ER

[Guest guest]

Just want to remind everyone, when you have unusual symptoms such as

chest pains or coughing up blood or extreme drop of sats or shortness of

breath or anything else like that, get immediate attention. By

immediate, I mean RIGHT NOW, not if it doesn't improve in a couple of

days. By now you know your systems well enough to know the normal

symptoms of your disease. You know when " this feeling is different " or

" I'm use to such and such but today its just horrible. " Now, I didn't

tell Pink Joyce to run her fastest to ER because even though medical

care is very important for a potential fracture of a bone, it's not

likely a matter of life or death whether she gets attention today or

tomorrow.

When the question of whether you should go to ER crosses your mind, then

I'd say that is already your answer. Better safe than sorry. Force the

disease to run its full course but don't let a complication or something

else kill you suddenly and when it could be prevented. I'm not just

preaching to Merf who just posted here but to all of you and to myself.

Why so fervent? Because I know members of this and another forum who

delayed and we'll never know if had they not delayed might they still be

alive. They were not members whose PF was advanced that far or close to

taking them on its own. I also, thankfully, know a couple we've urged to

get help including one who immediately called an ambulance and she was

admitted, but the doctor told her that had she waited overnight she

would have died.

Yes, we've all been told what we thought was serious or unusual was

nothing and felt silly. But wasn't that what many of us were told before

PF was diagnosed. I know I was told I was old and out of shape, but I

knew it was more. You also know when what you're experiencing just isn't

one of your normal symptoms.