Re: help please! any ideas?

[Guest guest]

Hi ,

I wish I could answer your questions but I cannot. My experience is

very limited. I think your on the right track with a psychologist.

Hopefully you will get some answers soon.

One thing my son has is Sensory Integration Dysfunction. With that he

would avoid other kids and not talk to them because he could not

handle the stimulation. I vaguely remember that it caused some other

odd behaviors that did not seem related. Maybe, you might want to

look this up and see if any of the characteristics sound similar.

Other than that, I have no other suggestions.

It sounds like there are multiple things going on and after you get a

handle on one, then the others can be diagnosed and treated.

Hopefully others on the list will have some more meaningful

suggestions.

Good Luck

Ken M

>

> HI everyone. I need parent ideas about my non rss son. I am asking

> because I see many parents here who have kids with other things

than

> RSS and I don't know where else I could go and ask this question. I

> need to ask a question about my non rss son, skye, (undergoing

> testing for short stature, 6 1/2 yrs, 42 1/2 inches, 35 lbs) Skye

is

> having problems in kindergarten that began back before he was a

year

> old. It began with obsessions such as keys, he knew by examining

> the grooves which one went to the house, 2 cars and mailbox by age

> one. He liked to open/close for hours, on/off, together/apart

> endlessly. He never cared much about other kids but was very,

> actually over affectionate with family. Over the years, played

some

> with toys but mostly any form of keys and would " unlock " toys in

> their crevices or drive a ride on toy over and over while holding

the

> key. He always plays away from other kids, never wanted to be

> involved. Would sit apart when we went to playgroups, and always

do

> his own thing. Didn't talk in sentences until 3 1/2 (that's when

he

> really started to talk besides mama, dada, ball, bye,bye,) d

a

> key in his pocket talked about keys 99% of the time with family and

> some adults. by 4 yrs, liked to ride a powerwheels in large

circles

> in the yard until the battery ran out. then would go in plastic

house

> in/out and open and close the door over and over or go inside and

> play with keys and occationally other toys...he would go through

> phases of toys and still does. Whatever would facinate him at the

> time would become an obsession. He would not want to eat, sleep or

> do anything but talk or play with it(on top of the keys) It lasts

> about 2 weeks then back to only keys. by age 6 he became obsessed

> with wands from harry potter. it is always with him and he talks

> about it and askes the same questions literally at least 20 times a

> day unless he is going through a new 'toy' obsession which he will

> ask the same questions over and over. ( he still obsessed with

keys)

> His new toy is a car seat light with a little remote that he will

> play with for hours. He has talked with a neighbor girl an d the

> girl we drive to school but only about his obsessions...he doens't

> understand why they aren't obsessed like him. (recent

> obsessions..stapling papers over and over, making green tickets for

> hours(that is something from school)and doeing that every day, ) He

> plays with his little bro and sis but always in your face play and

my

> 2 yr old wants him to leave him alone, skye is always 'in his face "

> in school, he academically top of the class, but socially and

every

> other way at the bottom. will talk to no one. not only that, will

> ask the teacher the same question over and over on what is routine

> (like putting on the jacket at the end of the day, going to the

> bathroom, going to his table, pushing in the chair ) and he can't

do

> anyting without being directed. he falls behind in his

schoolwork.

> he can't do artwork without 'copying' what he sees, he can't come

up

> with answers that are not factual like 'what do you think about

this

> book?' and recently do for 3 or so weeks, can't make decitions like

> juice or water? or school related forms of that..

>

> anyways, sorry for rambling. he is with a psychologist for 2 mos

now

> and so far hes ocd but that is not from the key/wand stuff, it is

> from his handwashing till raw because it's never clean enough...etc

> stuff. they think anxiety disorder too but his teacher and I think

> maybe aspergers syndrome, but he has eye contact, is affectionate

and

> doesn't rock or hand flap. the psychologist doesn't think so

> according to meeting him a couple of times and a jilliam (I THINK)

> autism rating test.....any ideas? As of now, he will not make it

to

> 1st grade and I am searching for anything. Please help if oyou

can.

> He is a really sweet caring boy but we get really frustrated with

> what's going on. then we realize disapline doesn't work because

his

> face is blank..he just doesn't get it.

>

> I know i've mentioned a lot, but not everything and all this on top

> of his size/weight for unknown reasons and stuff, am I missing

> something that may be obvious to others?

>

> thanks for any ideas

>

>

> mom to Autumn 1 RSS, Skye non rss but short stature 6 1/2, and

ocean

> 2 1/2 and baby on the way in july

[Guest guest]

Hi ,

In many ways Skye sounds like my RSS child . is also

open/close in/out. He plays with toy cars, but only to put things

in and out. The one time he tried to drive the car around the floor

and go vroom vroom I couldn't believe it. is currently

obsessed with phones. He needs to carry one and talk on it. He

runs up to strangers and asks for their cell phones.

I am holding off testing for now, since he is already in a

structured preschool and I dont' want to give the elementary school

(he is starting kindergarten in the fall) any more amunition to keep

him out of a mainstream class. However, I fully believe he is PDD

(pervasive developmental disorder). This is in the autism spectrum

although it does not look like classic autism.

Good luck,

Judith, Steve, (RSS) and (non RSS) 5 year old twins

[Guest guest]

Hi,

My non-RSS son also has problems that aren't diagnosed yet. It's so

frustrating. At least with the RSS kid, we have a name for it and we

know where we belong. I've joined so many support groups for my

older son trying to diagnose him myself and figure out what the

problem is so I can help him!

Your son sure sounds like he might be on the autism spectrum, and

it's a very wide spectrum. There's a Yahoo group called

ShadowSyndromeKids that might be helpful to you.

Good luck!

Cindy

[Guest guest]

,

In many ways your son sounds like my son, Steve. When Steve was

young, he had many odd behaviours. He obessesed over toys, or

household appliances, he even went on a long, long jag over

quarters. Examining each one with a magnifying glass and sorting

them according to tiny differences. As he grew older his obessions

changed to various games. At 9 he was obssesed with this game where

you stacked pieces together to make a course for a marble to

traverse. Day after day, notebook after notebook of configurations,

speeds and marble colors. When he was 15 he was one of the best

young Magic (the card game) players in the country, he even won a

small college scholarship from it. He used to sit around for hours

and hours playing Magic against himself. I used to wake up at 3 in

the morning to the sound of him shuffling his Magic deck.

Many people (including my father) thought this meant that there was

something 'wrong' with Steve, but I recognized it as the behaviour

of a gifted child. It turns out that Steve does in fact have a high

IQ and he views the world differently because of it. Gifted children

tend to have a hard time with social inter-action because they don't

see much purpose in it. They tend to get very focused on figuring

out every little facet of their latest obsession They think that's

the only meanigful thing to talk about. Then they can't understand

why other kids are completely uninterested in the conversation,

because to a gifted child this is the most fascinating thing in the

world and everyone should be just as interested.

While he was growing up I tried to focus on helping him build his

social skills. It was very hard at first and took a lot of

explaining. Luckily kids like this are very logical and if they

understand *why* social skills are important they will make an

effort to use them. I started small with just one friend that I

picked out for him in his Kindergarten class. This kid was also

somewhat less socially skilled. I helped them play together the

first few times. Eventually they were able to play together without

me. After a year or two I was able to get him to interact with other

kids and even have birthday parties for him.

Now Steve is 19 years old, an honor student at Ohio State University

and has an active social life.

So my advice is to help Skye with the social skills and not worry

about the fascination with how things work and interact. He sounds

gifted to me. Steve wasn't officially tested until second grade. I'm

not sure, but if I remember correctly they can't get an accurate IQ

test result before then.

If you'd like I will look around and try to find some of the books I

had about gifted children. I'm sure they've written even better ones

by now though. I recommend checking a few out of the library and

trying some of the techniques in there and see if they help.

, Aunt to 1 RSS and Wyatt 3

>

> HI everyone. I need parent ideas about my non rss son. I am asking

> because I see many parents here who have kids with other things

than

> RSS and I don't know where else I could go and ask this question.

I

> need to ask a question about my non rss son, skye, (undergoing

> testing for short stature, 6 1/2 yrs, 42 1/2 inches, 35 lbs) Skye

is

> having problems in kindergarten that began back before he was a

year

> old. It began with obsessions such as keys, he knew by examining

> the grooves which one went to the house, 2 cars and mailbox by age

> one. He liked to open/close for hours, on/off, together/apart

> endlessly. He never cared much about other kids but was very,

> actually over affectionate with family. Over the years, played

some

> with toys but mostly any form of keys and would " unlock " toys in

> their crevices or drive a ride on toy over and over while holding

the

> key. He always plays away from other kids, never wanted to be

> involved. Would sit apart when we went to playgroups, and always

do

> his own thing. Didn't talk in sentences until 3 1/2 (that's when

he

> really started to talk besides mama, dada, ball, bye,bye,)

d a

> key in his pocket talked about keys 99% of the time with family

and

> some adults. by 4 yrs, liked to ride a powerwheels in large

circles

> in the yard until the battery ran out. then would go in plastic

house

> in/out and open and close the door over and over or go inside and

> play with keys and occationally other toys...he would go through

> phases of toys and still does. Whatever would facinate him at the

> time would become an obsession. He would not want to eat, sleep

or

> do anything but talk or play with it(on top of the keys) It lasts

> about 2 weeks then back to only keys. by age 6 he became obsessed

> with wands from harry potter. it is always with him and he talks

> about it and askes the same questions literally at least 20 times

a

> day unless he is going through a new 'toy' obsession which he will

> ask the same questions over and over. ( he still obsessed with

keys)

> His new toy is a car seat light with a little remote that he will

> play with for hours. He has talked with a neighbor girl an d the

> girl we drive to school but only about his obsessions...he doens't

> understand why they aren't obsessed like him. (recent

> obsessions..stapling papers over and over, making green tickets

for

> hours(that is something from school)and doeing that every day, )

He

> plays with his little bro and sis but always in your face play and

my

> 2 yr old wants him to leave him alone, skye is always 'in his face "

> in school, he academically top of the class, but socially and

every

> other way at the bottom. will talk to no one. not only that,

will

> ask the teacher the same question over and over on what is routine

> (like putting on the jacket at the end of the day, going to the

> bathroom, going to his table, pushing in the chair ) and he can't

do

> anyting without being directed. he falls behind in his

schoolwork.

> he can't do artwork without 'copying' what he sees, he can't come

up

> with answers that are not factual like 'what do you think about

this

> book?' and recently do for 3 or so weeks, can't make decitions

like

> juice or water? or school related forms of that..

>

> anyways, sorry for rambling. he is with a psychologist for 2 mos

now

> and so far hes ocd but that is not from the key/wand stuff, it is

> from his handwashing till raw because it's never clean

enough...etc

> stuff. they think anxiety disorder too but his teacher and I

think

> maybe aspergers syndrome, but he has eye contact, is affectionate

and

> doesn't rock or hand flap. the psychologist doesn't think so

> according to meeting him a couple of times and a jilliam (I THINK)

> autism rating test.....any ideas? As of now, he will not make it

to

> 1st grade and I am searching for anything. Please help if oyou

can.

> He is a really sweet caring boy but we get really frustrated with

> what's going on. then we realize disapline doesn't work because

his

> face is blank..he just doesn't get it.

>

> I know i've mentioned a lot, but not everything and all this on

top

> of his size/weight for unknown reasons and stuff, am I missing

> something that may be obvious to others?

>

> thanks for any ideas

>

>

> mom to Autumn 1 RSS, Skye non rss but short stature 6 1/2, and

ocean

> 2 1/2 and baby on the way in july

[Guest guest]

Have you checked out the definition for aspergers syndrome? I have just been

reading up on it as my 20 year old cousin was just diagnosed with it (we

always wondered why he was different, but our family just never discussed

it). That syndrome does have eye contact, and verbal. But many kids are

misdiagnosed OCD. There is no hand flapping as you would expect with autism.

I would really wonder about getting a second opinion. It seems that you and

Skye's teacher have a better understanding.

I think I would research it more and get a second opinion.

Let us know what you find out.

Debby

help please! any ideas?

>

>

> HI everyone. I need parent ideas about my non rss son. I am asking

> because I see many parents here who have kids with other things than

> RSS and I don't know where else I could go and ask this question. I

> need to ask a question about my non rss son, skye, (undergoing

> testing for short stature, 6 1/2 yrs, 42 1/2 inches, 35 lbs) Skye is

> having problems in kindergarten that began back before he was a year

> old. It began with obsessions such as keys, he knew by examining

> the grooves which one went to the house, 2 cars and mailbox by age

> one. He liked to open/close for hours, on/off, together/apart

> endlessly. He never cared much about other kids but was very,

> actually over affectionate with family. Over the years, played some

> with toys but mostly any form of keys and would " unlock " toys in

> their crevices or drive a ride on toy over and over while holding the

> key. He always plays away from other kids, never wanted to be

> involved. Would sit apart when we went to playgroups, and always do

> his own thing. Didn't talk in sentences until 3 1/2 (that's when he

> really started to talk besides mama, dada, ball, bye,bye,) d a

> key in his pocket talked about keys 99% of the time with family and

> some adults. by 4 yrs, liked to ride a powerwheels in large circles

> in the yard until the battery ran out. then would go in plastic house

> in/out and open and close the door over and over or go inside and

> play with keys and occationally other toys...he would go through

> phases of toys and still does. Whatever would facinate him at the

> time would become an obsession. He would not want to eat, sleep or

> do anything but talk or play with it(on top of the keys) It lasts

> about 2 weeks then back to only keys. by age 6 he became obsessed

> with wands from harry potter. it is always with him and he talks

> about it and askes the same questions literally at least 20 times a

> day unless he is going through a new 'toy' obsession which he will

> ask the same questions over and over. ( he still obsessed with keys)

> His new toy is a car seat light with a little remote that he will

> play with for hours. He has talked with a neighbor girl an d the

> girl we drive to school but only about his obsessions...he doens't

> understand why they aren't obsessed like him. (recent

> obsessions..stapling papers over and over, making green tickets for

> hours(that is something from school)and doeing that every day, ) He

> plays with his little bro and sis but always in your face play and my

> 2 yr old wants him to leave him alone, skye is always 'in his face "

> in school, he academically top of the class, but socially and every

> other way at the bottom. will talk to no one. not only that, will

> ask the teacher the same question over and over on what is routine

> (like putting on the jacket at the end of the day, going to the

> bathroom, going to his table, pushing in the chair ) and he can't do

> anyting without being directed. he falls behind in his schoolwork.

> he can't do artwork without 'copying' what he sees, he can't come up

> with answers that are not factual like 'what do you think about this

> book?' and recently do for 3 or so weeks, can't make decitions like

> juice or water? or school related forms of that..

>

> anyways, sorry for rambling. he is with a psychologist for 2 mos now

> and so far hes ocd but that is not from the key/wand stuff, it is

> from his handwashing till raw because it's never clean enough...etc

> stuff. they think anxiety disorder too but his teacher and I think

> maybe aspergers syndrome, but he has eye contact, is affectionate and

> doesn't rock or hand flap. the psychologist doesn't think so

> according to meeting him a couple of times and a jilliam (I THINK)

> autism rating test.....any ideas? As of now, he will not make it to

> 1st grade and I am searching for anything. Please help if oyou can.

> He is a really sweet caring boy but we get really frustrated with

> what's going on. then we realize disapline doesn't work because his

> face is blank..he just doesn't get it.

>

> I know i've mentioned a lot, but not everything and all this on top

> of his size/weight for unknown reasons and stuff, am I missing

> something that may be obvious to others?

>

> thanks for any ideas

>

>

> mom to Autumn 1 RSS, Skye non rss but short stature 6 1/2, and ocean

> 2 1/2 and baby on the way in july

>

>

>

>

>

>

>

>

>

[Guest guest]

,

There is a great book called " The Out of Sync Child " . It explains

Sensory Integration Disorder. They are finding that a lot of kids

in the autism spectrum have SID. A good OT would help you figure

some of this out as well.

Good luck.

Beth H.

Mom to Matt

>

> HI everyone. I need parent ideas about my non rss son. I am asking

> because I see many parents here who have kids with other things

than

> RSS and I don't know where else I could go and ask this question.

I

> need to ask a question about my non rss son, skye, (undergoing

> testing for short stature, 6 1/2 yrs, 42 1/2 inches, 35 lbs) Skye

is

> having problems in kindergarten that began back before he was a

year

> old. It began with obsessions such as keys, he knew by examining

> the grooves which one went to the house, 2 cars and mailbox by age

> one. He liked to open/close for hours, on/off, together/apart

> endlessly. He never cared much about other kids but was very,

> actually over affectionate with family. Over the years, played

some

> with toys but mostly any form of keys and would " unlock " toys in

> their crevices or drive a ride on toy over and over while holding

the

> key. He always plays away from other kids, never wanted to be

> involved. Would sit apart when we went to playgroups, and always

do

> his own thing. Didn't talk in sentences until 3 1/2 (that's when

he

> really started to talk besides mama, dada, ball, bye,bye,)

d a

> key in his pocket talked about keys 99% of the time with family

and

> some adults. by 4 yrs, liked to ride a powerwheels in large

circles

> in the yard until the battery ran out. then would go in plastic

house

> in/out and open and close the door over and over or go inside and

> play with keys and occationally other toys...he would go through

> phases of toys and still does. Whatever would facinate him at the

> time would become an obsession. He would not want to eat, sleep

or

> do anything but talk or play with it(on top of the keys) It lasts

> about 2 weeks then back to only keys. by age 6 he became obsessed

> with wands from harry potter. it is always with him and he talks

> about it and askes the same questions literally at least 20 times

a

> day unless he is going through a new 'toy' obsession which he will

> ask the same questions over and over. ( he still obsessed with

keys)

> His new toy is a car seat light with a little remote that he will

> play with for hours. He has talked with a neighbor girl an d the

> girl we drive to school but only about his obsessions...he doens't

> understand why they aren't obsessed like him. (recent

> obsessions..stapling papers over and over, making green tickets

for

> hours(that is something from school)and doeing that every day, )

He

> plays with his little bro and sis but always in your face play and

my

> 2 yr old wants him to leave him alone, skye is always 'in his face "

> in school, he academically top of the class, but socially and

every

> other way at the bottom. will talk to no one. not only that,

will

> ask the teacher the same question over and over on what is routine

> (like putting on the jacket at the end of the day, going to the

> bathroom, going to his table, pushing in the chair ) and he can't

do

> anyting without being directed. he falls behind in his

schoolwork.

> he can't do artwork without 'copying' what he sees, he can't come

up

> with answers that are not factual like 'what do you think about

this

> book?' and recently do for 3 or so weeks, can't make decitions

like

> juice or water? or school related forms of that..

>

> anyways, sorry for rambling. he is with a psychologist for 2 mos

now

> and so far hes ocd but that is not from the key/wand stuff, it is

> from his handwashing till raw because it's never clean

enough...etc

> stuff. they think anxiety disorder too but his teacher and I

think

> maybe aspergers syndrome, but he has eye contact, is affectionate

and

> doesn't rock or hand flap. the psychologist doesn't think so

> according to meeting him a couple of times and a jilliam (I THINK)

> autism rating test.....any ideas? As of now, he will not make it

to

> 1st grade and I am searching for anything. Please help if oyou

can.

> He is a really sweet caring boy but we get really frustrated with

> what's going on. then we realize disapline doesn't work because

his

> face is blank..he just doesn't get it.

>

> I know i've mentioned a lot, but not everything and all this on

top

> of his size/weight for unknown reasons and stuff, am I missing

> something that may be obvious to others?

>

> thanks for any ideas

>

>

> mom to Autumn 1 RSS, Skye non rss but short stature 6 1/2, and

ocean

> 2 1/2 and baby on the way in july

[Guest guest]

Hi Cindy,

It's so true. The hardest part of this is not knowing what to do

because I don't know exactly what is going on. Traditional methods

just don't work and I don't know what to do, and all I want to do is

help him, especially now because he is really struggling to make it

through kindergarten. His psychologist seems to not be concerned

about any form of autism because it's not classic and there is eye

contact..but he has so many life interfearing austistic qualities, so

I don't know...

good luck to you with your struggle and thanks for the group...i will

check it out.

mom to Autumn RSS, Skye, Ocean and baby on the way

>

> Hi,

> My non-RSS son also has problems that aren't diagnosed yet. It's so

> frustrating. At least with the RSS kid, we have a name for it and

we

> know where we belong. I've joined so many support groups for my

> older son trying to diagnose him myself and figure out what the

> problem is so I can help him!

> Your son sure sounds like he might be on the autism spectrum, and

> it's a very wide spectrum. There's a Yahoo group called

> ShadowSyndromeKids that might be helpful to you.

>

> Good luck!

> Cindy

[Guest guest]

Hi Debby,

thanks. I have looked up aspergers and pdd and he does have SO much

from it. it says it can go along with ocd and sensory issues but i

keep reading with aspergers that they don't have eye contact and talk

monotone and are not affectionate, and he is none of those. I've

read there is mild aspergers where everything is not there but I seem

to be reading info than the doc is giving. he said when he meets the

kids, they all have something about them and skye doesn't have it

(for aspergers), and along with this autism rating scale...jilliam

scale I think, but the questions asked with that scale didn't seem to

cover any mild form....I think aspergers is definitly a possibility

or pdd. My mother in law is a teachers aid with aspergers children

in elementary and when I told her what was going on she said she'd

been concerned for years but kept trying to convince herself it

wasn't because of the affection and eye contact, but shares the

teachers and my concerns. It's hard to find a good doc that can look

outside the 'classic' autism.

As for Skye being 'different' that's the word used for years for

him. Everything was 'different' and we didn't know why. HE was my

first so I dismissed a lot due to phases, or age or just different

but as he got older it just progressed to the point one day I really

woke up and said to myself, wow, this is past just 'different' there

is something going on here. and now in his first year in kidergarten

it is worse and something has to be done so he can make it through

school. Thanks for your response and I am definitly looking into a

second opinion

mom to Autumn RSS, Skye, Ocean and baby on the way

>

> Have you checked out the definition for aspergers syndrome? I have

just been

> reading up on it as my 20 year old cousin was just diagnosed with

it (we

> always wondered why he was different, but our family just never

discussed

> it). That syndrome does have eye contact, and verbal. But many kids

are

> misdiagnosed OCD. There is no hand flapping as you would expect

with autism.

> I would really wonder about getting a second opinion. It seems that

you and

> Skye's teacher have a better understanding.

> I think I would research it more and get a second opinion.

>

> Let us know what you find out.

>

> Debby

>

>

> help please! any ideas?

>

>

> >

> >

> > HI everyone. I need parent ideas about my non rss son. I am asking

> > because I see many parents here who have kids with other things

than

> > RSS and I don't know where else I could go and ask this question.

I

> > need to ask a question about my non rss son, skye, (undergoing

> > testing for short stature, 6 1/2 yrs, 42 1/2 inches, 35 lbs)

Skye is

> > having problems in kindergarten that began back before he was a

year

> > old. It began with obsessions such as keys, he knew by examining

> > the grooves which one went to the house, 2 cars and mailbox by age

> > one. He liked to open/close for hours, on/off, together/apart

> > endlessly. He never cared much about other kids but was very,

> > actually over affectionate with family. Over the years, played

some

> > with toys but mostly any form of keys and would " unlock " toys in

> > their crevices or drive a ride on toy over and over while holding

the

> > key. He always plays away from other kids, never wanted to be

> > involved. Would sit apart when we went to playgroups, and always

do

> > his own thing. Didn't talk in sentences until 3 1/2 (that's

when he

> > really started to talk besides mama, dada, ball, bye,bye,)

d a

> > key in his pocket talked about keys 99% of the time with family

and

> > some adults. by 4 yrs, liked to ride a powerwheels in large

circles

> > in the yard until the battery ran out. then would go in plastic

house

> > in/out and open and close the door over and over or go inside and

> > play with keys and occationally other toys...he would go through

> > phases of toys and still does. Whatever would facinate him at the

> > time would become an obsession. He would not want to eat, sleep

or

> > do anything but talk or play with it(on top of the keys) It lasts

> > about 2 weeks then back to only keys. by age 6 he became obsessed

> > with wands from harry potter. it is always with him and he talks

> > about it and askes the same questions literally at least 20 times

a

> > day unless he is going through a new 'toy' obsession which he will

> > ask the same questions over and over. ( he still obsessed with

keys)

> > His new toy is a car seat light with a little remote that he will

> > play with for hours. He has talked with a neighbor girl an d the

> > girl we drive to school but only about his obsessions...he doens't

> > understand why they aren't obsessed like him. (recent

> > obsessions..stapling papers over and over, making green tickets

for

> > hours(that is something from school)and doeing that every day, )

He

> > plays with his little bro and sis but always in your face play

and my

> > 2 yr old wants him to leave him alone, skye is always 'in his

face "

> > in school, he academically top of the class, but socially and

every

> > other way at the bottom. will talk to no one. not only that,

will

> > ask the teacher the same question over and over on what is routine

> > (like putting on the jacket at the end of the day, going to the

> > bathroom, going to his table, pushing in the chair ) and he can't

do

> > anyting without being directed. he falls behind in his

schoolwork.

> > he can't do artwork without 'copying' what he sees, he can't come

up

> > with answers that are not factual like 'what do you think about

this

> > book?' and recently do for 3 or so weeks, can't make decitions

like

> > juice or water? or school related forms of that..

> >

> > anyways, sorry for rambling. he is with a psychologist for 2 mos

now

> > and so far hes ocd but that is not from the key/wand stuff, it is

> > from his handwashing till raw because it's never clean

enough...etc

> > stuff. they think anxiety disorder too but his teacher and I

think

> > maybe aspergers syndrome, but he has eye contact, is affectionate

and

> > doesn't rock or hand flap. the psychologist doesn't think so

> > according to meeting him a couple of times and a jilliam (I THINK)

> > autism rating test.....any ideas? As of now, he will not make it

to

> > 1st grade and I am searching for anything. Please help if oyou

can.

> > He is a really sweet caring boy but we get really frustrated with

> > what's going on. then we realize disapline doesn't work because

his

> > face is blank..he just doesn't get it.

> >

> > I know i've mentioned a lot, but not everything and all this on

top

> > of his size/weight for unknown reasons and stuff, am I missing

> > something that may be obvious to others?

> >

> > thanks for any ideas

> >

> >

> > mom to Autumn 1 RSS, Skye non rss but short stature 6 1/2, and

ocean

> > 2 1/2 and baby on the way in july

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Thanks Beth, I will definitly check out the book. I dont' mean to

sound stupid, but what's an OT and how would I get one?

mom to Autumn RSS, skye ocean and baby on the way

> >

> > HI everyone. I need parent ideas about my non rss son. I am

asking

> > because I see many parents here who have kids with other things

> than

> > RSS and I don't know where else I could go and ask this question.

> I

> > need to ask a question about my non rss son, skye, (undergoing

> > testing for short stature, 6 1/2 yrs, 42 1/2 inches, 35 lbs)

Skye

> is

> > having problems in kindergarten that began back before he was a

> year

> > old. It began with obsessions such as keys, he knew by

examining

> > the grooves which one went to the house, 2 cars and mailbox by

age

> > one. He liked to open/close for hours, on/off, together/apart

> > endlessly. He never cared much about other kids but was very,

> > actually over affectionate with family. Over the years, played

> some

> > with toys but mostly any form of keys and would " unlock " toys in

> > their crevices or drive a ride on toy over and over while holding

> the

> > key. He always plays away from other kids, never wanted to be

> > involved. Would sit apart when we went to playgroups, and always

> do

> > his own thing. Didn't talk in sentences until 3 1/2 (that's

when

> he

> > really started to talk besides mama, dada, ball, bye,bye,)

> d a

> > key in his pocket talked about keys 99% of the time with family

> and

> > some adults. by 4 yrs, liked to ride a powerwheels in large

> circles

> > in the yard until the battery ran out. then would go in plastic

> house

> > in/out and open and close the door over and over or go inside and

> > play with keys and occationally other toys...he would go through

> > phases of toys and still does. Whatever would facinate him at

the

> > time would become an obsession. He would not want to eat, sleep

> or

> > do anything but talk or play with it(on top of the keys) It

lasts

> > about 2 weeks then back to only keys. by age 6 he became

obsessed

> > with wands from harry potter. it is always with him and he talks

> > about it and askes the same questions literally at least 20 times

> a

> > day unless he is going through a new 'toy' obsession which he

will

> > ask the same questions over and over. ( he still obsessed with

> keys)

> > His new toy is a car seat light with a little remote that he will

> > play with for hours. He has talked with a neighbor girl an d the

> > girl we drive to school but only about his obsessions...he

doens't

> > understand why they aren't obsessed like him. (recent

> > obsessions..stapling papers over and over, making green tickets

> for

> > hours(that is something from school)and doeing that every day, )

> He

> > plays with his little bro and sis but always in your face play

and

> my

> > 2 yr old wants him to leave him alone, skye is always 'in his

face "

> > in school, he academically top of the class, but socially and

> every

> > other way at the bottom. will talk to no one. not only that,

> will

> > ask the teacher the same question over and over on what is

routine

> > (like putting on the jacket at the end of the day, going to the

> > bathroom, going to his table, pushing in the chair ) and he can't

> do

> > anyting without being directed. he falls behind in his

> schoolwork.

> > he can't do artwork without 'copying' what he sees, he can't come

> up

> > with answers that are not factual like 'what do you think about

> this

> > book?' and recently do for 3 or so weeks, can't make decitions

> like

> > juice or water? or school related forms of that..

> >

> > anyways, sorry for rambling. he is with a psychologist for 2 mos

> now

> > and so far hes ocd but that is not from the key/wand stuff, it is

> > from his handwashing till raw because it's never clean

> enough...etc

> > stuff. they think anxiety disorder too but his teacher and I

> think

> > maybe aspergers syndrome, but he has eye contact, is affectionate

> and

> > doesn't rock or hand flap. the psychologist doesn't think so

> > according to meeting him a couple of times and a jilliam (I

THINK)

> > autism rating test.....any ideas? As of now, he will not make it

> to

> > 1st grade and I am searching for anything. Please help if oyou

> can.

> > He is a really sweet caring boy but we get really frustrated with

> > what's going on. then we realize disapline doesn't work because

> his

> > face is blank..he just doesn't get it.

> >

> > I know i've mentioned a lot, but not everything and all this on

> top

> > of his size/weight for unknown reasons and stuff, am I missing

> > something that may be obvious to others?

> >

> > thanks for any ideas

> >

> >

> > mom to Autumn 1 RSS, Skye non rss but short stature 6 1/2, and

> ocean

> > 2 1/2 and baby on the way in july

[Guest guest]

Hi . Skye is very smart, but his problems go beyond social. He

has many other...I guess the word would be 'issues' that are

affecting him and he is having a hard time. He's struggling to

complete papers at school and brings home work half done because

without questioning/directions/being told exactly how to do

something, he can't do it. Can't put his coat on, push in his chair,

sit on the carpet etc without a bunch of questions because he doesn't

know what to do.It's getting worse, so bad his teacher called today

and they just don't know what to do anymore. He has the knowlege to

do the work but not the ability to know how to .....doens't make much

sense but it's hard to explain. He can count past 1000 read, letters,

sounds...everything required and beyond but can't really apply the

knowledge. He also has so many sensory/ocd problems that everything

from a meal to getting dressed to just watching a movie or hanging

out is a struggle and constant problem. Without help, he won't go

through to 1st grade and I think there is definitly something going

on. He just doesn't 'get' common sense stuff. His face goes blank

then he'll ask me some question about something totally unrelated and

not even realize what we've talked about. But it is true that with

this obsession applied to something....he will master it beyond

belief.

mom to autumnRSS, skye ocean and baby on the way

> >

> > HI everyone. I need parent ideas about my non rss son. I am

asking

> > because I see many parents here who have kids with other things

> than

> > RSS and I don't know where else I could go and ask this question.

> I

> > need to ask a question about my non rss son, skye, (undergoing

> > testing for short stature, 6 1/2 yrs, 42 1/2 inches, 35 lbs)

Skye

> is

> > having problems in kindergarten that began back before he was a

> year

> > old. It began with obsessions such as keys, he knew by

examining

> > the grooves which one went to the house, 2 cars and mailbox by

age

> > one. He liked to open/close for hours, on/off, together/apart

> > endlessly. He never cared much about other kids but was very,

> > actually over affectionate with family. Over the years, played

> some

> > with toys but mostly any form of keys and would " unlock " toys in

> > their crevices or drive a ride on toy over and over while holding

> the

> > key. He always plays away from other kids, never wanted to be

> > involved. Would sit apart when we went to playgroups, and always

> do

> > his own thing. Didn't talk in sentences until 3 1/2 (that's

when

> he

> > really started to talk besides mama, dada, ball, bye,bye,)

> d a

> > key in his pocket talked about keys 99% of the time with family

> and

> > some adults. by 4 yrs, liked to ride a powerwheels in large

> circles

> > in the yard until the battery ran out. then would go in plastic

> house

> > in/out and open and close the door over and over or go inside and

> > play with keys and occationally other toys...he would go through

> > phases of toys and still does. Whatever would facinate him at

the

> > time would become an obsession. He would not want to eat, sleep

> or

> > do anything but talk or play with it(on top of the keys) It

lasts

> > about 2 weeks then back to only keys. by age 6 he became

obsessed

> > with wands from harry potter. it is always with him and he talks

> > about it and askes the same questions literally at least 20 times

> a

> > day unless he is going through a new 'toy' obsession which he

will

> > ask the same questions over and over. ( he still obsessed with

> keys)

> > His new toy is a car seat light with a little remote that he will

> > play with for hours. He has talked with a neighbor girl an d the

> > girl we drive to school but only about his obsessions...he

doens't

> > understand why they aren't obsessed like him. (recent

> > obsessions..stapling papers over and over, making green tickets

> for

> > hours(that is something from school)and doeing that every day, )

> He

> > plays with his little bro and sis but always in your face play

and

> my

> > 2 yr old wants him to leave him alone, skye is always 'in his

face "

> > in school, he academically top of the class, but socially and

> every

> > other way at the bottom. will talk to no one. not only that,

> will

> > ask the teacher the same question over and over on what is

routine

> > (like putting on the jacket at the end of the day, going to the

> > bathroom, going to his table, pushing in the chair ) and he can't

> do

> > anyting without being directed. he falls behind in his

> schoolwork.

> > he can't do artwork without 'copying' what he sees, he can't come

> up

> > with answers that are not factual like 'what do you think about

> this

> > book?' and recently do for 3 or so weeks, can't make decitions

> like

> > juice or water? or school related forms of that..

> >

> > anyways, sorry for rambling. he is with a psychologist for 2 mos

> now

> > and so far hes ocd but that is not from the key/wand stuff, it is

> > from his handwashing till raw because it's never clean

> enough...etc

> > stuff. they think anxiety disorder too but his teacher and I

> think

> > maybe aspergers syndrome, but he has eye contact, is affectionate

> and

> > doesn't rock or hand flap. the psychologist doesn't think so

> > according to meeting him a couple of times and a jilliam (I

THINK)

> > autism rating test.....any ideas? As of now, he will not make it

> to

> > 1st grade and I am searching for anything. Please help if oyou

> can.

> > He is a really sweet caring boy but we get really frustrated with

> > what's going on. then we realize disapline doesn't work because

> his

> > face is blank..he just doesn't get it.

> >

> > I know i've mentioned a lot, but not everything and all this on

> top

> > of his size/weight for unknown reasons and stuff, am I missing

> > something that may be obvious to others?

> >

> > thanks for any ideas

> >

> >

> > mom to Autumn 1 RSS, Skye non rss but short stature 6 1/2, and

> ocean

> > 2 1/2 and baby on the way in july

[Guest guest]

,

An OT is an Occupational Therapist. A good one can give you a

questionaire to fill out about sensory issues that can show if Skye

has problems processing the sensory information coming at him. Then

they can start working on helping him cope. You will probably have

to ask around for a name, the school may be able to help. But my

pediatrician had to write a prescription for " Evaluate and Treat "

and then we had to see if insurance would pay for it. Mine does,

but the OT has to bill it under " Muscle Incoordination " since my

insurance doesn't cover sensory issues.

ANYWAY - our school here does not have an Occupational Therapist at

the school. She will come in and evaluate Matt for school issues,

ie handwriting, but he can't get any sensory therapy at the school,

that is all private.

Email me privately or on the list if you have ANY questions.

Beth H.

Mom to Matt

> > >

> > > HI everyone. I need parent ideas about my non rss son. I am

> asking

> > > because I see many parents here who have kids with other

things

> > than

> > > RSS and I don't know where else I could go and ask this

question.

> > I

> > > need to ask a question about my non rss son, skye, (undergoing

> > > testing for short stature, 6 1/2 yrs, 42 1/2 inches, 35 lbs)

> Skye

> > is

> > > having problems in kindergarten that began back before he was

a

> > year

> > > old. It began with obsessions such as keys, he knew by

> examining

> > > the grooves which one went to the house, 2 cars and mailbox by

> age

> > > one. He liked to open/close for hours, on/off, together/apart

> > > endlessly. He never cared much about other kids but was very,

> > > actually over affectionate with family. Over the years,

played

> > some

> > > with toys but mostly any form of keys and would " unlock " toys

in

> > > their crevices or drive a ride on toy over and over while

holding

> > the

> > > key. He always plays away from other kids, never wanted to be

> > > involved. Would sit apart when we went to playgroups, and

always

> > do

> > > his own thing. Didn't talk in sentences until 3 1/2 (that's

> when

> > he

> > > really started to talk besides mama, dada, ball, bye,bye,)

> > d a

> > > key in his pocket talked about keys 99% of the time with

family

> > and

> > > some adults. by 4 yrs, liked to ride a powerwheels in large

> > circles

> > > in the yard until the battery ran out. then would go in

plastic

> > house

> > > in/out and open and close the door over and over or go inside

and

> > > play with keys and occationally other toys...he would go

through

> > > phases of toys and still does. Whatever would facinate him at

> the

> > > time would become an obsession. He would not want to eat,

sleep

> > or

> > > do anything but talk or play with it(on top of the keys) It

> lasts

> > > about 2 weeks then back to only keys. by age 6 he became

> obsessed

> > > with wands from harry potter. it is always with him and he

talks

> > > about it and askes the same questions literally at least 20

times

> > a

> > > day unless he is going through a new 'toy' obsession which he

> will

> > > ask the same questions over and over. ( he still obsessed with

> > keys)

> > > His new toy is a car seat light with a little remote that he

will

> > > play with for hours. He has talked with a neighbor girl an d

the

> > > girl we drive to school but only about his obsessions...he

> doens't

> > > understand why they aren't obsessed like him. (recent

> > > obsessions..stapling papers over and over, making green

tickets

> > for

> > > hours(that is something from school)and doeing that every

day, )

> > He

> > > plays with his little bro and sis but always in your face play

> and

> > my

> > > 2 yr old wants him to leave him alone, skye is always 'in his

> face "

> > > in school, he academically top of the class, but socially and

> > every

> > > other way at the bottom. will talk to no one. not only that,

> > will

> > > ask the teacher the same question over and over on what is

> routine

> > > (like putting on the jacket at the end of the day, going to

the

> > > bathroom, going to his table, pushing in the chair ) and he

can't

> > do

> > > anyting without being directed. he falls behind in his

> > schoolwork.

> > > he can't do artwork without 'copying' what he sees, he can't

come

> > up

> > > with answers that are not factual like 'what do you think

about

> > this

> > > book?' and recently do for 3 or so weeks, can't make decitions

> > like

> > > juice or water? or school related forms of that..

> > >

> > > anyways, sorry for rambling. he is with a psychologist for 2

mos

> > now

> > > and so far hes ocd but that is not from the key/wand stuff, it

is

> > > from his handwashing till raw because it's never clean

> > enough...etc

> > > stuff. they think anxiety disorder too but his teacher and I

> > think

> > > maybe aspergers syndrome, but he has eye contact, is

affectionate

> > and

> > > doesn't rock or hand flap. the psychologist doesn't think so

> > > according to meeting him a couple of times and a jilliam (I

> THINK)

> > > autism rating test.....any ideas? As of now, he will not make

it

> > to

> > > 1st grade and I am searching for anything. Please help if

oyou

> > can.

> > > He is a really sweet caring boy but we get really frustrated

with

> > > what's going on. then we realize disapline doesn't work

because

> > his

> > > face is blank..he just doesn't get it.

> > >

> > > I know i've mentioned a lot, but not everything and all this

on

> > top

> > > of his size/weight for unknown reasons and stuff, am I missing

> > > something that may be obvious to others?

> > >

> > > thanks for any ideas

> > >

> > >

> > > mom to Autumn 1 RSS, Skye non rss but short stature 6 1/2, and

> > ocean

> > > 2 1/2 and baby on the way in july

[Guest guest]

I know an asperger's child and he certainly does have eye contact and

is affectionate and is not monotonal so I am not sure that that is an

accurate decription. Or maybe, like so many things, there is a

range.... The obsessive stuff though....that sounds familiar!

Conny, great-aunt to

> >

> > Have you checked out the definition for aspergers syndrome? I

have

> just been

> > reading up on it as my 20 year old cousin was just diagnosed with

> it (we

> > always wondered why he was different, but our family just never

> discussed

> > it). That syndrome does have eye contact, and verbal. But many

kids

> are

> > misdiagnosed OCD. There is no hand flapping as you would expect

> with autism.

> > I would really wonder about getting a second opinion. It seems

that

> you and

> > Skye's teacher have a better understanding.

> > I think I would research it more and get a second opinion.

> >

> > Let us know what you find out.

> >

> > Debby

> >

> >

> > help please! any ideas?

> >

> >

> > >

> > >

> > > HI everyone. I need parent ideas about my non rss son. I am

asking

> > > because I see many parents here who have kids with other things

> than

> > > RSS and I don't know where else I could go and ask this

question.

> I

> > > need to ask a question about my non rss son, skye, (undergoing

> > > testing for short stature, 6 1/2 yrs, 42 1/2 inches, 35 lbs)

> Skye is

> > > having problems in kindergarten that began back before he was a

> year

> > > old. It began with obsessions such as keys, he knew by

examining

> > > the grooves which one went to the house, 2 cars and mailbox by

age

> > > one. He liked to open/close for hours, on/off, together/apart

> > > endlessly. He never cared much about other kids but was very,

> > > actually over affectionate with family. Over the years, played

> some

> > > with toys but mostly any form of keys and would " unlock " toys in

> > > their crevices or drive a ride on toy over and over while

holding

> the

> > > key. He always plays away from other kids, never wanted to be

> > > involved. Would sit apart when we went to playgroups, and

always

> do

> > > his own thing. Didn't talk in sentences until 3 1/2 (that's

> when he

> > > really started to talk besides mama, dada, ball, bye,bye,)

> d a

> > > key in his pocket talked about keys 99% of the time with family

> and

> > > some adults. by 4 yrs, liked to ride a powerwheels in large

> circles

> > > in the yard until the battery ran out. then would go in plastic

> house

> > > in/out and open and close the door over and over or go inside

and

> > > play with keys and occationally other toys...he would go through

> > > phases of toys and still does. Whatever would facinate him at

the

> > > time would become an obsession. He would not want to eat,

sleep

> or

> > > do anything but talk or play with it(on top of the keys) It

lasts

> > > about 2 weeks then back to only keys. by age 6 he became

obsessed

> > > with wands from harry potter. it is always with him and he

talks

> > > about it and askes the same questions literally at least 20

times

> a

> > > day unless he is going through a new 'toy' obsession which he

will

> > > ask the same questions over and over. ( he still obsessed with

> keys)

> > > His new toy is a car seat light with a little remote that he

will

> > > play with for hours. He has talked with a neighbor girl an d

the

> > > girl we drive to school but only about his obsessions...he

doens't

> > > understand why they aren't obsessed like him. (recent

> > > obsessions..stapling papers over and over, making green tickets

> for

> > > hours(that is something from school)and doeing that every

day, )

> He

> > > plays with his little bro and sis but always in your face play

> and my

> > > 2 yr old wants him to leave him alone, skye is always 'in his

> face "

> > > in school, he academically top of the class, but socially and

> every

> > > other way at the bottom. will talk to no one. not only that,

> will

> > > ask the teacher the same question over and over on what is

routine

> > > (like putting on the jacket at the end of the day, going to the

> > > bathroom, going to his table, pushing in the chair ) and he

can't

> do

> > > anyting without being directed. he falls behind in his

> schoolwork.

> > > he can't do artwork without 'copying' what he sees, he can't

come

> up

> > > with answers that are not factual like 'what do you think about

> this

> > > book?' and recently do for 3 or so weeks, can't make decitions

> like

> > > juice or water? or school related forms of that..

> > >

> > > anyways, sorry for rambling. he is with a psychologist for 2

mos

> now

> > > and so far hes ocd but that is not from the key/wand stuff, it

is

> > > from his handwashing till raw because it's never clean

> enough...etc

> > > stuff. they think anxiety disorder too but his teacher and I

> think

> > > maybe aspergers syndrome, but he has eye contact, is

affectionate

> and

> > > doesn't rock or hand flap. the psychologist doesn't think so

> > > according to meeting him a couple of times and a jilliam (I

THINK)

> > > autism rating test.....any ideas? As of now, he will not make

it

> to

> > > 1st grade and I am searching for anything. Please help if oyou

> can.

> > > He is a really sweet caring boy but we get really frustrated

with

> > > what's going on. then we realize disapline doesn't work

because

> his

> > > face is blank..he just doesn't get it.

> > >

> > > I know i've mentioned a lot, but not everything and all this on

> top

> > > of his size/weight for unknown reasons and stuff, am I missing

> > > something that may be obvious to others?

> > >

> > > thanks for any ideas

> > >

> > >

> > > mom to Autumn 1 RSS, Skye non rss but short stature 6 1/2, and

> ocean

> > > 2 1/2 and baby on the way in july

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >