RE: Re: when do things get better?

[Guest guest]

I cannot help but to get teary eyed for your experience. We went through

similar with our son just 8 months ago, 6 weeks in the hospital at 4 months

old. We still have eating issues with him. I dont know if your son is RSS

mine is not. We went through some drastic experiences due to reflux. my

son was way off the chart and just recently made it back on, though not

completely back to normal. When I was trying to find a way for him to eat

sufficient calories in the little amount of food that he would accept, in

order for him to do catch up growth, it made sense to me that he needed a

food that was well rounded in carbs, fat, protien, so I started to add

formula to all of his food, cereals, milk, applesauce, all purees etc.

Between 3 - 4 oz meals and 5 nursing sessions in a 24hr period I was able

to get him to eat 1200 calories a day. I dont know about what your son can

or can't have. I know that if he has celiac it would mean that you would

need to make most of the food for him at home, because of preservative

alergy. But other foods that are very concentrated in nutrients that would

be positive for him to eat would be Heavy cream (use in milk, shakes,

everything you can think of) or whipping cream, cottage cheese, yogurt (the

natural type no flavor added with live bacteria cultures and high fat),

avocado (I believe most food alergies can have this, my son ate one a day

for 4 months, I think this had great impact on his weight gain and most kids

like the taste, give it to them with tostada chips). I found this page

helpful.

http://www.parenting.com/parenting/printarticle/0,20152,648466,00.html

I know that you probably have learned this already, so I hope that I do not

offend you in offering this advise. Do not just trust the doctor because he

is a doctor. Always get a second opinion regardless of the cost, and a

third if necessary. Do your own research be the advocate for your child.

Make sure that you are comfortable with each of the procedures that the

doctors would want do, dont let them push you into a procedure faster than

you are ready for it. Two websites that I found very helpful in doing

reasearch for understanding why and what, were emedicine and PubMed. These

are very scientific websites, but carry very detailed information and if you

only use a web dictionary with it to read them, I believe that they will be

helpful for you.

I hope this is helpful and again if you already knew this information I dont

mean to offendDont give up.

Keep smiling. We could not know the sweet without the bitter.

S. Solis

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>Reply-To: RSS-Support

>To: RSS-Support

>Subject: Re: when do things get better?

>Date: Mon, 04 Apr 2005 17:09:03 -0000

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