5 year old twins Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2005 Report Share Posted January 28, 2005 Hi , I've had better luck with a heaping teaspoon of Benefiber in 2oz of water, mixed and put in his g-tube. Sometimes I think Henry needs more water but that amount usually produces a BM for him without any loose stools at least every other day. I could never get the right combination of Miralax to work for Henry - it's rather difficult I think. Henry - 4 1/2yrs old, 40in, 36lbs, RSS/g-tube/fundo/pyloro/prilosec/periactin/zantac/benefiber/nutropin/peptamen jr - 9yrs 45lbs, 48in nonRSS - and yes she is the one who is too small in our household. Can you believe just as the one with RSS gets a chart for the first time in 3yrs, my daugther drops off to the gray area of below 3% - Some day I just want to take my kids to the doctor, any doctor and have them say " Mrs. Hurlin, everything is fine " Quote Link to comment Share on other sites More sharing options...
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