Re: Re: Does anyone use miralax and is it legal?

[Guest guest]

I know a lot of cancer patients that used miralax daily during their treatment and weaned off afterwards. We've been told by at least a half a dozen medical people that your body does not become dependent on miralax. It's supposed to be a safe, simple answer to keep the digestive system moving easily. So the miralax should be safe for you to use, but I have no answer on the question as to long term dependence on enemas and dig stim.

HTH

To: BTVC-SCD Sent: Mon, March 29, 2010 11:20:13 AMSubject: Re: Does anyone use miralax and is it legal?

I also wanted to ask is there ever a possiblity that someone can regain pushing stools out on own again after being dependent on enemas and digital stimulation for several years by trying miralax? My daughter is 21 with rett syndrome and this has been her situation for 5 years now> >> > I have 21 yr.old daughter with Rett syndrome. Have been on SCD for 5 months to see if will help with intestinal pain and food intolerances.> > She is completely dependent on enemas and digital stimulation to pass stool and gas. Have been to emergency room a couple of times since on the diet when stool just not moving thru (her stools are never hard. They are usually soft and formed but just don't move thru well resulting in lots of pain and self abusive behaviors)> > We just were at ER room last night. They

suggested miralax which alot of girls with Retts use. We did try it probably 6 - 7 years ago and seemed to cause her alot of discomfort and made her stools too loose which is a problem for her.> > Wondering though if we need to try it again.> > Curious what your thoughts are and for those of you who use it, does it cause alot of gas or other issues for you .> > Thank you so much.> > > >>