Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 Hi my breif story. My daughter Tori is 5 yrs old she was diaginosed with RSS in December 2001.I had a normal pregnancy up in till my 37th week when in for ckup my blood pressure was very high not normal for me. So my OBGYN sent me to Beneditine Hospital to be monitored everything seemed ok myblood pressure went down and I was sent home. That was on wednesday, friday was christmas eve it was the sadiest christmas I had ever had the not knowing and feeling somthing was very wrong. We had christmas oh wait my Dr called me the day before and told me to be in the hospital on sunday the 26. So my husbad drove me in around 11am I had a sonagram done but back on the monitor, then around 4pm the midwife that worked in my obgyn 's office came in and gave me cervidile she said that nothing was wrong we were just going to ripen my cervix so I would be ready to deliver on monday when the Dr. comes in. Then around 11:30 the nurses sent my husband and his dad home to rest and shower they said that it would be a bust next day at 12:15 in the morning I got my first contraction. The nurse came in and said I still had along way to go, I called my husband about 1:45 asked him to please come back I was in alot of pain he said he would be their soon as he could,I called him back again at 2:30 and said I was in labor, then called him again when my water broke at 2:55.The nurse came in and tori's head was crowing I delieverd at 3:05 am alone with 2 ER Drs.Things happened so fast over the next few days. Tori was transported to vassers nicu unit her glueclose would not come up and she only weighed 3 lbs 9 oz. She spent 9 days in the hospital, she was sent home only weighing 3 lbs 11 oz. I nuresed her around the clock for 15 months the peditrican said she was below the 5th percentile but still had her on little curve she was maintaing. Tori started EI services at 6 months because she was delayed. Thne we were refered to this Dr and that Dr And then finally saw one at west chester medical center who gave us som understanding what was going on and here we are facing yet another challenge (kindergarten)Tori now weighs 30 lbs and 3feet 2inches, she is relitivley doing good, but will be going to see Dr Harbison at Mt.sini in NY.And we will be attending the magic foundation as long as I can raise the money for us to go. Quote Link to comment Share on other sites More sharing options...
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