Re: Congress on Pulmonary Fibrosis Bill

[Guest guest]

Jack,

You can put me back on the list, did mine today!

Dyane Phoenix ipf 02

>

> Yesterday, I had an emal from my friend Congressman Mike Michaud on

H.R. 1079, the Pulmonary Fibrosis Enhancement Act, telling me that he

supports this bill. The bill will create a patient registry, Federal

money for research, helping to identify treatments and a cure. Today I

received an email from the Coalition for Pulmonary Fibrosis stating that

they have 60 members of Congress supporting this bill, but need 40 more

in order to get a Congressional hearing on PF. This bill will be

milestone for us on this

> board and all those who will follow us. The Coalition is asking all

of us and our friends and family

> to call now to urge our Congressmen to support this bill You can do

this be calling (the

> Capitol Switchboard) and ask for the Health Legislative Assistance.

If you leave a voice mail message, include your name and phone number so

that they can call you back. Sample phone message: " I am

> a pulmonary fibrosis (patient, family member of patient, caregiver) in

(your town). I am calling

> to urge Rep. ______________(your Congressman) to support pulmonary

fibrosis patients by

> supporting the Pulmonary Fibrosis Enhancement Act. This critically

important legislation will create

> a much-needed patient registry and will finally move research forward

in PF, helping identify

> treatments and a cure. Please support patients and families by

supporting H. R. 1079. "

>

> This will take only a few minutes, but just think, if we work

collectively in supporting and getting

> passage of H. R. 1079, we not only help ourselves, but all those out

there who have PF and

> those yet to come. If we don't help ourselves, nobody will. Please

call today.

>

> PS I will know who calls and who doesn't and those who don't won't

get a Christmas gift this year.

> Such are my powers.

>

> Jack

> 79/IPF - UIP/dx06/05 Maine

>

[Guest guest]

Jack...will do!

MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there!

Congress on Pulmonary Fibrosis Bill

Yesterday, I had an emal from my friend Congressman Mike Michaud on H.R. 1079, the Pulmonary Fibrosis Enhancement Act, telling me that he supports this bill. The bill will create a patient registry, Federal money for research, helping to identify treatments and a cure. Today I received an email from the Coalition for Pulmonary Fibrosis stating that they have 60 members of Congress supporting this bill, but need 40 more in order to get a Congressional hearing on PF. This bill will be milestone for us on this

board and all those who will follow us. The Coalition is asking all of us and our friends and family

to call now to urge our Congressmen to support this bill You can do this be calling (the

Capitol Switchboard) and ask for the Health Legislative Assistance. If you leave a voice mail message, include your name and phone number so that they can call you back. Sample phone message: "I am

a pulmonary fibrosis (patient, family member of patient, caregiver) in (your town). I am calling

to urge Rep. ______________(your Congressman) to support pulmonary fibrosis patients by

supporting the Pulmonary Fibrosis Enhancement Act. This critically important legislation will create

a much-needed patient registry and will finally move research forward in PF, helping identify

treatments and a cure. Please support patients and families by supporting H. R. 1079."

This will take only a few minutes, but just think, if we work collectively in supporting and getting

passage of H. R. 1079, we not only help ourselves, but all those out there who have PF and

those yet to come. If we don't help ourselves, nobody will. Please call today.

PS I will know who calls and who doesn't and those who don't won't get a Christmas gift this year.

Such are my powers.

Jack79/IPF - UIP/dx06/05 Maine

[Guest guest]

Jack, I email my representative (

Alison Schwartz-PA) when this was posted previously..

..please keep me on the good girl list!!! Chanukah comes before Xmas!

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild” PH/10/07

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Jack Marshall wrote:

Yesterday, I had an emal from my friend Congressman Mike Michaud

on H.R. 1079, the Pulmonary Fibrosis Enhancement Act, telling me that

he supports this bill. The bill will create a patient registry,

Federal money for research, helping to identify treatments and a cure.

Today I received an email from the Coalition for Pulmonary Fibrosis

stating that they have 60 members of Congress supporting this bill, but

need 40 more in order to get a Congressional hearing on PF. This bill

will be milestone for us on this

board and all those who will follow us. The Coalition is asking

all of us and our friends and family

to call now to urge our Congressmen to support this bill You

can do this be calling (the

Capitol Switchboard) and ask for the Health Legislative

Assistance. If you leave a voice mail message, include your name and

phone number so that they can call you back. Sample phone message: "I

am

a pulmonary fibrosis (patient, family member of patient,

caregiver) in (your town). I am calling

to urge Rep. ______________(your Congressman) to support

pulmonary fibrosis patients by

supporting the Pulmonary Fibrosis Enhancement Act. This

critically important legislation will create

a much-needed patient registry and will finally move research

forward in PF, helping identify

treatments and a cure. Please support patients and families by

supporting H. R. 1079."

This will take only a few minutes, but just think, if we work

collectively in supporting and getting

passage of H. R. 1079, we not only help ourselves, but all those

out there who have PF and

those yet to come. If we don't help ourselves, nobody will.

Please call today.

PS I will know who calls and who doesn't and those who don't

won't get a Christmas gift this year.

Such are my powers.

Jack

79/IPF - UIP/dx06/05 Maine

[Guest guest]

I sent an email to my Congresswoman a couple weeks ago asking her to support HR

1079 & got an email back saying she was paying " close attention to the health

care bill " !!!!

So I sent a polite but terse follow-up email explaining that 1079 is the PF bill

NOT the health care bill! Never heard back from her.

(And I actually thought she was one of the good ones.)

Cees, S Calif

PF 10/08

>

> Yesterday, I had an emal from my friend Congressman Mike Michaud on H.R.

1079, the Pulmonary Fibrosis Enhancement Act, telling me that he supports this

bill.  The bill will create a patient registry, Federal money for research,

helping to identify treatments and a cure.  Today I received an email from the

Coalition for Pulmonary Fibrosis stating that they have 60 members of Congress

supporting this bill, but need 40 more in order to get a Congressional hearing

on PF.  This bill will be milestone for us on this

> board and all those who will follow us.  The Coalition is asking all of us and

our friends and family

> to call now to urge our Congressmen to support this bill  You can do this be

calling (the

> Capitol Switchboard) and ask for the Health Legislative Assistance.  If you

leave a voice mail message, include your name and phone number so that they can

call you back.  Sample phone message:  " I am

> a pulmonary fibrosis (patient, family member of patient, caregiver) in (your

town).  I am calling

> to urge Rep. ______________(your Congressman) to support pulmonary fibrosis

patients by

> supporting the Pulmonary Fibrosis Enhancement Act.  This critically important

legislation will create

> a much-needed patient registry and will finally move research forward in PF,

helping identify

> treatments and a cure.  Please support patients and families by supporting H.

R. 1079. "

>

> This will take only a few minutes, but just think, if we work collectively in

supporting and getting

> passage of H. R. 1079, we not only help ourselves, but all those out there who

have PF and

> those yet to come.  If we don't help ourselves, nobody will.  Please call

today.

>

> PS  I will know who calls and who doesn't and those who don't won't get a

Christmas gift this year.

> Such are my powers.

>

>  Jack

> 79/IPF - UIP/dx06/05 Maine

>